Enzalutamide causing pain??

They are arranging to get quite a bit of help at home, they will have carers go in at least 4 times a day to start with and go from there. theu have got him a Zimmer frame to help him but he's been in bed for nearly 4 weeks now. He doesn't have a lot of control with his bowel either. Not sure if that's because the cancer of his prostate is pressing on his Bowel or the compression of his spine or the medication. I don't know.

I think the best place for him is home now and take each day at a time.

It is true about the enzalutamide and we do keep trying to focus on that. He's been on it for about 5 weeks in total now as he had a weeks break from it when he first went in to hospital. So maybe it will soon kick in. Fingers crossed anyway xx

I know I covered some of this in my PM, I will try and find the thread that talked about a sudden and dramatic drop in PSA . It was not that long ago so I should be able to find it.

I will post again when I have had a chance to look for it.

best wsihes as always

xx

Mo

The theory around sudden drop in PSA is about men who are not on treatment so probably irrelevant here. The research suggests that as the cancer cells get more aggressive, they stop producing PSA because they need all their energy to multiply and spread. Let's hope that in Lisa's case, it is simply that the Enzo is doing its job.

Lisa, my reading of your latest information would be that it is getting to the time when you need to start thinking about the end. Say the things that are in your heart, tell him how much you love him, laugh about stories from years ago, don't leave yourself with anything to regret in the years to come. Perhaps your dad is not quite at the final stage of his life, in which case you will be able to tell him these things many times. But sometimes, men slip away a bit quicker than even their medical team expected - perhaps the man just gets tired of fighting and as he sleeps more and more, the opportunities to love him and talk to him disappear and before you know it, it's too late.

He could just seem so ill because of the chemo - it is a pretty aggressive treatment.

That is such good news. As I might be on enzo next I hope it can do the same for me. Long may it last!

Arthur

I haven't been on here for such a long time.

Unfortunately things have got really bad for my dad.

After spending the summer in hospital, he had a really good few months on enzalutamide. He has detoriated quite badly over the last couple of months. At his last review his ids level had gone from 85 to 135 in 4 weeks. He had a couple of falls the week before Christmas and then was admitted in to hospital last week. He had a scan last week which showed the cancer had spread all the way up his spine. Yesterday we were called to the hospital and was told to get there as soon as we could. I was not prepared for how my dad was. He had had two brain seizures and was in a coma. His consultant came to see us. He told us he had seen the scan he had last week and his words were my dad was riddled with cancer and a very aggressive one at that. It had also spread in to his liver. He also told us my dad would not wake up from the coma and wouldn't make the end of the week. To our very surprise my dad came out of the coma wondering what all the fuss was about and why everybody was with him. He is going for a brain scan tomorrow to see what caused the seizures. Our guesses are one of two things, it is either compression on the brain as the cancer is in his skull and all the way down his spine or the cancer has spread to his brain. I have read that it is very rare for prostrate cancer to spread to the brain.

I wondered if anybody on here has come across this before?? this is completely heartbreaking and such a roller coaster of a ride xx