Experiences with abieratrone ?

Linda

Hello Sue
I've been on HT plus Abbi and enzalutamide for 7 months.
I'm not so sure which drug has what effect but I did have a period where my ALT reading ( to do with state of my liver) went skywards and by reducing the Abbie dosage from 1000mg to 750mg (4 tabs to 3) the reading came back to normal. The onco had seen this before.
I am getting a lot of hot flushes (hourly) and some discomfort in the tum but I'm not sure if this is the Abbie or the enzo.
Generally I don't think I get anything unbearable from the Abbi.
My pea is down from 235 in January to a current .04 so something works.
Am due my next tests first week September.

Hope this helps

Paul

Hi at the moment we are on cabazitaxel but abieratrone may be next I notice some men have these the other way round perhaps it's just different hospitals have different ways?
The chemo is working but as I have mentioned previously blood counts are low it's the second time this has happened the blood was not quite as low as the first drop but the chemo is working so I'm not sure how to pick my oh up this time as the low bloods are making him struggle unless they say because the chemo is working I think I read they could give him medication to make more blood cells?
Want to move forward from this blip as he wasn't doing to bad!
Have to get it off my chest sometimes !😃 Sue .

Hi linda
Has Tim had abieratrone ?
He sounds like my kinda guy with his hols we have always enjoyed great holidays and if that goes?
Even thou we had rough time in Greece in June im hopeing we can go sep/oct if they can get bloods right I must say a better recovery after this second transfusion so I'm hopeful
This disease should be sorted in this day and age just lost two people in the matter of days one was a 51 year old women should not be happening !
Keep looking at the hols x

I've just finished a 2 year stint on Abiraterone.

No real side effects to talk of, though I am on HT in parallel and the typical HT symptoms I've attributed to the HT regime.

 I did have some sleep issues until I was directed to take the Abiraterone and associated prednisolone during the morning as steroids can have an effect on sleep patterns.

Apart from that - plain sailing.

Hope that helps

Kevin

We were told that the change of drugs sort of tricks the cancer, so I don't think they necessarily go for the strongest. Seems some oncologists just give them in different orders. My oh is on hormone decapeptyl and has been from diagnosis. When the psa began to rise after six months he went onto docetaxel. He had eight cycles psa on the up again so then onto enzalutamide (magic beans) these worked for eight months, we were a little hacked off because they were so easy to take and he had no side effects at all. Now he is on Cabazataxel , seven cycles so far mild side effects I.e. Taste change and tiredness. However his blood count dropped so had two units intravenously. We have got the ok to miss next chemo so we can go to Portugal so fingers crossed things stay ok. We have also been told that they sometimes give the same treatment again after a while which all buys us time for new ones to become available. Love to all keep soldiering on its tough but we can do it xxxx