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User

Posted 30 Sep 2015 at 19:38

Paul
Our cases do sound very similar hope we have a similar outcome
Sjb
You are a little further on than me and the results of your bone and chest scan are surely positive signs

Having the whole range of emotions like everyone does I would imagine and then lurching from one to another.
Angry why me?
Which is silly really because cancer doesn't care who gets it
Tearful a lot feeling sorry for myself
Then a come on shake yourself not even been properly diagnosed think positive then a repeat of the above
Must admit since Monday had done nothing but sit and wallow.Did finally go to sons this afternoon for an hour but only because had arranged it
So must get myself together

Could I ask a couple of questions
How do you manage at work ? Or do people just stay off until no longer incontinent? I have a job that requires an awful lot of climbing stairs
Had ache in testes for a while but just put it down to lifting things or slip at work.Could it be one of the symptoms
Erection not quite as good as used to be but put this down to having to work extra hours lot of night shifts little sleep
Or am I just looking for things now

Have all sort of crazy things going through my head again may be perfectly normal

One last thing can anyone tell me why anti histamenes are bad for people with prostate trouble

Edited by member 30 Sep 2015 at 19:46 | Reason: Not specified

User

Posted 01 Oct 2015 at 12:15

Hi Paul. I'll tell you what I can, though some of your questions I will leave for others...

-Yes, I felt the same as you, but I feel much better now because I have got lots more information about what is happening. After three weeks of depression, I am also more resigned to it, plus I have got some glimmers of hope, like I am not going to drop dead this year..... I'm kind of calm now. But I still sit and wallow a lot!

-Work: I have only told my boss, no-one else. Luckily I'm not incontinent, so no-one can notice anything.

-If I were you I would ask a doctor about the incontinence and pain in the testes. Maybe they can do something about it?

-Erection - I have been put on a hormone treatment where I take a hormone pill every day for 28 days and on the 14th day (today!) I get a hormone injection. Since I started, no erection or any interest in that direction!

-anti-histamenes - No idea - maybe someone else can help?

If you can, maybe get more information from your doctors. It took me a while to get to see them, but I have now spoken to some good specialists who were very helpful. In my case, my contact cancer nurse was not so good or reassuring - I guess he just didn't know, so he couldn't answer all my questions, and that worried me. But now I feel at least I know where I am going a bit.

Good luck with it. Happy to answer anything else if I can.

sjb

User

Posted 01 Oct 2015 at 12:56

Hi sjb
I am forward thinking and putting questions down as I think of them -panicking bit too much probably
Not yet got any diagnosis - biopsy in couple weeks

Pain in testes is a dull ache.Did slip at work but didn't feel anything.Or is it from doing garden moving couple sleepers.Had it before. But now the scary monster has reared its head thinking every ache and pain got to be linked
A lot of people seem to suffer from incontinence so just wonder how they cope with it.

The stupid thing is I actually do feel quite fit.

Cannot get it off my mind at moment can't stop thinking about it

Edited by member 01 Oct 2015 at 13:03 | Reason: Not specified

User

Posted 02 Oct 2015 at 08:54

Garry,

Re. your testicular ache.

For a couple of years prior to my diagnosis I did have a dull ache and a heavy feeling in my testes. I spoke to my G.P.who examined me and determined that it was epididymitis. After my op this discomfort has gone. I can't find any clinical data that indicates the link but it doez seem too much of a coincidence that the strange feeling in the testicles has gone now my prostate cancer has been treated.

Hope thngs are ok for you.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE

User

Posted 05 Oct 2015 at 12:14

At the moment really struggling to come to terms with it.And that before biopsy so don't know what going to be like afterwards
Feel like a fraud coming on here not even diagnosed.

Looking for answers before I know the questions

Edited by member 05 Oct 2015 at 12:21 | Reason: Not specified

User

Posted 05 Oct 2015 at 13:10

You are not a fraud Garry. Everyone is here to help. I've had enormous help from the forum members and was in a state just as you are. And rightly so. You are very understandably scared friend. I can only echo what others have said. Try to back off the pedal a bit until you have the hard FACTS put in front of you. Try to save your energy for when that happens so you can steer a way forward
Chris

User

Posted 05 Oct 2015 at 14:03

Garry you're not a fraud. You're concerned and rightly so, we were all in your position in one way or another at one time. The specialists will have the right answers for you and the treatment (if required) suitable for your situation. Not many of us can claim that this is our specialist subject and can only speak out of our own experiences. We're all here to support and encourage each other stay strong, stick with us and we'll help in the best way we can.

Arthur

User

Posted 05 Oct 2015 at 15:39

Garry,

Please don't think you are a fraud. This is one of the most supportive sites I know. Mainly because most people on here are or have been where you are now. I remember being at the same place you are last year when I was either waiting for appointments or for results. This place of limbo was the most difficult. Once all the results were in and the full clinical picture was available to me and the clinical team it just came down to me making a decision. I know some people struggle with this but once the full clinical picture was presented and I was able to discuss treatment options with the surgeon and the oncologist I made my mind up surprisingly easily. Having said that I remained anxious until the treatment was done. I think anyone would.

