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Hubbie's update

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User
Posted 10 Jul 2015 at 00:26

Hi folks, not been on here for ages, tried to a few times but system get freezing so I just gave up! Have tried Chrome tonight and so far so good!

Just thought I would pop by to say hello and give you an update on my husband Steve, I see a few known faces and many new ones so maybe it might help if you are going through same thing.

Steve's was diagnosed 3 yrs ago at 52. His PSA was 14 and gleason 3 +4. He had radical prostatectomy, followed by 7 weeks RT as there were not clear margins. He also had various urinary issues and a had further surgery to widen the neck of the utethra.

Following RT he was put on Bicaludamide and tamoxifen for 2 years, but thankfully due to PSA now less than 0.3 he has stopped these a few months early.

All in all he is doing really well. Has put on weight and grown man boobs, which are annoying him so trying to lose some weight now. He has to take cialis daily and viagra or sildenafil when needed for an erection, but sometimes is springs into action on its own, usually in the morning.. which is a nice surprise..lol

We are very fortunate to still manage a sex life, not what it was but so grateful to have anything from what we expected it to be. We expected the worst in every way. Only real issue is that he suffers from a lot of trapped wind and stomach issues probably side effects from the RT, He is experimenting with some foods and going dairy free. Not sure if this will help.

I know that everyones diagnosis and journey is different but I hope our story will help some of you.

 

Wishing you all well and good health

Lorraine 

User
Posted 10 Jul 2015 at 09:40

Hello Lorraine and welcome back!

Glad your Steve has made such progress, news like this is always a fillip to others in the same position, especially the comments regarding ED.
I know what you mean about being grateful for small mercies. The lack of knowledge about the final result when starting down the treatment path can be daunting and I know I always look for the worse case scenario since it can only go upward from that!

Dairy free may well help with trapped wind. I have IBS and I have had very little diary (compared to what it used to be that is) for the past 20 odd years. When I do fall off the dairy free wagon I tend to do it all at once so then I suffer.
Soya products don't affect me the same way, so when necessary I have soya milk, yoghurts etc.

I also gave up a lot of red meat at the same time as I'd read that dairy free and leaving out red meat was beneficial for arthritis which is my biggest problem at present and it was con-incidentally helpful to the IBS so reducing dairy may well help Steve from a wind point of view. There are also charcoal tabs from health shops which do help.

Best wishes and thanks for the update

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 10 Jul 2015 at 09:47

hi lorraine

so steve is what you would call an early riser

good to hear things are getting better

nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 10 Jul 2015 at 09:51
Hi Lorraine

it is lovely to see you posting again and with good news about Steve too.

Your story will almost certainly be of comfort to others going through a similar journey.

As I was posting I saw Nidge's post pop up (no pun intended) which made me smile ..we are a saucy bunch at times!!

Missed you posting so I am happy you have found that Chrome works for you. Good old Google

xx

Mo

User
Posted 10 Jul 2015 at 10:35

Hi Lorraine thanks for sharing your journey as many like me are just starting or post RP. Any news which is good news regarding ED is a real comfort indeed. Thanks
Chris

User
Posted 11 Jul 2015 at 17:21

Hi Songbird, good to hear things are looking up, especially in the trouser department,always good to know things do get better given time.I'm almost 2years post op, not quite there yet but improvements have been in evidence. Diesel x

User
Posted 12 Jul 2015 at 14:09

Songbird,

Good to hear from you and such a positive update. Long may it continue for you and Steve !

 

Fiona.

User
Posted 12 Jul 2015 at 16:07
Originally Posted by: Online Community Member
Songbird,

Good to hear from you and such a positive update. Long may it continue for you and Steve !

Fiona.

Hi zarissa long time no see, hope you and your daughter are well, Best wishes Diesel.x

User
Posted 12 Jul 2015 at 22:50
So pleased to read this update, it just goes to show that there can still be a good life to be had after both RP and RT Lorraine. Long may it continue for you both.

