Hi Una,
I thought that Abbi had failed if there was progression on the scans and a increase in PSA, not one but both, has your dads PSA risen.
Abbi cost to the NHS this year is £1800 per month, private is £5200 per month.
I stopped taking them in January and i have a months supply here if they are of use to you, if your dads PSA has not gone up and in my eyes still working then i am quite happy to tell my onco that i am going back on them and send them to you.
He has been trying to get me back on them for months, so it will make him happy too http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif
My best wishes to you and your dad
Si
Don't deny the diagnosis; try to defy the verdict |
User
Hi Una,
I wonder if a conversation with the nurse specialist or oncologist is the best place to start - it sounds to me like they were telling your dad that the abby is failing. So what treatment were they suggesting instead?
The other possibility is that your dad was getting the abby on a trial and the bone progression now means he has to leave the trial. Even then,there should be some idea of what they are going to try next. It might be that chemo is on the cards?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
|
User
Abiraterone at the Bupa Cromwell costs £4,000 a month. You may also be able to buy it directly from the manufacturer.
User
I was told that my abiraterone cost the University Hospital Coventry £2700 a month or in round figures with the Prednisolone included £3000 a month. I don't understand how the NHS (Cancer Drugs Fund) can be paying three (or more?) different prices. If so, that is a disgrace.
User
There is little point in paying thousands of pound each month for a treatment that has stopped working, I think. More important to have a clear plan for the 'what next'
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
|