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User

Posted 29 Sep 2015 at 17:38

New here

I am 55 and have a family history of prostate trouble.Dad had prostate cancer at 78 had operation to scrape prostate still with us at 85

Grandad had prostate trouble in his fifties but don't know what

I had a PSA test which came out at 9.3

Referred to hospital and consultant said with my family history would have to go for an MRI and biopsy

Had second PSA test came out at 10.8

MRI showed very enlarged prostate (for my age) and 2 abnormal areas.

Now waiting for Transperineal Prostate Biopsy

Consultant says it 80% chance it cancer

Now worried by it all.

Garry

User

Posted 29 Sep 2015 at 18:05

Hello Garry and welcome to the club no one wants to be in

For starters, slow down....wait until you get the formal diagnosis, stay away from Google, and down load the toolkit (available from publications on this site) as its a valuable source of information. Always take someone with you as there's so much going on and you'll miss something (here in Edinburgh they record the sessions which is brilliant...

There's lots of people on here who have been living with PCa for years and they'll be along soon to "hold your hand" as they did for me when I got the dreaded news....these people are fantastic

Duncan

Edited by member 29 Sep 2015 at 18:05 | Reason: Not specified

User

Posted 29 Sep 2015 at 18:08

Hi Garry

Welcome to this site, you'll find a wealth of support and info. here. There's a lot of people (both men and their partners) who will be able to offer a lot of wise advice.

You can order the toolkit from the publications section on this website. It might help when you go for your consultations to take notes and someone with you as they might pick up things you don't hear clearly.

Have a look a peoples' profiles by clicking on their avatar, there are some really encouraging stories.

Keep posting your progress, all the best

Arthur

User

Posted 29 Sep 2015 at 18:14

Hi Garry
I just wrote you an enormous post with a welcome , and it's disappeared into cyber-space. Yes you must be very scared but as above , wait for the biopsy result. I had that biopsy at Xmas and it was fine with no pain. The only side-effect I had was blood in semen for 6 wks. If it is cancer than you will have been caught early enough to raise your chances of a cure. I also had no symptoms. Best wishes

Chris

Edited by member 29 Sep 2015 at 18:19 | Reason: Not specified

User

Posted 29 Sep 2015 at 18:37

Hello Garry and welcome from me too, the wife of a prostate sufferer.

The Toolkit is a set of pamphlets/booklets/leaflets that gives information on Prostate cancer, it's symptoms, treatments and their side effects.
It's a great tool for helping you get your head round the fact that you MAY have cancer. (As has been said - wait until you are told it's definite before you panic).
It is also useful in helping you with questions you may want to ask when you see your consultant.

It can be obtained by going to Publications, on the main page.

They can be downloaded or I think they still do hard copies.

There are also specialist nurses on this site that can answer questions and queries.

Please don't despair at this stage. It is very early days for you and even if you are diagnosed with cancer all is definitely not lost. There are many treatments and trials available to patients now.

Once you've had that biopsy then it can be confirmed just where you are.

As Chris says, for a lot of men, including mine, it's relatively painless. It does mean that afterwards you will pass blood in your urine and semen for a while.
If you have a partner, you may both prefer to use a condom a few times until the staining disappears. It makes a a hell of a mess of the bedding otherwise so be warned !!

Research is all well and good but some of it is anecdotal and can scare you half to death, quite un-necessarily so avoid it for now, unless you use sites like this or Cancer Research.
All the best and keep posting. As soon as you have the information just come back and let us know.

Best Wishes
Sandra

We can't control the winds - but we can adjust our sails

User

Posted 29 Sep 2015 at 20:33

Hello Garry

You've definitely come to the right place here and have already received lots of valuable advice and support. We've all felt much the same as you, especially when the whole process kicks off.

I too had the biopsy that you are waiting for, about a year ago now, and there's nothing to worry about. What Chris and Johsan have described pretty well sums it up. Their advice to contact the Specialist Nurses on this site is well worth it. I would certainly rather have this biopsy than the TRUS plus the fact more samples are taken and the medics have a much better idea of what's going on.

