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Just diagnosed and terrified.

User
Posted 12 Jul 2015 at 08:37
YΓ ay so pleased for you, now keep eating that fruitπŸ˜‰
User
Posted 12 Jul 2015 at 08:46

That's good news Raiden.
Enjoy your toast and if you are going back to eating fibrous things don't forget the fluid too.
Best Wishes
Johsan

We can't control the winds - but we can adjust our sails
User
Posted 12 Jul 2015 at 09:34
Raiden

Phew what a relief !

All the best with your recovery.

Thanks Chris

User
Posted 16 Jul 2015 at 18:46

Update......

I went to the hospital today to have the catheter removed, ouch that was uncomfortable. Then an injection in my bottom which was an anti biotic as a precaution, needle was massive, ouch again.

I instantly started dribbling, they put a pad on me and asked me to get some drinks for an hour to see if I could wee on my own and if I could feel I needed to wee. This took about 40 mins, lots of dribbles and leaks but eventually I went. Flow was weak and it hurt towards the end inside my tummy.

Went back to see the nurse and I was not quite empty, waited another 30 mins, went for a wee again, better flow and still cramped inside at the end.

Went back, she scanned me and I was empty, they let me go.

Went to a shop and was leaking lots, felt dirty so came home and got a nice hot shower.

New pad on, I lasted quite some time but so far been leaking lots in the pads, just dribbles but quite frequent.

The nurse said it was nothing to worry about and should subside in a few days once my bladder gets used to working again, I'm not so convinced. I was hoping I'd be dry from the off but hey just another obstacle I will deal with and hopefully it will subside in a few days.

Great to be catheter free, movement is so much better, almost like being normal again..

User
Posted 16 Jul 2015 at 19:13

You'll be fine Raiden.

You've just had a foreign object removed from a sensitive part of your anatomy and it's telling you it's damned sore so be patient.
The time to panic is a lot further down the line.

Did you do your pelvic floor exercises? As soon as you feel you can cope with them get them going again, they'll stand you in good stead in the future.

Glad you're feeling relatively back to normal anyway

We can't control the winds - but we can adjust our sails
User
Posted 16 Jul 2015 at 19:23

Hey Johsan

Although yes I was hoping to be dry you are so right, hopefully it will get better over the next week or so, just need my body to adjust back again without a size 18 catheter down me snozzle.. Lol

I never got chance to do many pelvic exercises pre op as everything happened within days so didn't get much time before I was operated on.

I was advised not to do any PFEs with the catheter in, but now it outs been doing them today and will continue each day frequently.

I'm looking at it like this, catheter in vs dribbles, dribbles every time. As long as I get control back at some point soon.

User
Posted 16 Jul 2015 at 19:34

Raiden,

your bladder/urethra muscle has been clamping shut, as far as it is concerned, on a catheter pipe. removal of that pipe means the the muscle has to learn again to clamp shut to a new zero, itself, just like when you were a baby.

It will take time, may be weeks, maybe months, may be years. It is beyond your control. Took me 7 months to go completely padless.

Give it time, be a patient patient.

atb

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 16 Jul 2015 at 20:30
Raiden,

I had a similar experience and it felt scary. I had very little control for a few days but gradually things got better and now,15 weeks on, I am more or less back in control. I have a level 1 pad on as a precaution for the rare moments when I do have a little spurt. These are usually in the evening when I guess the pelvic floor muscles are getting tired. The excercises must be helping.

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 16 Jul 2015 at 22:13
Steve

great the catheter is out hooray now you can turn over in bed without fear of pulling it out. No more night stand and bags to change, wash. throw away etc.

you must try and let nature do its own thing, you can help by doing exercises, changing your pad regularly and keeping really clean to avoid any infection. I know the pads seem horrendous and many men go through the fears of leaking out of it or thinking it shows through clothing. Unless you are wearing snake hip pants they won't. It is a good idea to wear those slim fitting boxers not the loose shorts but the speedo short type. they help to keep everything where it should be. Us ladies kind of learned how to deal with pads and how to secure them in place when tampons were not adequate on their own or an option at all for some ladies, bridget jones pants rule! you will also get to know that spurts can easily be contained in fact quite big spurts can be. Those pads are incredibly absorbent. I know it is not exactly the same but you get my drift.

Give it a couple of weeks to start improving you are now on the road to recovery so as Dave says be a patient patient.

best wishes

xx

Mo

User
Posted 16 Jul 2015 at 22:27
Steve,

We are there tomorrow so will let you know how Stuart gets on x

User
Posted 16 Jul 2015 at 22:38

R

To get an idea of what a pad will hold,  stand in the bath or shower with your pad on and some urine in the bladder and let it go. Might give some assurance if you get caught short. Try to get a happy medium between going when you have the urge and not going just in case you need to retrain the bladder. I can hold it for quite a while but can not stop, it mid stream (not that you should be doing that anyway).