Please use this board as a sounding board. Believe me we are all interested in your progress and want to help any way we can. The level of knowledge both experiential and clinical is a great resource. If you want to personal message people, as I have from time to time, this is a good way of asking specific questions from people who can help through their experiences.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE

User

Posted 05 Oct 2015 at 18:47

Fraud.
A false representation of a matter of fact—whether by words or by conduct, by false or misleading allegations, or by concealment of what should have been disclosed—that deceives and is intended to deceive another so that the individual will act upon it to her or his legal injury.

A long winded way of saying you're talking nonsense Garry.

When you first came on here you told us you hadn't been confirmed with PC.
The fact that you are being investigated is enough of a worry in itself but to worry is natural under the circumstances.

Are you fretting that at some stage you will be coming back on here and saying it's all been a mistake and you don't have cancer? That we'll all think you worried us for nothing?

It doesn't work like that on here does it.

YOU have concerns and are looking at the worst case scenario especially given your family history (natural enough) so you asked for support which was gladly given.

If you come back here with results that say you DON'T have PCA we will all be cheering for you and saying well done.

We love good news on here Garry.

It's probably no good any of us repeating don't worry until you have something to worry about because you will anyway.

Whatever the outcome we are here and we'll do our best for you.

Sandra

We can't control the winds - but we can adjust our sails

User

Posted 06 Oct 2015 at 09:36

Thank you for all your replies and support

In my head already got PC and to be honest I am struggling.
Wife does not know what to say to comfort me.

Got pre op today and biopsy confirmed for 16th October

Thank you again for all your support it is greatly appreciated

User

Posted 06 Oct 2015 at 10:17

If your consultant said he was 80% sure you have cancer then you probably have cancer. On the up side, the scan only showed two suspicious areas and family history suggests that your dad's was not particularly aggressive so yours might be a pussycat too. No point stressing about why you are stressing - if you finally get the all clear we will all celebrate with you and you will monitor your PSA for the rest of your life just in case a problem develops later.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 06 Oct 2015 at 10:32

Am trying to look for positives

Consultant said MRI showed it had not spread-this surely a BIG positive

I feel fit with none of the problems yet associated with PC so in a good position to fight it
Getting a lot of support on here from family and the few people I have had to tell at work
Think if it hereditary could be same strain as dads
Taking all these as positives

Lynn is 2 areas good ? consultant didn't seem bothered by small one but said he was concerned by the larger one on top of prostrate

User

Posted 06 Oct 2015 at 17:15

Hi Gary

I am almost as new here as you are, but one hopeful thing I have learned in the last month is that the word 'cancer' is not as big as everyone thinks. When I heard it I thought "that's it, I'm dead" but now I see that lots of people survive it and get through it and even live a long time with it. See some of the other threads in this forum for some really positive stories.

So I would say to you even if you do have cancer, as it seems you might, you might well find that it is curable, or that they can do a lot more for you than you imagined. Keep hoping! As you get more information maybe, like me, you will start to see things more calmly

Best wishes

sjb

User

Posted 06 Oct 2015 at 20:17

Hi Garry,

A regular saying on this site a few years ago was:

"I've got cancer, but cancer hasn't got me!"

I took this to mean so you have got cancer, get over it!

I have had cancer since I was 54, now I am 62, so for 8 years and counting, thats 12% of my life I have had cancer.

During that time lots of good things have happened, I am now a Grandad, indeed my eldest grandchild is now 5, and she keeps me busy picking her up from schoool, taking her to the ballet etc, lots of good things to look forward to. In my spare time I have made a dolls house and a castle, my grandson is only 3, but guess what grandad is already thinking train sets and Airfix kits.

I was newly married, (second time around) when I was diagnosed, we had just been to Harrogate (of all places!) on holiday and I had put a picture we had bought at the bottom of our stairs.

My new wife was as devastated as I was with the diagnosis, I remember her tears as I told her my Gleason score, I promissed her we would put holiday pictures to the top of the stairs, and guess what we have, Bath, Teneriffe, Torquay, Menorca, Corfu, Teneriffe (again), Penzance, Malta, Madeira. I now have a picture of Amsterdam, but no wall left, so I am wondering where to stick it?

Don't get me wrong life was great before I had cancer, but it's not so bad with cancer, lots of good memories and lots to look forward to.

I should live long enough to see my stepson graduate, who knows I might yet live to be a great grandad, I am looking forward to the days when I have had cancer for 20% or even dare I hope 30% of my life?

Dave

User

Posted 06 Oct 2015 at 22:11

Sjb
That is exactly what I thought
Been for pre op today and helped a little bit being able to ask a few questions

The one thing neither my wife or I can understand is I am normally positive -shrug my shoulders and just get on with things.But not with this

Could be as you say hear cancer and you actually hear "that's it I'm dead"One of the problems we all know people who have died of cancer yet ironically the only person who has got PC who I know is my dad.Who had operation to scrape prostate has injection every 3 month and still going strong at 85

All we can do is put our trust in the experts I suppose

User

Posted 06 Oct 2015 at 22:24

Dave
What a brilliant post love the I've got cancer it hasn't got me

And what is wrong with Harrogate :-) lol

Hope you don't mind me pinching that idea of pictures and doing something similar. We love the lake district

Time to think slightly differently and get back to being me

One thing to come out of this is I actually realise what I have got.A beautiful wife who I don't know how I would have managed without
3 great kids and 2 grandkids
Thanks Dave for giving me a little better perspective :-) :-)

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