Here's my update. I had HIFU treatment four days ago and have to say it went well. About 30% of the prostate with 3+4 Gleason score was treated. A very small separate area of 3+3 was left untreated as consultant was not concerned about its growth and said any treatment is a trade off between pros (clearing cancer) and cons (potential incontinence and ED).
I went into hospital and prior to op I was given an enema to clear my bowels (not painful, just a bit unpleasant) then down to surgery, general anaesthetic and about 90 minute op. Catheter fitted during the op, then back to the room and an overnight stay. I was given oral morphine for the discomfort which wasn't too bad at all and managed some decent sleep. I was discharged the next day with painkillers and antibiotics. I then spent next two days recovering at home with the catheter in. To be honest the catheter was the bit I was most concerned about but it wasn't at all bad really. You have the tube coming out of the end of you penis with a tap on it and went you need to pee, you just turn the tap on (without using your muscles) and it empties your bladder. I was able during those two days to eat and drink normally and sleep ok. I did nothing energetic, literally just sitting on the sofa watching the tennis which was a bonus!
Catheter was removed yesterday back at hosptial (so only 72 hours of needing it) and that was a bit unpleasant. It only takes 5-10 seconds to remove it but it's quite a sharp pain. I then had to show nurses I could pee normally which I did 3 times and was then allowed to go home a couple of hours later.
So here I am on Friday after the op on Monday. Walking around as normal, no noticeable side effects except a little bit of soreness when peeing. Urine is clear with no blood. Certainly no pain in the rectum where they put the probe in to do the HIFU. No incontinence or dripping either. Hard to say on erectile dysfunction yet but it doesn't feel as if it's going to be an issue. All in all I feel about 90% back to normal already. Next step is MRI scan on Monday to check on the success of the op.
Obviously I have no other treatment to compare it with but I'd recommend it. Minimally invasive, not really painful, no obvious side effects, recovering really quickly. If any other men are reading this I would seriously consider it as an alternative to prostate removal, radiotherapy, brachytherapy etc. The success rate is same as other treatments and with fewer side effects it seems an obvious choice. Definitely look up HIFU treatment.
I'll post again when I get the MRI results. Looking back on the whole experience it was fine. I'd recommend it to anyone who is a suitable candidate.
All the best, Steve.