Me and Mr Cialis

User

Posted 03 Oct 2015 at 04:26

Originally Posted by: Online Community Member

Bazza, the mental image of you sporting a Bondage Boutique cock ring with ball divider* is more than a woman can bear!

Where did you get that Lyn?

The link goes to "Dr Joel Kaplan Adjustable Cock Ring". Which is apparently "Soft, stretchy and fully adjustable, this loop enhances and maintains an erection for optimum sexual prowess. With a slide-to-fit toggle, this easy-to-use cock ring applies just the right amount of pressure to boost your erection size and strength." How much time do you spend browsing these sites?

Anyway, £8.99 plus postage for what a shoelace will do is a bit steep.

All joking apart, those who are unable to obtain a pump on their NHS could try a hoover. I kid you not. A friend of a friend told me that they had been told by a friend of a friend of their's that they had seen this done. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

* Ordered 2.

dave

edit to add, did you see this Lyn? "Screaming O Ofinity Stretchy Double Cock Ring". I don't know anyone with 2 cocks, blimey getting one working again after surgery is hard enough. Well eventually! Hopefully.

Edited by member 03 Oct 2015 at 04:32 | Reason: Not specified

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User

Posted 03 Oct 2015 at 12:56

I recently saw a report of the reasons people went to our local A&E department - I think it was part of a campaign to reduce accidents in the home. I can't remember how many people had ended up in casualty as a result of 'inappropriate use of vacuum cleaners' but I do remember that there were women as well as men!

I think a proper pump is probably much safer

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 03 Oct 2015 at 14:46

OMG I will never look at my "Henry" in the same light again. !!

User

Posted 03 Oct 2015 at 17:36

Lyn - Hahahahahahahahaha!

User

Posted 03 Oct 2015 at 19:39

"Apparently", so it is suggested, it works quite well!

atb

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User

Posted 05 Oct 2015 at 10:22

My meeting with a different Quack at my Doctor's practice, went really well last week

He wrote a prescription for 56 days / 5mg per of Cialis (only given 28 days last time). He did discuss the cost versus Viagra, but said because I've had a prostatectomy, I was perfectly entitled to it and that he would want it (v- Viagra) if he was in my shoes. All fine and dandy!

However, a visit to the Pharmacist changed that! He only had 28 days supply, which he gave me and said he'd give me the balance the next day!

Next day,Pharmacist - "sorry I haven't got your Cialis I wont get it until next month"
Me "Why? You said you'd have it for me!"
Pharma - "We get stock allowances each month which we have to justify and I've used all mine up. It's meant to prevent us from selling it abroad at a huge profit. Could you come back next week I should have a packet for you then!

I've never encountered anything like this before! Is this normal? Has anyone else experienced these issues with their Pharmacist??

User

Posted 05 Oct 2015 at 18:52

Sort of.

I find it hard to believe that John is the only patient in the practice that needs Viagra to overcome PCA treatment yet it seems that the chemist next door to the GP's rarely has enough to complete the prescription if we take it straight in there.

We are often asked to return next day.

Actually, I suppose now I've seen your post it makes a sort of sense. Other men are probably given Viagra for ED other than as a result of PC and if, as you say they have to justify their output, we've probably been unlucky enough to go in once his stock is cleared

John hates going in there anyway after our first encounter with the pharmacist who came out into the shop to discuss the tablets with us while there were other people around.

Edited by member 05 Oct 2015 at 18:54 | Reason: Not specified

We can't control the winds - but we can adjust our sails

User

Posted 06 Oct 2015 at 11:52

Thanks Sandra,

I live in fairly Central London and have a choice of 6-7 Pharmacists within a 10 min walk of my house. I used to use the Pharmacist next door the the surgery, but they kept losing my prescription!

I do like my current Pharmacist and have a good relationship with him, so I'm reluctant to change! It's just a bit boring to only be able to have my prescription fulfilled at the third time of asking!

User

Posted 06 Oct 2015 at 12:38

Once we all change over to the new prescription system this should no longer be a problem as the pharmacies will see immediately what stock they need to order

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 06 Oct 2015 at 13:28

Lyn i know my earlier post was taken with a pinch of salt in some quarters but 3 months after robotic surgery i am still getting and maintaining erections without any difficulty, i am lucky i know that and long may it continue.

I have stepped back from posting as i would hate anyone to think that i was or am gloating, this is so far from the truth, like i say for whatever reason i am back to full sexual intercourse.

I am still taking 5mg of Cialis on a daily basis and have no side effects from them and i think we are all different in how the tablets react to the individual.

My Gp has been great and very supportive and haven't had to fight for any prescriptions, again postcode lottery.

I hope my post has not offended anyone

Gary

User

Posted 06 Oct 2015 at 14:01

Top news Gary!

