Hi Pablito, my questions to your OP are in bold type mixed in below.
Originally Posted by: Online Community MemberGood Morning,
Here is the gig, I feel very very lucky, that my DV RP looks like it's worked and I was dry within 24hrs of Catheter removal. That recovery of control is very quick, you are fortunate. Which possibly rather selfishly leaves only ED to currently be addressed.
My RP left me with 50% of my nerves spared on one side. One month post op I was able to achieve an unaided semi-erection which was encouraging, albeit it not usable for penetrative sex. All good so far.
Three months post op I was prescribed and pump and 20mg of Cialis per week. The Cialis was to be halved, with one half to be taken every 3-4 days. I religiously carried out this treatment for 2 months. Result - Absolutely no improvement with my erection and the Cialis side effects where not good. What side effects did you have are you having? Over what period of time? What reason did your GP give for prescribing the Cialis? Or, why do you think you are taking it?
A client of mine who also has PCa, recently introduced me to his wife who happens to be a Senior Urology Nurse. She suggested, I switch to 5mg a day, I am on 5mg a day and have been since May 13. I was told and my research suggested that this was to aid blood flow to and around the wound areas. which my very budget conscious GP reluctantly prescribed for one month only.
I am due to see my GP again next week, and my problem is that 5mg per day has produced even worse side effects What exactly are the side effects? for me in that I cant even function properly and go about my daily routine. I now stopped taking the Cialis, but need some sort of a plan ahead of my meeting next week. I also know that I have regressed on the ED front. It is still very early days yet, and as you have had some movement fear the op it is likely that there can be and will be more movements and with treatment they should improve. It will take time and patience and effort.
Any thoughts or advice would be more than welcome!
Thanks in advance,
Pablo
Regarding getting prescriptive support in the form of Cialis or Viagra, have you written a letter to your GP outlining the business case for why you should be receiving the medication now while you are in the early stages of recovery and when it will be most likely to benefit you and help you recover function?
I did research and then wrote to my GP so that he had a good reason for giving me the medication and a pump, if he was queried by his colleagues or budget manager. He read the letter, did some Googling of his own, and prescribed me a pump, 5mg Cialis daily, and 8 x 50mg Sildenafil/Viagra every 28 days.
The before bed time Cialis gave me side effects early on, lower and upper leg ache, dry tongue, head and neck ache. I took paracetamol, thinking that the benefits I had read about and been told about were worth working through the pain and inconvenience if I could. Painkillers and sleep enabled me to persevere. I don't have any side effects any more, maybe stopped after a month or so of starting taking the meds? The Sildenafil also gives me a headache, one evening early on I took 3 as one did not appear to be working, PLEASE DON'T TRY THIS, apart from a headache nothing else happened. The side effects are lesser these days, so it can bow with working through, but we are all different so only by trial and error will you find out.
You are still relatively early post op, it is thought or estimated that recovery can continue for 2 years, I am still improving 2 years 5 months post op. There is hope for you, hopefully?
atb
dave