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User
Posted 17 Aug 2023 at 19:52

Great news Chris, I’m really pleased for you.

Dere

User
Posted 17 Aug 2023 at 20:45

Originally Posted by: Online Community Member

That's great news Chris. The Bical is not a bundle of laughs but at least you are already nearing the halfway mark. Hope you have managed to avoid breast budding. Mine kicked in around the 10 week mark. Chris

Chris

Could you please describe breast budding, I noticed the other day one nipple slightly hurt when I caught it and I could feel a small lump. The onco said he couldn't feel anything. I assumed when guys say the have sore nipples it was similar to when a wet polo shirt rubs on the nipples.

Thanks Chris 

 

 

User
Posted 17 Aug 2023 at 20:47

Fantastic Chris. Genuinely chuffed to read this my man.

 

Jamie.

User
Posted 17 Aug 2023 at 21:17
Lovely news for us all Chris
User
Posted 17 Aug 2023 at 22:26
Great news,Chris. I'm really happy to hear that. I've been wondering how you were doing. I appreciate your update.
User
Posted 18 Aug 2023 at 22:04

Chris, the first time I noticed this phenomena was when I brushed a nipple when passing through a door and it hurt (it was a big enough doorway, I was just clumsy). On examination I could see both nipples were slightly raised and I could feel a hard area just behind it. My nipples gradually became more raised and tender but by this time I had managed to get a prescription for Tamoxifen to keep it in check. If you look up gynaecomastia you can get a bit more information on it. I imagine you have a much better idea how your nipples should feel than your Onco. I'm now nearly six months post Bical and my breasts are just about back to normal. The tenderness went away after a month or so but the hard lump under the nipple has been slow to dissipate. As for the wet polo shirt I don't think I've ever experience that πŸ˜€ 

User
Posted 19 Aug 2023 at 23:41
Great news Chris, really happy for you. Long may it continue x
User
Posted 15 Nov 2023 at 00:17

Just took the last of my 150 mg bicalutamide tablets. I have been on them for six months. The nipples are still tender and lumpy and fortunately the man boobs are are quite small. The sexual desire is still there perhaps a little reduced. Hopefully these minor symptoms will diminish over the coming weeks. 

Appointment and next PSA test in 10 weeks.  Still here, still moaning and far better off than many in the world.

Thanks Chris 

 

Edited by member 15 Nov 2023 at 00:18  | Reason: Spelling

User
Posted 15 Nov 2023 at 00:43

That's great, Chris. 

Happy to hear thatπŸ’ͺπŸΌπŸ‘πŸΌ

User
Posted 15 Nov 2023 at 01:11
Yay!!!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Nov 2023 at 07:26
πŸ‘Good luck in 10 weeks time

Cheers

BILL

User
Posted 15 Nov 2023 at 07:43

Great attitude Chris, onwards and downwards!

Derek

User
Posted 15 Nov 2023 at 07:49
Good news Chris. Moan away mate. Just enjoy Xmas now ok πŸ‘
User
Posted 15 Nov 2023 at 13:01

Great that you are off the Bical Chris. It does have a bit of a long half life, so it hangs around in your system for a while. My nipples took about 2-3 months to completely lose their tenderness and about another two months to lose their hardness. Fingers crossed for the next PSA 

User
Posted 15 Nov 2023 at 21:08

πŸ’ͺ😎

Best wishes, Chris.

 

JedSee.

User
Posted 11 Dec 2023 at 17:37

Ten years ago today I had my one and only TRUS biopsy. I have had lots of treatment,still not out if the woods,but still here.

I happened to look at my last PSMA scan today and noticed that it says,  "No abnormal PSMA uptake within the prostatectomy bed."

Presumably the "very educated guess" of SRT to the prostate bed was correct, pity the cancer had already gone elsewhere.

Thanks Chris 

User
Posted 13 Dec 2023 at 20:07
They told me the same Chris after my PSMA scan. Also saw another post recently who also said nothing in the Prostate bed. So just shows after a seemingly successful RP and RT that something was floating about elsewhere.

High risk men should have a PSMA scan as part of their initial diagnosis

Hope all good otherwise. I’ m still waiting for the results of my MRI scan

Bri

User
Posted 13 Dec 2023 at 23:35

In response to Bri. I didn't want any scans that might have endangered me having curative treatment. The bone scan was the most worrying.

I guess if you're undetectable post op a psma scan at diagnosis wouldn't have helped.  So it would be only cases where psa was 0.5 after the op to where an MRI would detect it that might benefit, or be put straight onto hormones.

User
Posted 14 Dec 2023 at 01:33

Peter, I was told 7 years ago if they found anything with a PSMA scan salvage RT would not happen and it would be straight onto HT. I think for some of us we have moved on from that and a limited number of areas outside the prostate bed would be treated at the same time as SRT. That may not be the case with bone spread. Three years ago I was waiting for my PSA to reach 2,4, 6 or even 10 before going onto HT, again attitudes changed and I have had two lymph node tumors treated.

Probably another post code lottery.

Thanks Chris 

User
Posted 23 Jan 2024 at 10:23

Now eight months from SABR treatment to my second lymph node and ten weeks since completion on bicalutamide. I had my PSA yesterday which is now 0.44, so down from 6.3 before SABR but up from 0.32 while on bicalutamide. I don't think there are many people on the same treatment path so hard to understand what it means.

See the onco in a couple of days.

Yet again my GP practice reports it as normal,no further action required.

Thanks Chris 

 
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