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The final countdown!

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User

Posted 17 Jul 2015 at 18:28

Spoke too soon he just stood up and had a little dribble!

User

Posted 17 Jul 2015 at 18:45

Ah well, what's a little dribble between friends.
As long as Stuart is comfortable and not in pain, the dribblyness (is that a word) will sort itself out.
It's very early days yet.

We can't control the winds - but we can adjust our sails

User

Posted 17 Jul 2015 at 22:20

Once a week has past, you'll get a good idea of where you are. I still have to use a pad a day, (It could last 3!!!!). It's so frustrating that after big improvements over the first 8 months, since Christmas, there seems to have been little change.

Paul

Stay Calm And Carry On.

User

Posted 18 Jul 2015 at 21:01

Hi Trish

glad Stuart is free of the catheter I am sure he is too!

The dribbles and spurts are normal and tend to happen when there is any small exertion.. standing up, bending down. lifting, coughing, sneezing, hiccuping, reaching up etc. so just about any body movememnt or bodily function. It should all improve quite quicky initially. The important things now are to maintain super cleanliness to avoid any infection, exercises to strengthen muscle control and not trying to hold on to go for a wee, Gravity does play a part too so with less body movement, lying down etc. nights are often easier than days.

I wish Stuart a speedy recovery post op and for you both to have some patience with each other as this can be a frustrating time.

Best wishes

User

Posted 18 Jul 2015 at 21:54

Hi Mo,

Thanks, today has still been quite good with just the odd dribble. Last night he got up twice to go to the loo, today still suffering a little with the gas around his chest but we were re-assured by the urology nurse yesterday that that is to be expected. We know that he must still take it easy for a while, it was nice yesterday as we went out for a nice lunch in London after the Hospital it made Stuart feel a bit more human!

Trish xxx

User

Posted 28 Jul 2015 at 18:16

It's now almost 3 weeks post op so I thought I would give an update. Stuart's continence is really good and only using 1 pad a day, the only times is the odd dribble when he laughs or maybe if he gets up after sitting for a long time, he is completely dry at night although is getting up twice to go to the loo. As he is self employed contractor he went back to work yesterday and is doing half days this week, he has found this fine so far so onwards and upwards. He will see the surgeon on 3rd of September for his check up and results of his first PSA so hoping that is all OK, I am just wondering if the biopsy on the removed Prostate showed a higher Gleason score would they tell us before that appointment or wait until September? On the ED side I can only imagine that will take a lot longer but they did manage to spare some nerves so hopefully that will help.

Thanks,

Trish x

User

Posted 28 Jul 2015 at 18:21

Glad Stuart has made good progress.

If some of the nerves have been spared there will be improvement there at some stage so fingers crossed for both of you.

Best Wishes

Sandra

We can't control the winds - but we can adjust our sails

User

Posted 28 Jul 2015 at 18:32

I hope you are both OK, sorry but I have to ask what is Da Vinci as I have not heard this before, and can you please tell me how you are getting on after treatment? Is this on the NHS? thank you for sharing

User

Posted 28 Jul 2015 at 18:34

That's really good progress Stuart has made. Excellent news

Arthur

User

Posted 28 Jul 2015 at 18:46

Hi Wishes and welcome,

This is a type of surgery done by robot, normally recovery time is quicker than open surgery as there is 6 small incisions on the abdomen and there is also the opportunity to spare nerves so erectile function is more likely to some back. I see your husband is on active surveillance at the moment but maybe this is something you could discuss with the urologist next time you see him? It can be done on NHS but it does depend on where you live, Stuart had it done privately as we have BUPA through my work. Everybody's recovery time seems to be different though overall and I do suppose it depends also on age and fitness, Stuart is only 46 so he felt this was the best option for him and he would have been too nervous to do active surveillance .

Good luck with everything and do download the toolkit and have questions and a pen and paper on your next urologist appointment.

Any other questions please feel free to ask.

Trish. X

User

Posted 28 Jul 2015 at 18:47

Thanks Arthur and Sandra

User

Posted 28 Jul 2015 at 18:52

Originally Posted by: Online Community Member

Hi Trish,

Really pleased to read that Stuart is doing so well..... in response to your question re biopsy / histology report etc... my Gleason score was uprated in that report as was my T staging! ( check out my profile for details )

The results were not revealed to me until I was face to face with my consultant approx 8 weeks after my op.... I would imagine Stuart's consultant will want to wait until he / she has the full picture ( ie. PSA results etc ) before a full appraisal of the procedure can be given?

Sometimes Gleason scores and T staging can be uprated or downrated because the Path Lab has the full specimen to examine, and will be able to get a more accurate analysis rather than just a few cores analysed from a biopsy.....

Best wishes to you and Stuart

Luther

User

Posted 28 Jul 2015 at 19:03

HURRAHHH you're back . Great news all round for Stuart . My review is 12th which is 8 weeks . My PSA test is tomorrow ( 6weeks ) and my doctor has promised to reveal all -Oooooooo . Excited ( not ) ! Im so glad you've come back to the fold as all the shared info is great .

" Wishes " -- My operation was laproscopic too through 5 keyholes , but mine was done by hand rather than via the Da Vinci robot , so you can have that option aswell .
Chris x

User

Posted 28 Jul 2015 at 19:08

Hi Luther,

Thanks for that, it was the only thing that was concerning him and I suppose you are right he would want Stuart in the consultation and with his latest bloods etc.

Trish

User

Posted 28 Jul 2015 at 19:09

I know you missed me Chris😉 Good luck for the 12th!

User

Posted 28 Jul 2015 at 19:19

Originally Posted by: Online Community Member

Hi Luther,

Thanks for that, it was the only thing that was concerning him and I suppose you are right he would want Stuart in the consultation and with his latest bloods etc.

Trish

Trish,

Problem is you only get half the story if you get the info in bits and pieces?

Although it was an uncomfortable 8 weeks wait for me, my preference was to wait until all the 'scores on the doors' were back.

I'm pleased I did, as I had a full explanation of the results from the 'main man' and he was able to answer any questions that I had based on all the info available to him....
Luther

User

Posted 28 Jul 2015 at 19:46

Maybe I should ask doctor not to give me my PSA result and just wait till the 12th for it all ? I get your point but he's as keen as me to find out. It could be a Gud PSA but salvage needed etc. I may call tomorrow !

User

Posted 28 Jul 2015 at 20:03

Originally Posted by: Online Community Member

Chris, everyone is different!

My way is not necessarily your way..... If you will be happier to receive interim results then that's fine!

I know how my mind works, and for me to receive pieces of info prior to seeing my surgeon would have made me more nervous than ever!
Best wishes
Luther

User

Posted 28 Jul 2015 at 21:19

Originally Posted by: Online Community Member

Hi Luther,

Thanks for that, it was the only thing that was concerning him and I suppose you are right he would want Stuart in the consultation and with his latest bloods etc.

Trish

Trish,

Problem is you only get half the story if you get the info in bits and pieces?

Although it was an uncomfortable 8 weeks wait for me, my preference was to wait until all the 'scores on the doors' were back.

I'm pleased I did, as I had a full explanation of the results from the 'main man' and he was able to answer any questions that I had based on all the info available to him....

Luther

You're right best wait for all the scores on the door's.

User

Posted 28 Jul 2015 at 21:21

Didn't read properly Chris but I am sure PSA will be a big fat Zero!

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