Please carry on posting, we are seemingly a mixed bag of experiences and outlooks on here! It's good to have postings that are good as well as the bad and ugly. I'm really genuinely pleased for you!

Curing the cancer was / is my priority, with my treatment finished and seemingly a success, I only have ED to focus on! Having read many posts on the subject I'm encouraged that I will recover fully! So thank you for sharing!

Why are you still taking the Cialis?

User

Posted 06 Oct 2015 at 15:48

Taking the Cialis may now be a physiological thing, because something is working and working well i have decided to continue with the 5mg for another month just in case.

I did have minor side effects when i started taking them but they have now gone so i decided to continue until my prescription runs out then i will be on my own so to speak

User

Posted 06 Oct 2015 at 16:12

Originally Posted by: Online Community Member

I have stepped back from posting as i would hate anyone to think that i was or am gloating, this is so far from the truth, like i say for whatever reason i am back to full sexual intercourse.

I am still taking 5mg of Cialis on a daily basis and have no side effects from them and i think we are all different in how the tablets react to the individual.

My Gp has been great and very supportive and haven't had to fight for any prescriptions, again postcode lottery.

I hope my post has not offended anyone

Gary

Yes, you were one of the 2 people I referred to, the other man later saying that he was having some difficulty. I think it is great that you have recovered so well and I don't think you should avoid posting at all. My concern is to keep reminding the other guys that you are in a tiny minority and that they shouldn't see themselves as 'failing' because your recovery has been so remarkable. Nor should men start thinking 'everyone else can' when they really mean you. Research like EPIC indicate that less than 10% of post-RP men can get an erection unaided at the 12 month mark although rather more (80%) can get an erection with chemical or mechanical assistance. Unsurprisingly, the urologists reported rather better results than the patients did but John's uro's view was that the men lie to their uro and tell the truth on the questionnaire (or the wives / partners fill in the questionnaire ... I always complete John's for him :-0 )

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 04 Feb 2016 at 10:50

Update.

After my original post in September, I restarted my 5mg of daily Cialis.

The side effects of aching limbs at night being compensated by waking up most mornings with at least a semi-erection and sometimes a usable one.

Over the past month, I have played around with my dose with some surprising and almost illogical results.

If I don't take Cialis for a few days my penis shrinks and I'm unable to get any life into it at all!

Taking 10-15mg taken gives absolutely no sign of an erection whatsoever (I haven't even bothered with 20mg) in addition, something that may interest Allison from one of her posts, despite being fully continent, I do get the odd leak when I take 10mg plus, which does tie in with Eli Lilly's literature about relaxing the bladder.

So back to 5mg daily which gives me a at least a semi without any stimulation, aching / painful limbs and muscles especially in my legs / ankles and the occasional reflux.

I have my first appointment with an ED Consultant later this month, I'll let you know the outcome. In the meantime if anyone has any advice to give me, gratefully received.

All in all, at only 9 mths post op, I do consider myself at the lucky end of the spectrum, but still a long way to go!

User

Posted 04 Feb 2016 at 11:07

Hi Pablo
I'm coming up to 8 months. You know I'm on zero meds at all - just the pump and injections. I have not had a single natural stir yet even when being stimulated . I recently tried 50mg Spedra for 8 days with no results . However what you are saying is kind of what my hospital is getting at maybe . If you don't take the daily Cialis then no erections. I still use the pump every day and get a useable erection but with no side effects . I hate the flushed face stuffy nose and indigestion . I'll stick to the pump thanks and try to get the Caverject dose just right for an occasional nice night.
I read a post from an American woman yesterday whose husband is exactly 2 years post - op . And guess what . He woke her up the other night fully functioning and a good time was had . So there IS hope guys
Best wishes mate
Chris

User

Posted 04 Feb 2016 at 12:48

Pablito has anything been given to you for the occasional reflux,such as Omeprazole for instance?

We can't control the winds - but we can adjust our sails

User

Posted 04 Feb 2016 at 13:02

Originally Posted by: Online Community Member

Pablito has anything been given to you for the occasional reflux,such as Omeprazole for instance?

Hi Sandra, the short answer is no, it is only occasional and I don't like taking drugs unless absolutely necessary.

At the moment I take 2.5mg Ramipril which is a low dose for Hypertentsion and of course 5mg Cialis.

User

Posted 28 Mar 2017 at 12:31

I note that Tadalafil (Cialis) is on the NHS England list of 10 drugs with "Low Clinical Value" and is to be reviewed :-((

See attached link for the full story

http://www.bbc.co.uk/news/health-39413915

User

Posted 28 Mar 2017 at 13:05

God I hope they don't stop it !! Took me a year to get it. My Uro still insisted that research didn't back up its use or efficacy. He implied I was getting a psychological benefit only. El and I nearly went mad at him but just took the prescription.

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