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The final countdown!

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User
Posted 06 Jul 2015 at 18:10
After first visiting his GP at end of October the time has come at last for Stuart to have his Da Vinci surgery on Thursday, it's been an emotional weekend seeing friends and family and his head is now well and truly out of the sand. Stuart had found things very difficult to talk about and had practically read nothing until last Thursday he had his pre op and met with the specialist urology nurse, it seemed after that meeting (she was fantastic BTW) a switch went on in his brain and the reality of it all hit him. We looked at everything online over the weekend and talked so much about his fears especially about the incontinence and ED. He knows that I love him so much and I am here 100% and we will now face this together and whatever life throws at us we will get through it, I have also had some lovely helpful PM's from some of the forum members and one from Chris today came at the right time and Stuart appreciated it so much. Last night a strange thing happened, Stuart called over to our neighbour with a parcel that had been left for him and it turns out he has PC. He called me over and we sat in their garden for a couple of hours and he talked us through his experience with some great advice - the wine they gave also went down well! Anyway once again thanks so much for all your help and advise over the last 8 months it has been really appreciated.

Will let you know how he gets on.

Trish x
User
Posted 06 Jul 2015 at 18:10
After first visiting his GP at end of October the time has come at last for Stuart to have his Da Vinci surgery on Thursday, it's been an emotional weekend seeing friends and family and his head is now well and truly out of the sand. Stuart had found things very difficult to talk about and had practically read nothing until last Thursday he had his pre op and met with the specialist urology nurse, it seemed after that meeting (she was fantastic BTW) a switch went on in his brain and the reality of it all hit him. We looked at everything online over the weekend and talked so much about his fears especially about the incontinence and ED. He knows that I love him so much and I am here 100% and we will now face this together and whatever life throws at us we will get through it, I have also had some lovely helpful PM's from some of the forum members and one from Chris today came at the right time and Stuart appreciated it so much. Last night a strange thing happened, Stuart called over to our neighbour with a parcel that had been left for him and it turns out he has PC. He called me over and we sat in their garden for a couple of hours and he talked us through his experience with some great advice - the wine they gave also went down well! Anyway once again thanks so much for all your help and advise over the last 8 months it has been really appreciated.

Will let you know how he gets on.

Trish x
User
Posted 11 Jul 2015 at 14:35

Welcome home Stuart


Glad all seems well.


Hope progress continues


Best Wishes


Johsan

We can't control the winds - but we can adjust our sails
User
Posted 12 Jul 2015 at 08:48

He's been through the mill Trish (well you both have in different ways) but hopefully with a bit of sleep under his belt Stuart will pick up.
While Stuart is resting take that time to rest yourself.
Can't have you flaking out now can we.
Johsan

We can't control the winds - but we can adjust our sails
User
Posted 06 Jul 2015 at 22:18

Gosh Trish missed this post with all the activity - as have others no doubt. Please offer Stu all the best. I was told I had El to help me through , and I'm hearing he has you just as much. Where would we be without you. Seriously. Honestly. Small steps forwards which is constant advice. I wouldn't want to be in his shoes again , but I'm recovering already and alive , and "monster" told me he loved me tonight for no reason ๐Ÿ˜€
Keep in touch
Chris and El

User
Posted 07 Jul 2015 at 07:10

all the best for Thursday Stuart will be thinking of you Andy

User
Posted 07 Jul 2015 at 07:23
Trish and Stuart
All the very best for Thursday.

Your post is lovely Trish you have captured the love you both share in such a meaningful way. I only saw it just now as despite the time you posted it new threads can take a while to appear. I think it is common for anyone facing such surgery to be very quiet about it all until it is really about to happen it is a kind of coping mechanism I guess.
At least now with your help and that of his medical team Stuart is ready.

It seens amazing how often someone living so close has PCa but I guess with the stats so high we should not be so surprised, at least you know you have someone very close at hand who will understand as well as all us lot of course!