Thanks Chris

User
Posted 17 Jul 2015 at 06:26

Thanks to everyone for the replies and advice.

User
Posted 17 Jul 2015 at 06:32

First night post catheter removal....

Morning friends

Its 06:18am I have just woken from my first night without the catheter and I'm totally dry. I could feel I needed a wee although a different sensation to how it used to feel pre operation, I have just been for a wee and it was quite a big one, but nothing in my pad, completely dry. Let's hope it continues like this.

Weeing is a bit of hit and miss at the moment, I don't seem to have much control over the flow and I'm quite spurty, getting started is taking me a little bit of time to get going, also it seems when I am empty or near empty I get this sudden sharp ache in my tummy, the nurse said its the bladder muscle contracting and I'm feeling it because of the wound site.

I have to say I am very surprised, will see how I get on during the day with the leaking.

X

User
Posted 17 Jul 2015 at 08:38

Yeh mate awesome news for you and superb advice from everyone . As you know ive been uber lucky really. But im still chuffed when im dry at night . Ive only wee'd at night 3 times out of 22 , and am essentially dry all day . Im wearing day pads but more for security at the mo . I DO feel like im leaking occasionally and get the odd spurt , but it kind of stops at the tip and I can wait long enough then to find a toilet . It STILL hurts for me every time my bladder fully finishes emptying and im just over a month now . Doing a number two hurts when it rubs past the site still also .
Don't be disappointed if "gravity" starts making you leak again today mate . Its the law of physics . Best wishes and to Stuart

User
Posted 17 Jul 2015 at 10:15
Hi Chris,

Stuart is so looking forward to be Cathetar free and jogging bottoms free that he is bringing his jeans and a nice shirt to change into when it's removed = he's so vain πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

User
Posted 17 Jul 2015 at 11:16

Vanity, surely not. This is a man who says he won't be beaten by cancer and its inconveniences.

(I'd still pack a pair of joggers for him - discretely you understand, don't want to undermine his confidence!!)

Stuart may well be sore around the zip/under seam  area and appreciate the joggers for now.

Good luck anyway whatever he wears. You and he will be glad to be home and catheter free

Edited by member 17 Jul 2015 at 11:17  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 09 Sep 2015 at 19:22

Hey Peeps

I thought I would post my 8 week update 09/09/15

I had a good 8 weeks (well over 9 weeks really) result, my PSA was 0.06, the pathologist report didnt change my staging which was good I was still T2C which they changed pre op from T3A, one thing he did say about the report was there were cancerous cells up to the boundary of the margin point, not on it or over just right up to it which he said is very normal but will need to keep an eye on it for anything microscopic.

He was happy with the result but said my next 3 month PSA test is the more important one. He wants to see it down to 0.01 if it goes up or more importantly if it goes to 0.1 or above he said because of my age he would want to start alternative treatment immediately. I didn't like this part I have to say cause to me it felt like a positive then negative. I just feel a bit like today has just been delayed for 3 months and then I have to go through it all again...

I feel great though, and back to work and stuff, everything normal apart from Mr Wiggles.

Still not much happening on the ED front, but I know its still early days. I got two pumps but not really working for me right now, it just hurts, doesn't give me an erection more like a lazy lob, it also hurts being an uncut guy, it seems to pull my bell out of the foreskin and stretches on my banjo string, almost like its just the tip that is being suck so uncomfortably hard..
I'm going for a pump demo in two weeks, I think I will wait for that as I don't want to damage anything by doing it wrong.

I looked in the mirror and laughed thinking "What in earth do you look like" lol, never did I think all those years of pumping up my bicycle tyre's that I'd be having to pump up my winkle lol

User
Posted 09 Sep 2015 at 19:27

Good to hear from you Raiden and with pretty good news (well most of it)

Keep exercising !

We can't control the winds - but we can adjust our sails
User
Posted 09 Sep 2015 at 19:51

Hi Steve -- Good news I reckon mate but I get the whole " another 3 month wait " thing . I think I should have found a robot somewhere maybe , but probably would have ended up with the Brian robot from confused.com knowing my luck . Im beginning to feel that even good news can be bad news -- chasing results that can barely be measured accurately for the rest of your life , and waiting month after month for news . Having said that i'd rather be in your shoes than mine at the moment friend.
The pump detail is making me wince ouch !! I heard you're the man , but two pumps , honestly , is just bragging.
Take care and speak soon
Chris

User
Posted 09 Sep 2015 at 20:13
Good to hear about your low PSA result - I hope this continues to be case.

After my op I looked down there to see my previous pride and joy and had never seen such a pathetic little creature, lol! I definitely would be embarrassed to be in communal showers, lol again. However, you do have some "youth" on your side. I believe this will be much to your advantage in returning to full EF.

Wishing you all the best with your recovery.

 
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