Along with all the others I wish you all the very best Garry and whatever questions you have just ask away and everyone here will help in anyway they can.

Cobbles

User

Posted 29 Sep 2015 at 23:20

Hi Garry

The Gleason score is used to show how much the normal cells have mutated, this used to be scored from 1-5 but 1and 2 are no longer used and there is discussion as to whether 3 is still relevant but that is for the future, so at the moment 3,4 and 5 are used with 3 being the least mutated and therefore less aggressive and 5 being the most mutated and the most aggressive. When a biopsy is performed the cells are looked at through a microscope and the cells are graded, so if there are a mixture of mutations in the sample, for example 3 and 4 then the Gleason would be 3+4 =7. Now for the difficult bit, the Gleason scores can be either 3+4 =7 or 4+3=7 as the cells that are seen to be in the majority are placed 1st Ie. if there are more 3 than 4 then it would read 3+4 but if the majority are classed 4 then the Gleason would show 4+3 which is more aggressive as the majority of the cells are of a higher grade.

Example:

3+3=6 least agressive

3+4=7

4+3=7

4+4=8

3+5=8

5+3=8

4+5=9

5+4=9

5+5=10 most agressive

Hope I haven't confused you lol

Roy

Edited by member 29 Sep 2015 at 23:43 | Reason: Not specified

User

Posted 29 Sep 2015 at 23:32

Hi Garry

This is easy to say but not so to put into practice ....... but don't panic! The word cancer puts us all into fear when we first hear about it but the condition comes in many different forms/types.

Haven't had the time to read all the replies you have had so far but as a rule the advice given by others on this site is very good and vThe Tool Kit is an excellent first read.

You have been advised to have the 'best' biopsy and they will work out your Gleason Score from it and it's when you have all the evidence regarding your specific prognosis e.g. PSA/Gleason/Staging etc that you and your consultant(s) will be able to determine the best course of action. The tendency is to rush into a treatment decision but in by far the majority of situations this is not necessary and this majority of cases folk would have months and months to consider the options and make a choice on the way forward with treatment.

One important factor is whether the cancer (if it is cancer) is confined to the prostate or has spread beyond it. You say your prostate is large for your age but have they detected any signs that that there are cancerous cells close to the 'walls' of the prostate? Presumably you have had a finger up the backside which usually picks up cancer at or close to the 'walls' of the prostate?

My PSA was over 16 when first diagnosed and after a biopsy my Gleason was estimated at 3+4 = 7. MRI etc determined no sign of spread from the gland and so I waited over 6 months for treatment and spent a lot of time researching the subject, speaking to others and determining what I should expect from the NHS. I recommend reading the NICE regs re. prostate cancer to determine what you should expect from the NHS. Make sure you see an oncologist ...... not just a surgeon before making your decision on treatment.

Need to 'sign off' now ...... but once again I say don't panic. One thing the NHS is good at when/if first diagnosed with Cancer is determining it's stage etc. Gather all the facts, then do your research ...... and then you can make an informed decision.

Originally Posted by: Online Community Member

Hi
New here
I am 55 and have a family history of prostate trouble.Dad had prostate cancer at 78 had operation to scrape prostate still with us at 85
Grandad had prostate trouble in his fifties but don't know what

I had a PSA test which came out at 9.3
Referred to hospital and consultant said with my family history would have to go for an MRI and biopsy
Had second PSA test came out at 10.8

MRI showed very enlarged prostate (for my age) and 2 abnormal areas.
Now waiting for Transperineal Prostate Biopsy

Consultant says it 80% chance it cancer

Now worried by it all.

Garry

User

Posted 29 Sep 2015 at 23:42

Garry

You do need to wait until all the data is in but based on what you've said so far I would be comfortable with you being in the "curable" camp (which I, sadly am not). My main advice is to not panic, wait for the biopsy results and then consider your options carefully. Depending on the tumour staging (T1,2,3 or 4) and the Gleason score, you will find yourself going down several different paths. My brother was diagnosed in March 2008 with a PSA of 7, T1 and Gleason 6. To this day he has no radical treatment at all other than 6 monthly check ups. I, on the other hand, have been through the mill but both of us are still here! http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif This is one of the most curable cancers if caught time and the majority of men diagnosed survive it. I wish you well and know that the good folk on this forum will offer plenty of sound advice as you start this unwelcome journey.