Lots of love

Allison

User
Posted 12 Jul 2015 at 23:12

Lovely to read your post Songbird , long time no see!!. I am so glad that you have managed to get back on the forum because messages like yours are so helpful to other newbies going through a similar path. Light at the end of the tunnel is what they need to see. Thankyou.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 14 Jul 2015 at 05:34

nar then lass, dont you worry about us others, it makes me glad to see that you and others are getting the best help possable, if folks dont wish to read how others are coping and recovering then they shouldnt be on here reading about it, keep them posts a coming.

nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 14 Jul 2015 at 08:41

I agree with nidge.

Every positive story, no matter how small the progress, has got to be encouraging for others, especially anything relating to the ED department,so keep us up to date please.

We can't control the winds - but we can adjust our sails
Show Most Thanked Posts
User
Posted 10 Jul 2015 at 09:40

Hello Lorraine and welcome back!

Glad your Steve has made such progress, news like this is always a fillip to others in the same position, especially the comments regarding ED.
I know what you mean about being grateful for small mercies. The lack of knowledge about the final result when starting down the treatment path can be daunting and I know I always look for the worse case scenario since it can only go upward from that!

Dairy free may well help with trapped wind. I have IBS and I have had very little diary (compared to what it used to be that is) for the past 20 odd years. When I do fall off the dairy free wagon I tend to do it all at once so then I suffer.
Soya products don't affect me the same way, so when necessary I have soya milk, yoghurts etc.

I also gave up a lot of red meat at the same time as I'd read that dairy free and leaving out red meat was beneficial for arthritis which is my biggest problem at present and it was con-incidentally helpful to the IBS so reducing dairy may well help Steve from a wind point of view. There are also charcoal tabs from health shops which do help.

Best wishes and thanks for the update

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 10 Jul 2015 at 09:47

hi lorraine

so steve is what you would call an early riser

good to hear things are getting better

nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 10 Jul 2015 at 09:51
Hi Lorraine

it is lovely to see you posting again and with good news about Steve too.

Your story will almost certainly be of comfort to others going through a similar journey.

As I was posting I saw Nidge's post pop up (no pun intended) which made me smile ..we are a saucy bunch at times!!

Missed you posting so I am happy you have found that Chrome works for you. Good old Google

xx

Mo

User
Posted 10 Jul 2015 at 10:35

Hi Lorraine thanks for sharing your journey as many like me are just starting or post RP. Any news which is good news regarding ED is a real comfort indeed. Thanks
Chris

User
Posted 11 Jul 2015 at 17:21

Hi Songbird, good to hear things are looking up, especially in the trouser department,always good to know things do get better given time.I'm almost 2years post op, not quite there yet but improvements have been in evidence. Diesel x

User
Posted 12 Jul 2015 at 14:09

Songbird,

Good to hear from you and such a positive update. Long may it continue for you and Steve !

 

Fiona.

User
Posted 12 Jul 2015 at 16:07
Originally Posted by: Online Community Member
Songbird,

Good to hear from you and such a positive update. Long may it continue for you and Steve !

Fiona.

Hi zarissa long time no see, hope you and your daughter are well, Best wishes Diesel.x

User
Posted 12 Jul 2015 at 22:50
So pleased to read this update, it just goes to show that there can still be a good life to be had after both RP and RT Lorraine. Long may it continue for you both.

Lots of love

Allison

User
Posted 12 Jul 2015 at 23:12

Lovely to read your post Songbird , long time no see!!. I am so glad that you have managed to get back on the forum because messages like yours are so helpful to other newbies going through a similar path. Light at the end of the tunnel is what they need to see. Thankyou.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 13 Jul 2015 at 23:38

thank you everyone for your kind words. I am conscious that people are in so many different phases of their horrible journey with PCA and I was wary of posting, but I know it helped us to see some positive outcomes and we received so much advice, help and support from everyone on here whilst going through the worst time.

I just hope my words bring some comfort.

 

Good to see all the familiar faceshttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

 

Lorraine

User
Posted 14 Jul 2015 at 05:34

nar then lass, dont you worry about us others, it makes me glad to see that you and others are getting the best help possable, if folks dont wish to read how others are coping and recovering then they shouldnt be on here reading about it, keep them posts a coming.

nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 14 Jul 2015 at 08:41

I agree with nidge.

Every positive story, no matter how small the progress, has got to be encouraging for others, especially anything relating to the ED department,so keep us up to date please.

We can't control the winds - but we can adjust our sails
 
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