Will be thinking of you both so be sure to let us know how Stuart is recovering and how you are doing too.

Best wishes
Xx
Mo
User
Posted 07 Jul 2015 at 08:58

So good you have been able to talk together. I hope the surgery goes well, keep us posted !


 


Regards, Fiona.

User
Posted 07 Jul 2015 at 10:11
Very best of luck to you both. I shall be thinking of you x
Louise
User
Posted 07 Jul 2015 at 10:50
Hope all goes well on Thursday and you don't have any travel problems

Arthur
User
Posted 08 Jul 2015 at 20:30

MASSIVE best wishes tomorrow Stuart and Trish and hope the journey ok !! You may be in bed already ;-)
I asked El if we could do something dirty on our final night , and she smiled lovingly and got the gardening gloves out .........
Very poor joke I know . Let us all know everything went well x
Chris and El x

User
Posted 08 Jul 2015 at 21:45

Hope all goes well tomorrow for Stuart Trish - challenges ahead but I was relieved to be getting rid of the pesky cancer and I am sure you guys will be to.


dl 

User
Posted 08 Jul 2015 at 22:10

Loads of love and good wishes but you are both going to be fine. From tomorrow you will be sailing into calm waters.


BFN


Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 08 Jul 2015 at 22:18
Hi Trish & Stuart,

Very best of luck for tomorrow. Hope everything goes well.

Steve x
User
Posted 08 Jul 2015 at 23:53

Hi wish,

I hope all goes well for you both tomorrow. No reason why it should not. And please understand and accept that those of us who have been there, got the T Shirt etc are all living and moving forward with a new life, and making the best of what we have, and with "LIFE" that's blvydy marvellous.

dave

All we can do - is do all that we can.


So, do all you can to help yourself, then make the best of your time. :-)


I am the statistic.

User
Posted 08 Jul 2015 at 23:58

All I can say is I really hope the tube strike doesn't cause you too many problems x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 09 Jul 2015 at 00:59

Good luck for the op. Hope all goes well.

Paul

Stay Calm And Carry On.
User
Posted 09 Jul 2015 at 15:53

Hi Trish,


Really pleased for you both.  Must be a relief that the main bit is done.


Send him my best wishes when you get chance.


Steve x

User
Posted 09 Jul 2015 at 15:58

xxxxxxxxxxxxxxxxxxxxxxxxxx Not sure about the consumee thing. Maybe a small anaesthetic hiccup or something . Get some sleep and he can whinge about his belly pain in the morning xxxxxxxxxxxxxxx

User
Posted 09 Jul 2015 at 16:39
Been thinking about you. Glad it is all over.

best wishes

Alison
User
Posted 09 Jul 2015 at 21:13
Trish
that is good news, give Stuart lots of hugs from us all, he will remember them much better in the morning !!

I hope you have a really good night's sleep and a much less stressful day tomorrow

xx
Mo
User
Posted 10 Jul 2015 at 08:49
That's right Trish , nice sleep for you , lie in , cooked breakfast maybe. Spot of hand-bag / shoe shopping on the way.
Poor old Stuart ๐Ÿ˜€๐Ÿ˜€
Send our wishes
User
Posted 11 Jul 2015 at 06:52

Thats great news. Best wishes for a speedy recovery.

User
Posted 11 Jul 2015 at 08:07

Best wishes Stuart .. Nice and easy remember . Help with your slippers and paper , and don't forget to make regular painful grunting noises .
Speedy recovery and love to you both Chris and El

User
Posted 12 Jul 2015 at 05:57

morning trish


fingers crossed that the day improves


nidge

run long and prosper
'pooh how do you spell love'
'piglet you dont spell love -you just feel it'
User
Posted 12 Jul 2015 at 06:54

Perhaps not the best way to start a new day for you both. I sincerely hope its a minor blip and Stuart feels better and more comfortable as today progresses. With all you have been through in the last few days you must also be drained and exhausted and the road to recovery will no doubt have hiccoughs but hopefully the worst is behind now and its onwards and upwards from now on.My thoughts are with you.

