That was not in the plan.

That is a bit of a mixed bag Chris. Did they use the same tracer that has proved succesful for you in the past?

I haven't read the whole thread but did pick up on your reluctance for HT. Was this based on a previous attempt to use it?

I have come to the conclusion that there are different versions of HT and some may affect you differently.

Based on reports from the group, I opted for DECAPEPTYL (3 month) rather than the Prostrap that the Onco wanted me to take and the side effects have been minimal. OK, libido has gone but that (for us) wasn't life changing and the occasional hot flush (that my wife reckons is nothing compared to what menopause did to her LOL) but that's been about it. Some tiredness at the beginning which was more related to the RT than the HT as it has now passed.

The good news is that Testosternone was down to 0.5 (target < 0.7) after the first injection.

Maybe something to consider if you haven't done so already :)

Thanks (and sorry to hear about the pets! I think we are close with ours too but he has had a darn good last 2 years (rescue))

I know what you mean about missing the routine - being retired it did get me out of a bit of a rut and I quite enjoyed the 45 minute drive each way but never made any 'friends' as the staff changed every day (they have 7 machines so swap and change). But also glad it's over.

I did get a premature PSA test before it ended as the lab misread the prescription and that came back at 0.03 (started at 0.22 pre-HT/RT) and T at 0.5 which was promising - back to see the onco at the end of August.

Hi Lola, I have cleared some messages from my in box. I have been posting to fellow members but it is a long time since I posted on my own conversation ,last one was back in July. There is nothing new to report really. Next PSA test is 18th November and see the oncologist a few days later. If the PSA is 3, I get another PSMA scan and see were we go from there. He did say there is a chance of spread and nothing big enough to detect. He did say we may need to have a conversation about HT.

I haven't gone six months between PSA test for a long time and my GP is being a little bit awkward, perhaps because I made an official complaint.

I still have the save attitude," it is what it is and worrying won't change things". If the next scan shows a tumor we zap it. If it is small clusters all over, I need to think about what next. Once I make a decision in my head, CJ comes along with words of wisdom and puts me back to square one and I wouldn't have it any other way.

Sadly the dog died a few months ago, the house is now pet free. We had our first trip away without the dog, we didn't need to take half as much stuff, but it was a bit empty without him.

Hope you are coping, take care.

Thanks Chris 

 Chris.

Congratultions on your journey thread breaking a hundred thousand views!

You're a PCUK stalwart and your posts are so helpful to others.👏

Well done, mate.

Edited by member 19 Oct 2024 at 10:58  | Reason: Additional text

Had bloods done yesterday, now up to 6.7 from 1.4 six months ago, oh dear. See the oncologist next week. Probably another scan at Oxford we make stay a few days and do some site seeing 😀.

Thanks Chris 

6 months is quite a long time if it's not stable.  I think 4 months is a good compromise.  I go to the hospital for blood tests and with the form I can go any day I want to. The GP would likely want weeks of notice as they don't do a weekly clinic since Covid.

I think I'd be in some denial about such a jump although you never know.  You're being well looked after for scans and the like and I hope they find something worthy of a zap.

All the best Peter

Sorry to hear this Chris. Hopefully the scan will pick up something. 

Good luck. 

Kev.