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User

Posted 15 Nov 2024 at 20:13

Not what you wanted.. good news is it's taken over 10 years to get back to what is was when you started AND apart from a sniff of bicalutimide it's still HT naive.

Dr Kwon might suggest giving it the works (chemo + 2nd line HT) and then aim for intermittent HT. Will be interesting to see what the scan finds and what your onco suggests.

User

Posted 21 Nov 2024 at 20:57

Hi guys, thanks for your replies and support. Saw the oncologist this afternoon, he is arranging another PSMA scan followed by another appointment with him. Should get the results just before Xmas, I got my original diagnosis just before Xmas 11 years ago

It was quite a bizarre meeting we had a bit of a laugh and joke about things. I imagine giving people bad news must put a strain on the doctors and nurses.

Thanks Chris

User

Posted 22 Nov 2024 at 00:01

Sorry to see this Chris, I’m sure they will be able to get a plan in place for you. You’ve done amazing all these years and I’m sure that will continue 👍 hope you can get your scan soon x

User

Posted 18 Dec 2024 at 19:28

Well another cancerversary today, 11 years since I was told "you have prostate cancer". Tomorrow I see the oncologist following last weeks PSMA scan. Either way it will be more treatment on offer, hoping it's more SABR treatment but suspect it may be HT on offer. Will update tomorrow.

Thanks Chris

User

Posted 18 Dec 2024 at 19:33

Good luck chris, hope things are positive tomorrow.

Let's keep on marking these cancerversaries.

Best wishes, mick.

User

Posted 18 Dec 2024 at 19:48

Hope everything goes the best way , Chris.

Continúe to stay strong.

User

Posted 18 Dec 2024 at 21:40

Another milestone Chris.

Stay positive, you're a mine of helpful information on here, and long may it continue.

I hope it all goes well tomorrow.

Cheers,

Kev.

Edited by member 18 Dec 2024 at 21:43 | Reason: Typo

User

Posted 18 Dec 2024 at 22:04

Good luck!

User

Posted 18 Dec 2024 at 22:13

Good luck Chris, hope it's what you prefer

Cheers

Bill

User

Posted 19 Dec 2024 at 18:08

I did think of starting a new thread, with a new title. Looks like I have moved into another phase. The results of the PSMA scan show spread to a number of lymph nodes right up to the neck. SABR is not on offer. An "off piste" choice is lutetium 177, but that would require approval from a specialist and my insurance company.

Aabiraterone and prednisone are the other option. I have said I need time to think, so seeing the oncologist in January.

Thanks Chris

User

Posted 19 Dec 2024 at 20:33

Sorry Chris, not what you wanted to hear.

Lutetium 177 is an interesting option. Historically it's been used later on, but there's always been much speculation that it might work significantly better if done earlier. There might even have been some trials on this.

User

Posted 19 Dec 2024 at 21:38

Andy, thanks, the oncologist did stress "if" approved it was not the usual route to take. I always thought it was a later resort treatment. Perhaps like some treatments, a stitch in time saves nine.

Thanks Chris

User

Posted 20 Dec 2024 at 04:53

Hi Chris.

I'm so sorry that the results weren't what you wanted. You certainly deserve a change of luck. I can only hope that what ever treatment you or they decide is effective.

User

Posted 23 Jan 2025 at 23:03

So had my telephone consultation with the Lutetium177 guy this evening. In short I won't get it. A few reasons he cannot give a valid case to the insurance company. He doesn't think he could get it past the MDT. Probably more than anything he does not think my kidneys are up to it.

My home oncologist is talking Abiraterone, the lut177 guy is suggesting zoladex.

I await the next appointment, fortunately I hadn't set my heart on lut177.

Thanks Chris.

Edited by member 24 Jan 2025 at 01:28 | Reason: Not specified

User

Posted 24 Jan 2025 at 09:17

Sorry to hear that Chris. You can at least tell yourself that you have been proactive and sought out all possible therapies for your ongoing treatment. A significant risk of kidney damage has to be a showstopper. Chris

User

Posted 25 Jan 2025 at 08:06

Just a thought, you are now 75? With no symptoms.

What about doing nothing until you actually get symptoms? Has any oncologist explained what difference HT will make to life expectancy if given early or late?

User

Posted 25 Jan 2025 at 08:41

Franci , 73 , thanks for your alternative possibilities , I had had some similar thoughts . I did do a lengthy reply but despite my usual precaution it disappeared.

Thanks Chris

User

Posted 25 Jan 2025 at 15:48

Franci, apart from some usual aches and pains I feel fine in myself, strangely 11 years ago I had a similar thoughts ,why put myself through all these treatments.

The oncologist did say I could wait but we would need to set thresholds. He did say waiting would be a risk or detrimental to the outcome. My PSA on 15 November 2025 was 6.7 with a doubling time of 2-3 months, at 2 months doubling I would now be 13ish. I often see 20 can mean spread to bones. He says he should keep the cancer under control for 4 to 5 years.He also mentioned having guys on Prednisone who report never feel better, I think we still have some left from when the can was on it.

I see him in a few days ,the insurance company say they will fund Abiraterone for two years after which the NHS should fund it. If I don't get on with it I can always stop.

Thanks Chris

User

Posted 07 Feb 2025 at 17:09

Hi, I start my 50mg of Bicalutamide today, zoladex in 2-3 weeks. Abiraterone in 3 months but a call from the insurance company put that in doubt. PSA now 13.4 , guess its getting serious now.

You can't accuse me of being inconsistent, I said at the start I wasn't having surgery ,I did. I said I wasn't have salvage RT ,I did. I definitely wasn't having long term HT ,I am.

Thanks for all the support you guys and gals give. Special thanks to CJ.

Thanks Chris

User

Posted 07 Feb 2025 at 18:12

Fingers crossed the HT gives you an easy ride.

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