Nil desperandum

Allister

User

Posted 30 Sep 2015 at 00:43

Hi Garry,

Both my Father and Maternal Grandfather had prostate cancer so I knew I was at a higher risk. I was diagnosed last year aged 58 and was treated in March this year. Please check out my profile as we have a similar presentation.

As others have said have a look at the prostate cancer pack and don't hesitate to contact the nurses either on line or phone. At this stage you really do need to wait until all the diagnostics are done then you will be able to decide the treatment path that suits you. You will get advice but ultimately that choice will be yours.

Wishing you well. Keep us all informed.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE

User

Posted 30 Sep 2015 at 09:04

Devon lad
Yes had finger test twice
First by doctor who said she couldn't feel anything and probably nothing to worry about
Second by consultant who had real good feel around-couldnt feel anything-probably nothing to worry about.Also prostae was swollen but that normal at my age.Did say could be about 20% chance of cancer with my family history

So with that was not worried and really did expect to come back clear from mri.In their defence.They did say could not feel all prostate and the MRI shows abnormal cells at top in awkward place

Edited by member 30 Sep 2015 at 09:12 | Reason: Not specified

User

Posted 30 Sep 2015 at 15:01

Hi Gary, it sounds like your case is quite similar to mine, but I am a few months ahead of you, so maybe my recent experience might help.

I'm 55, and pretty fit. I had a PSA of 8 in July. I had the biopsy and scans in August and got the diagnosis in early September. Unfortunately it showed a Gleason score of 9 (very aggressive) and was called a T4, which means it has extended beyond the prostate, in my case up towards the bladder.

Like you I was plunged into the worst worry and extreme depression, which in my case lasted about two weeks. But coming onto this site helped a lot, plus I got more information from the doctors, and it all gave me some hope. I now feel much more positive and ready to fight it.

The good-ish news: I have recently had a bone and chest scan and I'm pleased to say they were negative, meaning the cancer has not spread into the bones or chest. I also had a stent fitted last Friday to help the urine flow, and will have another fitted on the other side this week. I really feel they are looking after me, which is great.

I agree with what others have said - don't let yourself get down. Wait for more information and see how it goes. Keep in touch with people here and we can help!

Best of luck

sjb

Edited by member 30 Sep 2015 at 15:13 | Reason: Not specified

User

Posted 01 Oct 2015 at 12:15

Hi Paul. I'll tell you what I can, though some of your questions I will leave for others...

-Yes, I felt the same as you, but I feel much better now because I have got lots more information about what is happening. After three weeks of depression, I am also more resigned to it, plus I have got some glimmers of hope, like I am not going to drop dead this year..... I'm kind of calm now. But I still sit and wallow a lot!

-Work: I have only told my boss, no-one else. Luckily I'm not incontinent, so no-one can notice anything.

-If I were you I would ask a doctor about the incontinence and pain in the testes. Maybe they can do something about it?

-Erection - I have been put on a hormone treatment where I take a hormone pill every day for 28 days and on the 14th day (today!) I get a hormone injection. Since I started, no erection or any interest in that direction!

-anti-histamenes - No idea - maybe someone else can help?

If you can, maybe get more information from your doctors. It took me a while to get to see them, but I have now spoken to some good specialists who were very helpful. In my case, my contact cancer nurse was not so good or reassuring - I guess he just didn't know, so he couldn't answer all my questions, and that worried me. But now I feel at least I know where I am going a bit.

Good luck with it. Happy to answer anything else if I can.

sjb

User

Posted 02 Oct 2015 at 08:54

Garry,

Re. your testicular ache.

For a couple of years prior to my diagnosis I did have a dull ache and a heavy feeling in my testes. I spoke to my G.P.who examined me and determined that it was epididymitis. After my op this discomfort has gone. I can't find any clinical data that indicates the link but it doez seem too much of a coincidence that the strange feeling in the testicles has gone now my prostate cancer has been treated.