User
Posted 12 Jul 2015 at 09:10
I might have a sneaky hour or two this afternoon Johsan๐Ÿ˜‰
User
Posted 12 Jul 2015 at 09:13

Gosh poor you two . Remember Steve and I just had this done too Trish , and the trauma I had Friday night . It will be bad for a while , but generally I think 2 weeks is painful.. Im off out to walk the dogs , lovely day . Im happy now what I had done . I don't know if ive beaten it at all , but I feel safe as a family and as couple we ok . I know we will be all right - just got to keep bipolar away
Chris and El

User
Posted 14 Jul 2015 at 08:27
Hi Trish,

My catheter is attached to my right leg and I sleep on the left side of the bed if I was laying on it on my back looking forwards.

Being very careful with the catheter and making sure it's not pulling and the tummy trauma area see in Stuart can sleep or at least position himself on his side when the kidney / back pain kicks in. I've been doing this and it helps no end, once in position it's comfortable, gives the back an instants rest. Even if it's for 30 mins at a time. It feels so much better.

It can be a little awkward getting into the position but slowly and carefully will do the trick.

Ste
X
User
Posted 14 Jul 2015 at 08:56

Glad Stuart has managed some sleep Trish.

Did you? Hope so anyway

We can't control the winds - but we can adjust our sails
User
Posted 15 Jul 2015 at 07:31

Sleep is a great healer sometimes. Wish him well for a better day today.

User
Posted 17 Jul 2015 at 18:45

Ah well, what's a little dribble between friends.
As long as Stuart is comfortable and not in pain, the dribblyness (is that a word) will sort itself out.
It's very early days yet.

We can't control the winds - but we can adjust our sails
User
Posted 17 Jul 2015 at 22:20

Once a week has past, you'll get a good idea of where you are. I still have to use a pad a day, (It could last 3!!!!). It's so frustrating that after big improvements over the first 8 months, since Christmas, there seems to have been little change.

Paul

Stay Calm And Carry On.
User
Posted 18 Jul 2015 at 21:54
Hi Mo,

Thanks, today has still been quite good with just the odd dribble. Last night he got up twice to go to the loo, today still suffering a little with the gas around his chest but we were re-assured by the urology nurse yesterday that that is to be expected. We know that he must still take it easy for a while, it was nice yesterday as we went out for a nice lunch in London after the Hospital it made Stuart feel a bit more human!

Trish xxx
User
Posted 28 Jul 2015 at 18:21

Glad Stuart has made good progress.

If some of the nerves have been spared there will be improvement there at some stage so fingers crossed for both of you.

Best Wishes

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 28 Jul 2015 at 19:03

HURRAHHH you're back . Great news all round for Stuart . My review is 12th which is 8 weeks . My PSA test is tomorrow ( 6weeks ) and my doctor has promised to reveal all -Oooooooo . Excited ( not ) ! Im so glad you've come back to the fold as all the shared info is great .

" Wishes " -- My operation was laproscopic too through 5 keyholes , but mine was done by hand rather than via the Da Vinci robot , so you can have that option aswell .
Chris x

User
Posted 28 Jul 2015 at 19:19

Originally Posted by: Online Community Member
Hi Luther,

Thanks for that, it was the only thing that was concerning him and I suppose you are right he would want Stuart in the consultation and with his latest bloods etc.

Trish


Trish,

Problem is you only get half the story if you get the info in bits and pieces?

Although it was an uncomfortable 8 weeks wait for me, my preference was to wait until all the 'scores on the doors' were back.

