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Just diagnosed and terrified.

User
Posted 09 Jul 2015 at 21:26
Steve when you do think you need a number 2 take a small foot stool into the bathroom with you, or even the buckst if you dont have the stool put it just in front of the loo. When you sit on the loo put your feet up on the stool. It takes all the pressure off your lower bottom and back passage and really helps you to pass stools without too much discomfort or need to push as such.

It also helps with Reaching to wipe your bottom a bit as well, if you can get hold of some moistened toilet tissues they are much easier to use or if you still cannot reach use the shower head like a hand held bidet.

Things will start to ease off soon.

I am so pleased your brother is coming up to stay to give you help and also just for the company.

I am sure there will be other Men here who have been through this without a wife or partner who will be able to come up with more ideas that might help.

best wishes

xx

Mo

User
Posted 09 Jul 2015 at 22:21
Hey Mo

That's a good idea about the stool, I will try that.

I'm sure I threw out a nice little stool which would have done the job but I think I have something that might work well.

Typing this reminded me to take my Senna tablets.

Thanks for the advice

X

User
Posted 10 Jul 2015 at 00:18
The stool worked for me. Other advice I got that seemed to help was to hold your nose and breathe into your cupped hand. It sounds odd but apparently it helps to open the anal sphincter. It's important to try not to strain. I went about 8 days post op and in the end needed movocol off the G.P.

Edited by member 10 Jul 2015 at 00:19  | Reason: Not specified

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 10 Jul 2015 at 09:52

Hello Raiden, I'm back from camping with no WiFi so can now add my best wishes to everyone else's.

Glad it all went well although I can appreciate how uncomfortable these initial first few days will be.
Glad that you brother is coming down, that will not only be a help physically but mentally too as you can bounce your feelings off him! It's what brothers and sisters are for!!

Good luck young man and all the best from

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 10 Jul 2015 at 10:10
Paul

interesting about the nose hold and hand breathe idea, that is also a very old cure for hiccups, my Nan always made us breathe in and out of a brown paper bag (not a plastic one that wuld be cruel!!) It works every time for me. I would imagine there is science behind that i.e. breathing in your own processed air which has now been converted to carbon dioxide which in turn must be a mild natural muscle relaxant. It seems to work much better than the other usual ones like holding your breath or drinking water through a cup backwards as they just reduce the amount of oxygen you take in.

Steve, sorry just a little diversion on a bright friday morning.

Have a much more comfortable weekend

xx

Mo

User
Posted 10 Jul 2015 at 11:09

First time..

Well I felt a bit of stirring so thought I would try and go for a number two (sorry)

I could sit ok on the toilet but noticed small leakages coming out the end of my willy while I was sat there waiting to go. This has worried me so I got back up again without doing anything.

Is this normal? The catheter is still working ok with fluid going fine into the bag after I tried the above.

User
Posted 10 Jul 2015 at 11:23

I'm not sure of the science of the bladder and bowel except to say that if you have a very full bowel, and you must have by now, then it will put pressure on other organs close by so maybe that's what causes the leakage.

Just so we are reading from the same page, are you talking a urinary leak from the penis.
Is it "normal" colour or bloody or what.

I appreciate that with a catheter in you wouldn't expect leakage at all.

When you sat there "waiting to go" were you using any pressure at all ie trying to evacuate or just waiting around so to speak?

Not necessary to apologise. Unlike the Queen, who is surely a different being as she is royalty, we all have bodies that behave in more or less the same way !

Personally I would say never ignore the slightest feeling that you might be able to go.
Are you drinking plenty of fluids?

We can't control the winds - but we can adjust our sails
User
Posted 10 Jul 2015 at 11:26

Originally Posted by: Online Community Member

First time..

Well I felt a bit of stirring so thought I would try and go for a number two (sorry)

I could sit ok on the toilet but noticed small leakages coming out the end of my willy while I was sat there waiting to go. This has worried me so I got back up again without doing anything.

Is this normal? The catheter is still working ok with fluid going fine into the bag after I tried the above.




Hi Raiden,

I've been away for 5 weeks in the caravan so not been on here lately  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

Leakage can / does occur when passing a motion sometimes...... as long as urine is still draining into the bag there is nothing to be concerned about...
I used to wrap some toilet paper around the catheter exit area to soak up any leakage when doing number two's..


Hopefully your catheter will be removed soon and  won't have to put up with this situation for very long...

Best Wishes 

Luther

 

User
Posted 10 Jul 2015 at 11:32
Originally Posted by: Online Community Member

I'm not sure of the science of the bladder and bowel except to say that if you have a very full bowel, and you must have by now, then it will put pressure on other organs close by so maybe that's what causes the leakage.

Just so we are reading from the same page, are you talking a urinary leak from the penis.
Is it "normal" colour or bloody or what.

I appreciate that with a catheter in you wouldn't expect leakage at all.

When you sat there "waiting to go" were you using any pressure at all ie trying to evacuate or just waiting around so to speak?

Not necessary to apologise. Unlike the Queen, who is surely a different being as she is royalty, we all have bodies that behave in more or less the same way !

Personally I would say never ignore the slightest feeling that you might be able to go.
Are you drinking plenty of fluids?