Hope thngs are ok for you.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE

User

Posted 05 Oct 2015 at 13:10

You are not a fraud Garry. Everyone is here to help. I've had enormous help from the forum members and was in a state just as you are. And rightly so. You are very understandably scared friend. I can only echo what others have said. Try to back off the pedal a bit until you have the hard FACTS put in front of you. Try to save your energy for when that happens so you can steer a way forward
Chris

User

Posted 05 Oct 2015 at 14:03

Garry you're not a fraud. You're concerned and rightly so, we were all in your position in one way or another at one time. The specialists will have the right answers for you and the treatment (if required) suitable for your situation. Not many of us can claim that this is our specialist subject and can only speak out of our own experiences. We're all here to support and encourage each other stay strong, stick with us and we'll help in the best way we can.

Arthur

User

Posted 05 Oct 2015 at 15:39

Garry,

Please don't think you are a fraud. This is one of the most supportive sites I know. Mainly because most people on here are or have been where you are now. I remember being at the same place you are last year when I was either waiting for appointments or for results. This place of limbo was the most difficult. Once all the results were in and the full clinical picture was available to me and the clinical team it just came down to me making a decision. I know some people struggle with this but once the full clinical picture was presented and I was able to discuss treatment options with the surgeon and the oncologist I made my mind up surprisingly easily. Having said that I remained anxious until the treatment was done. I think anyone would.

Please use this board as a sounding board. Believe me we are all interested in your progress and want to help any way we can. The level of knowledge both experiential and clinical is a great resource. If you want to personal message people, as I have from time to time, this is a good way of asking specific questions from people who can help through their experiences.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE

User

Posted 06 Oct 2015 at 10:17

If your consultant said he was 80% sure you have cancer then you probably have cancer. On the up side, the scan only showed two suspicious areas and family history suggests that your dad's was not particularly aggressive so yours might be a pussycat too. No point stressing about why you are stressing - if you finally get the all clear we will all celebrate with you and you will monitor your PSA for the rest of your life just in case a problem develops later.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 06 Oct 2015 at 17:15

Hi Gary

I am almost as new here as you are, but one hopeful thing I have learned in the last month is that the word 'cancer' is not as big as everyone thinks. When I heard it I thought "that's it, I'm dead" but now I see that lots of people survive it and get through it and even live a long time with it. See some of the other threads in this forum for some really positive stories.

So I would say to you even if you do have cancer, as it seems you might, you might well find that it is curable, or that they can do a lot more for you than you imagined. Keep hoping! As you get more information maybe, like me, you will start to see things more calmly

Best wishes

sjb

User

Posted 06 Oct 2015 at 20:17

Hi Garry,

A regular saying on this site a few years ago was:

"I've got cancer, but cancer hasn't got me!"

I took this to mean so you have got cancer, get over it!

I have had cancer since I was 54, now I am 62, so for 8 years and counting, thats 12% of my life I have had cancer.

During that time lots of good things have happened, I am now a Grandad, indeed my eldest grandchild is now 5, and she keeps me busy picking her up from schoool, taking her to the ballet etc, lots of good things to look forward to. In my spare time I have made a dolls house and a castle, my grandson is only 3, but guess what grandad is already thinking train sets and Airfix kits.

I was newly married, (second time around) when I was diagnosed, we had just been to Harrogate (of all places!) on holiday and I had put a picture we had bought at the bottom of our stairs.

My new wife was as devastated as I was with the diagnosis, I remember her tears as I told her my Gleason score, I promissed her we would put holiday pictures to the top of the stairs, and guess what we have, Bath, Teneriffe, Torquay, Menorca, Corfu, Teneriffe (again), Penzance, Malta, Madeira. I now have a picture of Amsterdam, but no wall left, so I am wondering where to stick it?

Don't get me wrong life was great before I had cancer, but it's not so bad with cancer, lots of good memories and lots to look forward to.

I should live long enough to see my stepson graduate, who knows I might yet live to be a great grandad, I am looking forward to the days when I have had cancer for 20% or even dare I hope 30% of my life?

