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User

Posted 23 Jan 2024 at 11:15

Clearly not the news you were hoping for Chris. Let's hope the SABR is still doing it's work on the treated node and that PSA will drop. You don't want to end up having to play wak a mole. Fingers crossed.

User

Posted 23 Jan 2024 at 11:51

May just be a small bounce Chris since coming off the Bicalutamide and hopefully will stay steady.

User

Posted 23 Jan 2024 at 14:47

I don't think the value on Bical is relevant, the PSA test in 3 months is the one to watch. Fingers crossed for that one!

User

Posted 23 Jan 2024 at 19:40

Here's to no further action required CC.

Hope and warmth.

Jamie.

User

Posted 23 Jan 2024 at 20:53

The RT may still be working Chris. Be good to hear what Jamie has to say about it. But fingers crossed all is good

I am still waiting for clarification about that lymph node 😡

Take care

Bri

User

Posted 23 Jan 2024 at 23:55

No one ever likes to see a rise Chris but hopefully it’s just like some of the other guys have said and just a bounce that will settle. Best of luck for your next test x

User

Posted 26 Jan 2024 at 12:59

Hi, so saw the onco yesterday, he said it would have been better if the PSA was 0.1 but 0.44 was better than it being 1.

He said he has never seen cancer remain in lymph node that has been treated with SABR. He says bicalutamide is out of the system within 2/3 weeks, unlike injections that take longer to disappear.

He expects we will need further PSMA scans but wants to wait four months before the next PSA test and the scan would depend on velocity rather the level.

If it wasn't for the suprapubic catheter life would be almost normal.

Thank you all for your support.

Thanks Chris

User

Posted 12 Feb 2024 at 11:19

I'm so glad to read that, Chris. I hope you'll soon can get out of that rollercoaster you've been on lately

Best wishes!

Lola.

User

Posted 12 Feb 2024 at 13:37

The post between my 26th Jan post and the one from Lola is probably not safe. I will report it as soon as I complete this post.

Thanks Chris

Added,The moderators have now removed the post I reported, someone had copied a post of mine and added some dubious looking hyperlinks.

Thanks Chris

Edited by member 12 Feb 2024 at 17:14 | Reason: Not specified

User

Posted 12 Feb 2024 at 13:51

What's wrong with my post of with me? I was just showing my happiness for your good news?

Have I said anything improper? I

I'm confused.

User

Posted 12 Feb 2024 at 13:54

What's wrong with my post or with me? Have I said or done anything improper? I was just sharing my joy for your result.

I'm totally confused.

Lola.

User

Posted 12 Feb 2024 at 14:30

Hi Lola.

I think Chris was referring to the post before yours (not your post)

Jeff.

User

Posted 12 Feb 2024 at 15:02

Oh, so you (he) mean "between that X's post and my post. I got it like "the conversation between Chris and Lola". My misunderstanding. I'm afraid I need to improve my comprehension of English.

Thanks, Jeff.

Have a nice evening.

Lola

User

Posted 12 Feb 2024 at 16:53

Originally Posted by: Online Community Member

Oh, so you (he) mean "between that X's post and my post. I got it like "the conversation between Chris and Lola". My misunderstanding. I'm afraid I need to improve my comprehension of English.
Thanks, Jeff.
Have a nice evening.
Lola

Lola , perhaps it is me who needs to improve my English, in hindsight I can see it was a little misleading. Someone had used the quote reply to duplicate my post and added some dubious links into. My apologies for the confusion, I am always grateful for the support you and others have given me over the years. Hope we are still friends 🙂.

I left my phone at home this afternoon,so have only just seen the messages.

Thanks Chris

Edited by member 12 Feb 2024 at 16:55 | Reason: Not specified

User

Posted 13 Feb 2024 at 15:53

No, Chris, it was me. I was afraid my post was excessive as I recognise I tend to be extremely emotional (I'm Latin and and Mediterranean) when it comes to expressing feelings. And actually, I was glad when I read your update. Those in the same journey are aware of the relevance any result or medical opinion has for us.

Big hug

User

Posted 28 Apr 2024 at 07:31

Another anniversary, it is ten years ago today that I had my prostate removed, it's not been a simple journey but it has helped having the support of you lovely people on here. I have met some of you and sadly lost some of those that we met. The trolls tend to resurrect old posts and some old names pop up. Another few weeks and I will have a good idea how well the last two SABR have treatments worked.

Wishing you all well.

Thanks Chris.

User

Posted 28 Apr 2024 at 08:11

You have had a tough journey Chris but you are still there and fighting. I value your contribution to this community. Long may it continue. Fingers crossed for the next PSA.

User

Posted 28 Apr 2024 at 08:46

Ten years and still fighting Chris, I hope SABR has worked. Good luck with the next ten years.

Cheers.

Kev.

User

Posted 28 Apr 2024 at 12:16

Hoping you get good results following your last two SABR treatments Chris 🤞

with best wishes,

Ange x

User

Posted 28 Apr 2024 at 14:39

Hope things work out well Chris. We are both ‘old-timers’ now. I’ll be 9 years in June and you were there for me from day one. Your support was immense and much appreciated 👌

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