Hello all,
Ive been reading the posts and following stories on here for a couple of months now, been a bit reluctant to post as i,m a bit of a private
person in some respects, yet completely out going in others :)
I,ll just say to start, i think there some fantastically courageous people on this site, and some etremely wise ones too (ie lyn) who although
i,m sure she wouldnt admit it is (in my view) very much an expert on PCA..
Not really sure how i should do this but my stats are..... diagnosed july after about a year of peeing problems, 3rd visit to urology dept in
Leeds a nodule was found, went for mri scan and then biopsy . the biopsy (which i only got one anti biotic tablet for which i didnt think was not enough) caused severe prostatitis 2 days later... i presented to A+E in Leeds after almost collapsing and was kept in for 5 days with a temp of 40 degrees...anyway the results of the biopsy showed a T2a Gleason 3+4 tumour..
Iwas told by the very experienced Consultant at my age 58, surgery would be the best option, as if that did fail, then r/t was still an option.
this was the option i decided upon , i,m fit , ex gym instructor, go to gym 3/4 times a week and also frequent outings on my mountain bike.
August 17th had Da vinci surgery, no op probs, surgeon came into ward day after and said everything went ok, i felt ok, hated the bloody catheter from waking up tho :) came home after 2 days in hosp...got a uti due to catheter which was very painful and got a course of anti biotics from my gp...catheter remained in for 11 days.... fantastic relief to have it out AND surprisingly painless (although a weird feeling)
From this point on (and i am still now, incontinent) 3/4 pads a day and the only time i,m not leaking is, when i sit down for a while, or laying in bed, i,m grateful i havent had any heavy voids during the night, i usually have to get up 3/4 times though, but i was like that before surgery so its nothing new ...
So... this week, 13th Oct i went for 1st opa , .. good news and bad news... Bad = capsule had been just broken so my tumour was upgraded to a T3a :( but good news was ... no positive margins, lymph nodes (4) were all clear and psa was 00.5 so my results were (i think similar to Alanb ,s ) NOW heres where i need the wisdom and experience of Lyn and others... the consultant said to me.. weve got
trials at the mo for people with T3,s which involve 5 weeks, 5 days a week of r/t . you dont have to do this, its entirely up to you..
so i said what if i didnt do this? he said well we,ll just get you back in 3 months and see what your psa level is, then if its gone up look at our options.... because i,d already researched r/t and other other options i said no thanks... i,ll just come back in 3 months and see where we are... basing MY opinion on the fact that all the other results were i think pretty good ?
Anyway sorry if ive gone about puttiing my stats etc on here the wrong way and for the war n peace post :) but if any of you wise and caring people could maybe give me some opinions that would be great...
Cheers Keith...