Dave

Show Most Thanked Posts

User

Posted 29 Sep 2015 at 18:05

Hello Garry and welcome to the club no one wants to be in

There's lots of people on here who have been living with PCa for years and they'll be along soon to "hold your hand" as they did for me when I got the dreaded news....these people are fantastic

Duncan

Edited by member 29 Sep 2015 at 18:05 | Reason: Not specified

User

Posted 29 Sep 2015 at 18:08

Hi Garry

Welcome to this site, you'll find a wealth of support and info. here. There's a lot of people (both men and their partners) who will be able to offer a lot of wise advice.

Have a look a peoples' profiles by clicking on their avatar, there are some really encouraging stories.

Keep posting your progress, all the best

Arthur

User

Posted 29 Sep 2015 at 18:10

Thanks Duncan
My head at the moment is all over the place

Can I please ask what is the toolkit ?

Like everyone want all the answers NOW
But know this not going to happen
Had convinced myself was going to be clear as not had any symptoms

User

Posted 29 Sep 2015 at 18:13

Garry, I was 47 with almost the same PSA readings as you six years ago. One failed operation and radiotherapy later and two years down the line on hormones, I'm still here, still drinking, travelling and smiling. No, it won't go away but I want you to know - FEAR IS NORMAL. NO, NOTHING ANYONE CAN SAY WILL MAKE YOU FEEL BETTER. WHAT YOU WANT IS THE SURGEON TO SAY ITS ALL A MISTAKE, BUT THEY PROBABLY WON'T.

MY LOUD MESSAGE IS, WE ARE ALL HERE FOR YOU. THERE WILL BE A TOMORROW FOR YOU, MANY, MANY MORE IN FACT.

TAKE EACH DAY AS IT COMES AND DO NOT READ TOO MUCH ON THE INTERNET.

GOOD LUCK MY FRIEND

BAZZA (Barry)

User

Posted 29 Sep 2015 at 18:14

Chris

Edited by member 29 Sep 2015 at 18:19 | Reason: Not specified

User

Posted 29 Sep 2015 at 18:23

And please contact the Specialist Nurses on this site ok. They are brilliant and can talk you through anything

User

Posted 29 Sep 2015 at 18:31

Garry

If you find the publications section on this website and search for the toolkit, go to information then our publications. You can either download it or order a copy to be posted to you.

Arthur

User

Posted 29 Sep 2015 at 18:37

Hello Garry and welcome from me too, the wife of a prostate sufferer.

It can be obtained by going to Publications, on the main page.

They can be downloaded or I think they still do hard copies.

There are also specialist nurses on this site that can answer questions and queries.

Please don't despair at this stage. It is very early days for you and even if you are diagnosed with cancer all is definitely not lost. There are many treatments and trials available to patients now.

Once you've had that biopsy then it can be confirmed just where you are.

Best Wishes
Sandra

We can't control the winds - but we can adjust our sails

User

Posted 29 Sep 2015 at 18:38

I'm too slow a typist. Arthur beat me to it. !!

We can't control the winds - but we can adjust our sails

User

Posted 29 Sep 2015 at 20:33

Hello Garry

You've definitely come to the right place here and have already received lots of valuable advice and support. We've all felt much the same as you, especially when the whole process kicks off.

Along with all the others I wish you all the very best Garry and whatever questions you have just ask away and everyone here will help in anyway they can.

Cobbles

User

Posted 29 Sep 2015 at 20:39

Thanks everyone

Will have look for toolkit

Could not sleep last night as woke up and couldn't stop thinking

Mind in a muddle

Will keep coming on and posting

Biopsy should be done on 16th October but if space could be the 9th

Results 10 days later

Know it only 4 week but does feel ages away

I am sure there will be many questions

Good to know there is support out there.And being able to come on here and realise you are not alone

Edited by member 29 Sep 2015 at 20:41 | Reason: Not specified

User

Posted 29 Sep 2015 at 20:47

Did forget to put MRI scan showed it not spread anywhere so did take that as a positive

Can I please ask what is Gleason score

Gonna do as advised ask the questions on here rather than Dr Google.Don't want to scare myself anymore than I already am

Edited by member 29 Sep 2015 at 20:54 | Reason: Not specified

User

Posted 29 Sep 2015 at 22:18

Sandra

All good info helps even if it's duplicated!

