Why weren't we tested?

Hi XK8,

Firstly welcome to the forum this is a great place for advice , a shoulder to lean on and where you can scream and shout in fact anything that you want to say is OK the only thing not allowed is to name your specialist , we tend to allude to them with just an initial IE MR D or Mrs P ours is Mrs T.  I usually call her the Whizz http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif. As in the Wizzard of Oz.

I don't know how much you have googled but a gleason 9 is not the best of news but and I frequently say Buuuuuuuuuuut certainly not the worst. I am hoping others will post (yes Alison that's you) there are quite a few with this staging.

So your question why OH why is PSA Testing not routinely done as a matter of course the same as something like breast screening and cervical smears , so many people are asking this question my self included others will hopefully come along and give there take on this but from my perspective if Trevor had been tested from the age of say 50 then maybe just maybe we would be in a whole different ball game know . (excuse the pun).

BFN

Julie X

have asked myself this question also been asked it by others and mentioned it to my GP and onco, their answers being the same as above, psa blood test can be affected by other actions, and is not the answer for screening

your psa and gleeson score, mine are much the same, and if you read my profile you will see how I am, but then again a running friend his psa was really high with a gleason of score of 9, he is on hormone therapy and completed a course of radio therapy is his prostate is contained, now on monitoring

I have come to think that as in life everyone is different and this PCa is much like that no two people seem to have the problem

I have not got mad or angry with what is happening my thoughts are I have one of two ways with dealing with this, and with what time I may have left I am not going to let it spoil it

My concerns and fears are all for close family

You are going to have some hard times waiting for results these will never come fast enough for you, always have some one with you whenever you go on a hospital visit, I have at least 3 extra with me on each visit, not just for my support its so they can hear what is going to happen and may help them also to come to terms with it.

Its not just about ourselves even though its our bodies that have been invaded, my sister would take it out my body and put it in hers if she could

keep us informed with as much as you would like to tell us

all the best with future results

nidge

Edited by member 21 Jun 2015 at 07:14  | Reason: Not specified