I'm pleased I did, as I had a full explanation of the results from the 'main man' and he was able to answer any questions that I had based on all the info available to him....
Luther

User
Posted 28 Jul 2015 at 21:31

T & S


Well done on your recovery, I thought I had done well back to work in 4 weeks so 3 weeks is brilliant although some will say way to soon.


I got my histology over the phone from my surgeon after three weeks, even though it was not quite the news I wanted it was what it was and I think until you get a post op PSA result a few weeks later a decision on possible further treatment may not be possible.


 


Thanks Chris


 


 

User
Posted 07 Sep 2015 at 13:47

Fingers crossed for you Stuart.

User
Posted 07 Sep 2015 at 13:58

Good luck Stuart and Trish.

Everything's crossed, fingers, arms, legs,eyes !!

Hope the news is good for you

We can't control the winds - but we can adjust our sails
User
Posted 07 Sep 2015 at 14:19
I can't wait for some great news Trish. Everything crossed from El and I . Stu"s recovery sounds exactly the same as mine physically and I'm moving on ED wise. Xx
Chris
User
Posted 07 Sep 2015 at 19:07
Good luck for histology tomorrow
I will be thinking of you
Xx
Mo
User
Posted 07 Sep 2015 at 21:45
All best wishes to Stuart, and you, for tomorrow.

Maureen x
"You're braver than you believe, stronger than you seem and smarter than you think." A A Milne
User
Posted 08 Sep 2015 at 18:05
Good luck Steve thinking of you tomorrow!

Stuart had good news PSA was 0.04 doc feels all going well with continence but still have a way to go with ED and we have some work to do with that. Next PSA in 3 months and in the meantime it's pump use every day.

Trish x
User
Posted 08 Sep 2015 at 18:20

F-A-B-U-L-O-U-S
Im soooo pleased for you both . What an enormous weight off both your minds. Been there , have the T-shirt.
So nice you can now just drop it for a while and concentrate on other things.
Did I just hear a cork pop ????? Im on my way
Really happy now xx
Chris and El xx

User
Posted 08 Sep 2015 at 18:27

That's excellent news Trish, as Chris said I hope you'll both be downing a few beverages tonight to celebrate.

On the ED front I'm exactly the same not much happening down there.

I'm going to get tomorrow out the way and if it's good news I'm going to start the cialis daily again and just put up with the side effects. I got a new pump today just been having a mess and texting Chris at the same time lol, bloody uncomfortable being an uncut guy. But will keep at it... Lol

X

User
Posted 08 Sep 2015 at 18:55

Well done Stuart and Trish. Great News

Good luck for your turn tomorrow Raiden

We can't control the winds - but we can adjust our sails
User
Posted 08 Sep 2015 at 19:02

Great news for you both. Onwards and upwards from here!

User
Posted 08 Sep 2015 at 19:38
Fab news Trish, we'll have that gin to celebrate soon :-)

Maureen x
"You're braver than you believe, stronger than you seem and smarter than you think." A A Milne
User
Posted 08 Sep 2015 at 22:54

Great news Trish, onwards and forwards x


 

User
Posted 09 Sep 2015 at 11:22
Trish
Brilliant news hooray!!

As for the exercises get in there and enjoy them, make them part of your journey together.

There are a few of you guys now going through the ED with pumps and meds. I hope you can all give each other advice, support and tips on what works best for you. I am sure others who have been through this will contribute too.

All the very best
Xx
Mo

Show Most Thanked Posts
User
Posted 06 Jul 2015 at 22:18

Gosh Trish missed this post with all the activity - as have others no doubt. Please offer Stu all the best. I was told I had El to help me through , and I'm hearing he has you just as much. Where would we be without you. Seriously. Honestly. Small steps forwards which is constant advice. I wouldn't want to be in his shoes again , but I'm recovering already and alive , and "monster" told me he loved me tonight for no reason ๐Ÿ˜€
Keep in touch
Chris and El

User
Posted 07 Jul 2015 at 07:10

all the best for Thursday Stuart will be thinking of you Andy

User
Posted 07 Jul 2015 at 07:23
Trish and Stuart
All the very best for Thursday.