Arthur

User

Posted 29 Sep 2015 at 23:20

Hi Garry

Example:

3+3=6 least agressive

3+4=7

4+3=7

4+4=8

3+5=8

5+3=8

4+5=9

5+4=9

5+5=10 most agressive

Hope I haven't confused you lol

Roy

Edited by member 29 Sep 2015 at 23:43 | Reason: Not specified

User

Posted 29 Sep 2015 at 23:32

Hi Garry

This is easy to say but not so to put into practice ....... but don't panic! The word cancer puts us all into fear when we first hear about it but the condition comes in many different forms/types.

Haven't had the time to read all the replies you have had so far but as a rule the advice given by others on this site is very good and vThe Tool Kit is an excellent first read.

Originally Posted by: Online Community Member

User

Posted 29 Sep 2015 at 23:42

Garry

Nil desperandum

Allister

User

Posted 30 Sep 2015 at 00:43

Hi Garry,

Wishing you well. Keep us all informed.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE

User

Posted 30 Sep 2015 at 09:04

So with that was not worried and really did expect to come back clear from mri.In their defence.They did say could not feel all prostate and the MRI shows abnormal cells at top in awkward place

Edited by member 30 Sep 2015 at 09:12 | Reason: Not specified

User

Posted 30 Sep 2015 at 15:01

Hi Gary, it sounds like your case is quite similar to mine, but I am a few months ahead of you, so maybe my recent experience might help.

I agree with what others have said - don't let yourself get down. Wait for more information and see how it goes. Keep in touch with people here and we can help!

Best of luck

sjb

Edited by member 30 Sep 2015 at 15:13 | Reason: Not specified

User

Posted 30 Sep 2015 at 19:38

Paul
Our cases do sound very similar hope we have a similar outcome
Sjb
You are a little further on than me and the results of your bone and chest scan are surely positive signs

Having the whole range of emotions like everyone does I would imagine and then lurching from one to another.
Angry why me?
Which is silly really because cancer doesn't care who gets it
Tearful a lot feeling sorry for myself
Then a come on shake yourself not even been properly diagnosed think positive then a repeat of the above
Must admit since Monday had done nothing but sit and wallow.Did finally go to sons this afternoon for an hour but only because had arranged it
So must get myself together

Could I ask a couple of questions
How do you manage at work ? Or do people just stay off until no longer incontinent? I have a job that requires an awful lot of climbing stairs
Had ache in testes for a while but just put it down to lifting things or slip at work.Could it be one of the symptoms
Erection not quite as good as used to be but put this down to having to work extra hours lot of night shifts little sleep
Or am I just looking for things now

Have all sort of crazy things going through my head again may be perfectly normal

One last thing can anyone tell me why anti histamenes are bad for people with prostate trouble

Edited by member 30 Sep 2015 at 19:46 | Reason: Not specified

User

Posted 01 Oct 2015 at 12:15

Hi Paul. I'll tell you what I can, though some of your questions I will leave for others...

-Work: I have only told my boss, no-one else. Luckily I'm not incontinent, so no-one can notice anything.

-If I were you I would ask a doctor about the incontinence and pain in the testes. Maybe they can do something about it?

-anti-histamenes - No idea - maybe someone else can help?

Good luck with it. Happy to answer anything else if I can.

sjb

User

Posted 01 Oct 2015 at 12:56

Hi sjb
I am forward thinking and putting questions down as I think of them -panicking bit too much probably
Not yet got any diagnosis - biopsy in couple weeks

Pain in testes is a dull ache.Did slip at work but didn't feel anything.Or is it from doing garden moving couple sleepers.Had it before. But now the scary monster has reared its head thinking every ache and pain got to be linked
A lot of people seem to suffer from incontinence so just wonder how they cope with it.

The stupid thing is I actually do feel quite fit.

Cannot get it off my mind at moment can't stop thinking about it

Edited by member 01 Oct 2015 at 13:03 | Reason: Not specified

User

Posted 02 Oct 2015 at 08:54

Garry,

Re. your testicular ache.