I feel ok at the moment and the sensation to go has pretty much gone, I haven't eaten anything for 5 days now so I don't think I'm that bunged up. Drinking lots of water though.

It looks normal urinary leakage, colour is fine, didn't sting or anything.

I was just waiting around to let nature take its course, no pushing at all.

Yes drinking lots and lots of water.

User
Posted 10 Jul 2015 at 11:35
Originally Posted by: Online Community Member

Originally Posted by: Online Community Member

First time..

Well I felt a bit of stirring so thought I would try and go for a number two (sorry)

I could sit ok on the toilet but noticed small leakages coming out the end of my willy while I was sat there waiting to go. This has worried me so I got back up again without doing anything.

Is this normal? The catheter is still working ok with fluid going fine into the bag after I tried the above.




Hi Raiden,

I've been away for 5 weeks in the caravan so not been on here lately  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

Leakage can / does occur when passing a motion sometimes...... as long as urine is still draining into the bag there is nothing to be concerned about...
I used to wrap some toilet paper around the catheter exit area to soak up any leakage when doing number two's..


Hopefully your catheter will be removed soon and  won't have to put up with this situation for very long...

Best Wishes 

Luther

 

Hi Luther

Thank you for replying that's a great help to know it can happen and it's nothing to worry about.

I did wrap some toilet paper around the end when it was happening and will do again when I try again.

I'm hoping its removed next Thursday, think it will be so much easier once that's gone.

User
Posted 10 Jul 2015 at 14:23

Before wrapping toilet roll or anything else around the point where the catheter enters you penis I would check that this is not going to, or be likely to, increase the risk of an infection?

The importance of absolute hygiene at that area can not be over emphasised, as one who has had a UTI I can tell you you do not want one if you can avoid it, it is excruciatingly painful, or was for me.

You always wash away from the catheter entry point, washing out away from, rather than in towards, the penis.

Some catheters do leak, some less so or more so than others. If it is unbearable you may be able to have the balloon at the end filled up more to try to improve the seal? Worth asking the District Nurse or your GP about.

You are doing well so far.

atb

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 10 Jul 2015 at 16:27

I don't know a lot about penises except my own . Im circumcised which is probably easier , but I was told everyday to wipe from the tip ( point of entry ) away from the body down the tube , making sure I swabbed away blood , stains etc . Don't wash or "push " stuff upwards . To be fair I just used my little boy's Tesco baby wipes and didn't cause any problems . The pooing thing can be awful . I just kept taking Milk of Magnesia as it said on the bottle . You HAVE to get the poo out and yes it causes considerable pain . And 3 weeks later it causes pain as the poo passes the scar site I suppose where the " Knitting " was done . So keep it moving mate , and wrap the towel around your tummy and twist at the back like a tourniquet so you can force a bit . That was an amazing bit of nurse advice . One week down the road you are still going to be uncomfortable , but will MARVEL at the healing power of the human body . I think you are SO SO brave having been on your own and it melts my heart that your brother came to you , as I know I was wrecked both physically and emotionally .
We're gonna get there Raiden . We promised remember !
Chris

User
Posted 10 Jul 2015 at 21:55

I am being very careful with the cleansing and always wiping away from the entry point down the tube.

I've still not been a number 2, tried today but nothing happened after the leak I had.

I will remember the towel technique and I must start taking the liquid softener they gave me.

User
Posted 11 Jul 2015 at 09:08
Steve

Give the district nurse a call and get her to bring you some movicol. Tastes rotten but does the job. And why are you not eating? You need to be eating, even if it's only a bit. Weetabix is always good.

User
Posted 11 Jul 2015 at 10:30
Movicol did it for me. Stand back and light the touch paper-- Boom.
THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 11 Jul 2015 at 11:42
Steve,

You mentioned you haven't eaten much, you must try to start eating as that couldn't be helping. I hate to say this but Stuart has moved his bowels twice this morning, he has been eating lots of fruit in hospital yesterday and drinking prune juice as well as taking Lactulose solution. Do try and eat fresh fruit and veg or maybe make a homemade veg soup?

We are home now thankfully.

Hope you get there.

Trish x

User
Posted 11 Jul 2015 at 14:31
I seem to remember oh resorted to syrup of figs. He sent me to Tesco for it, then just drank half a bottle. I think the dose was two tea spoons...
User
Posted 11 Jul 2015 at 17:53

I just had some scrabbled egg, first thing in 5 days, I've come to the conclusion I need to eat. Some friends brought me some fresh fruit round so will eat that tonight.

That's excellent about Stuart going twice already, especially so soon after the op.

I think tomorrow's gonna be the day.

User
Posted 11 Jul 2015 at 18:01
Good Steve I'm glad you are eating, try some wholemeal bread too but getting the fruit is excellent 😉
User
Posted 12 Jul 2015 at 07:48

It happened last night...... :)

Took quite a while to get going but the main thing, it happened :)

I felt so relieved afterwards and although it was very awkward to go it didn't hurt too much.

Think I might brave some toast this morning, as I love my toast and have missed it so much.

The fruit went down a treat last night.

Happy Sunday to you all
X

 
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