Your post is lovely Trish you have captured the love you both share in such a meaningful way. I only saw it just now as despite the time you posted it new threads can take a while to appear. I think it is common for anyone facing such surgery to be very quiet about it all until it is really about to happen it is a kind of coping mechanism I guess.
At least now with your help and that of his medical team Stuart is ready.

It seens amazing how often someone living so close has PCa but I guess with the stats so high we should not be so surprised, at least you know you have someone very close at hand who will understand as well as all us lot of course!

Will be thinking of you both so be sure to let us know how Stuart is recovering and how you are doing too.

Best wishes
Xx
Mo
User
Posted 07 Jul 2015 at 07:55
Chris little monsters are great aren't they, I have two both well over 6ft!!

Andy and Mo thanks for your good wishes too. I had such a good sleep last night first in ages, now for the mission to get to get hospital by 7 am Thursday morning in central London as there is a tube strike planned! !!

Trish x
User
Posted 07 Jul 2015 at 08:58

So good you have been able to talk together. I hope the surgery goes well, keep us posted !


 


Regards, Fiona.

User
Posted 07 Jul 2015 at 10:11
Very best of luck to you both. I shall be thinking of you x
Louise
User
Posted 07 Jul 2015 at 10:50
Hope all goes well on Thursday and you don't have any travel problems

Arthur
User
Posted 08 Jul 2015 at 20:30

MASSIVE best wishes tomorrow Stuart and Trish and hope the journey ok !! You may be in bed already ;-)
I asked El if we could do something dirty on our final night , and she smiled lovingly and got the gardening gloves out .........
Very poor joke I know . Let us all know everything went well x
Chris and El x

User
Posted 08 Jul 2015 at 21:05
Thanks Chris and El made us laugh out loud will be turning in shortly๐Ÿ˜‚๐Ÿ˜‚ nerves will take hold in the morning I guess....

Trish and Stuart xx
User
Posted 08 Jul 2015 at 21:45

Hope all goes well tomorrow for Stuart Trish - challenges ahead but I was relieved to be getting rid of the pesky cancer and I am sure you guys will be to.


dl 

User
Posted 08 Jul 2015 at 22:10

Loads of love and good wishes but you are both going to be fine. From tomorrow you will be sailing into calm waters.


BFN


Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 08 Jul 2015 at 22:18
Hi Trish & Stuart,

Very best of luck for tomorrow. Hope everything goes well.

Steve x
User
Posted 08 Jul 2015 at 22:58
Thanks peeps, he's now snoring away beside me and me I will be lucky to get a few hours sleep! I will be asleep in the hospital chair in the morning when he goes down.


Will give update on how it all went.

Trish x
User
Posted 08 Jul 2015 at 23:53

Hi wish,

I hope all goes well for you both tomorrow. No reason why it should not. And please understand and accept that those of us who have been there, got the T Shirt etc are all living and moving forward with a new life, and making the best of what we have, and with "LIFE" that's blvydy marvellous.

dave

All we can do - is do all that we can.


So, do all you can to help yourself, then make the best of your time. :-)


I am the statistic.

User
Posted 08 Jul 2015 at 23:58

All I can say is I really hope the tube strike doesn't cause you too many problems x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 09 Jul 2015 at 00:59

Good luck for the op. Hope all goes well.

Paul

Stay Calm And Carry On.
User
Posted 09 Jul 2015 at 11:25

Fingers crossed for you both today that all goes well and Stuart is home safe and sound very soon.

Dick

User
Posted 09 Jul 2015 at 11:45

Hi Trish,


Hope everything goes as smoothly as possible today


My best wishes


Si


 


 

Don't deny the diagnosis; try to defy the verdict
User
Posted 09 Jul 2015 at 12:59

Hope all goes well.

 
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