Hope thngs are ok for you.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE

User

Posted 05 Oct 2015 at 12:14

At the moment really struggling to come to terms with it.And that before biopsy so don't know what going to be like afterwards

Feel like a fraud coming on here not even diagnosed.

Looking for answers before I know the questions

Edited by member 05 Oct 2015 at 12:21 | Reason: Not specified

User

Posted 05 Oct 2015 at 13:10

User

Posted 05 Oct 2015 at 14:03

Arthur

User

Posted 05 Oct 2015 at 15:39

Garry,

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE

User

Posted 05 Oct 2015 at 18:47

Fraud.
A false representation of a matter of fact—whether by words or by conduct, by false or misleading allegations, or by concealment of what should have been disclosed—that deceives and is intended to deceive another so that the individual will act upon it to her or his legal injury.

A long winded way of saying you're talking nonsense Garry.

When you first came on here you told us you hadn't been confirmed with PC.
The fact that you are being investigated is enough of a worry in itself but to worry is natural under the circumstances.

Are you fretting that at some stage you will be coming back on here and saying it's all been a mistake and you don't have cancer? That we'll all think you worried us for nothing?

It doesn't work like that on here does it.

YOU have concerns and are looking at the worst case scenario especially given your family history (natural enough) so you asked for support which was gladly given.

If you come back here with results that say you DON'T have PCA we will all be cheering for you and saying well done.

We love good news on here Garry.

It's probably no good any of us repeating don't worry until you have something to worry about because you will anyway.

Whatever the outcome we are here and we'll do our best for you.

Sandra

We can't control the winds - but we can adjust our sails

User

Posted 06 Oct 2015 at 09:36

Thank you for all your replies and support

In my head already got PC and to be honest I am struggling.
Wife does not know what to say to comfort me.

Got pre op today and biopsy confirmed for 16th October

Thank you again for all your support it is greatly appreciated

User

Posted 06 Oct 2015 at 10:17

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 06 Oct 2015 at 10:32

Am trying to look for positives

Consultant said MRI showed it had not spread-this surely a BIG positive

I feel fit with none of the problems yet associated with PC so in a good position to fight it
Getting a lot of support on here from family and the few people I have had to tell at work
Think if it hereditary could be same strain as dads
Taking all these as positives

Lynn is 2 areas good ? consultant didn't seem bothered by small one but said he was concerned by the larger one on top of prostrate

User

Posted 06 Oct 2015 at 17:15

Hi Gary

Best wishes

sjb

User

Posted 06 Oct 2015 at 20:17

Hi Garry,

A regular saying on this site a few years ago was:

"I've got cancer, but cancer hasn't got me!"

I took this to mean so you have got cancer, get over it!

I have had cancer since I was 54, now I am 62, so for 8 years and counting, thats 12% of my life I have had cancer.

I was newly married, (second time around) when I was diagnosed, we had just been to Harrogate (of all places!) on holiday and I had put a picture we had bought at the bottom of our stairs.

Don't get me wrong life was great before I had cancer, but it's not so bad with cancer, lots of good memories and lots to look forward to.

Dave

User

Posted 06 Oct 2015 at 22:11

Sjb
That is exactly what I thought
Been for pre op today and helped a little bit being able to ask a few questions

The one thing neither my wife or I can understand is I am normally positive -shrug my shoulders and just get on with things.But not with this

Could be as you say hear cancer and you actually hear "that's it I'm dead"One of the problems we all know people who have died of cancer yet ironically the only person who has got PC who I know is my dad.Who had operation to scrape prostate has injection every 3 month and still going strong at 85

All we can do is put our trust in the experts I suppose

User

Posted 06 Oct 2015 at 22:24

Dave
What a brilliant post love the I've got cancer it hasn't got me

And what is wrong with Harrogate :-) lol

Hope you don't mind me pinching that idea of pictures and doing something similar. We love the lake district

Time to think slightly differently and get back to being me

One thing to come out of this is I actually realise what I have got.A beautiful wife who I don't know how I would have managed without
3 great kids and 2 grandkids
Thanks Dave for giving me a little better perspective :-) :-)

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