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User
Posted 07 Feb 2025 at 18:22
Chris , you’re doing the right thing , but the right thing has to be done at your right time. You and I have fought so hard to maintain our QOL and quite rightly. There is no right or wrong time to select or reject treatments. It just has to feel right to you.

We are both 10 years now and others that have taken all the treatments early haven’t fared so well sadly. Just go with it buddy and I hope it works. I’ve had 4 years of injectable HT now but its efficacy is waning. Let’s hope it knocks your psa right back for a good while. And in true CJ style I just said no to upfront Enza or Abi so don’t worry too much. Keep in touch and keep well. Keep moving and eat what the hell you want 👍

User
Posted 10 Feb 2025 at 19:45
Sorry its reached the point of HT Chis as know you really wanted to avoid it. But here’s hoping it knocks back the PSA for many years to come

All the best

Bri

User
Posted 11 Feb 2025 at 16:27

I hope the HT and Abiraterone knock things back and that you’re QOL is still good.

Sorry you’ve reached the point these drugs are necessary. 

Ido4

User
Posted 11 Feb 2025 at 19:01
I hope the treatment works well for you Chris without to much effect from side effects.

Wishing all the best.

Cheers

Bill

User
Posted 12 Feb 2025 at 07:14

Hi Chris, 

Good luck with the HT, keep fighting. 

Kev.

User
Posted 12 Feb 2025 at 14:26

Best of luck Chris on the new regime. Let’s hope it works and for a very long time. 👍

Phil

User
Posted 12 Feb 2025 at 20:13

Hi Chris , it’s been a while . I know you don’t want to be starting meds now but as an example I have been on zoladex 10 years and abiraterone 9 years and next week I am running 250k in the Arctic on my 60th birthday . Life can be excellent on hormone drugs , hope it is for you as it has been for me . PSA was 342 in 2014 , today’s results 0.11 . Always rooting for you .

Edited by member 12 Feb 2025 at 21:02  | Reason: Not specified

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 12 Feb 2025 at 21:23

Kev , thanks for your reply, that is encouraging news on the side effects. The biggest problem at the moment is getting the logistics sorted. My insurance company ,GP and oncologist are three separate entities and are not joined up. 

My daily  exercise is about 45  minutes walking a day , I can see I am going need to put a bit more effort in, if the knee will permit it.

Thanks care.

Thanks Chris 

User
Posted 21 Feb 2025 at 19:44

Hi Guys, I had my first monthly zoladex yesterday morning (20/2/25).  I assume it is a slow release drug, but just wondered how long it might take to feel any effects. The injection was painless ,I skipped the numbing cream. I thought there might at least have been a slight twinge at the injection site.

Thanks Chris

Edited by member 21 Feb 2025 at 20:42  | Reason: Not specified

User
Posted 21 Feb 2025 at 23:08

Yes Chris, for a week or so you might think it doesn't do much but it kicks in quite strongly after that. As you've no doubt read, it's effects are different for everyone. I hope it's kind to you.

Jules

User
Posted 22 Feb 2025 at 06:56

The first injection takes a couple of weeks before it starts reducing your Testosterone.

I asked my GP why they used Zoladex, and they said it was because it caused the fewest injection site issues.

User
Posted 22 Feb 2025 at 16:36

45 minutes is good.  Just keep it steady, one injury can put you out of walking for weeks.  Sitting on a dining chair and standing up a few times is a good exercise as is climbing stairs.  But being outside is doubly good.

Good luck with your treatment.  Peter

User
Posted 22 Feb 2025 at 17:41
Chris you’ve done the right thing ok. I swear it can all be overcome and it’s not that bad. I know you believe me. It’s given me at least 4 more years from where I was and they’ve been full happy years with new activities. All best wishes to you ok

Chris

User
Posted 05 Apr 2025 at 10:41

Just a bit of update and a question.

For those not familiar with my history, surgery 2014 SRT 2017. Further 2 SABR x5 treatments in the last couple of years.

31/01/2025 PSA 13.4

7/2/2025 start 50 mg Bicalutamide for 28 days.

20/02/2025 first zoladex.

20/03/2025 changed to 3 month decapeptyl due to dispute about private and NHS care agreement.

Possibly starting Abiraterone or similar begining of may.

31/03/2025 PSA down to 0.89

PCUK nurse says 0.89 is good, just wondering what experience of PSA levels you guys have had after similar treatment.

 

User
Posted 05 Apr 2025 at 11:11
I eventually started Deca 4 yrs ago. My psa was over 1000. It nadired at 0.44 Chris. Has risen since to 0.75 but the trend is up. I declined abi or Enza based on QOL. Keep well mate
User
Posted 06 Apr 2025 at 17:25
Hopefully it will go lower given a bit more time I believe a less than 0.1 is an optimum response for HT. Don't forget to get your testosterone checked to make sure that has dropped to target.

User
Posted 06 Apr 2025 at 17:25
Hopefully it will go lower given a bit more time I believe a less than 0.1 is an optimum response for HT. Don't forget to get your testosterone checked to make sure that has dropped to target.

User
Posted 28 Apr 2025 at 07:50

Well today is the 11th anniversary of my prostate removal and the hope of a "cure". Now on decapeptyl and I don't think it is doing my mind any favours. Still not started whatever else they are going to give me.

Lots of people have come and gone since l joined this club, sadly some didn't have a choice. Take care of yourselves. 

Thanks Chris 

User
Posted 28 Apr 2025 at 08:09
I know it's been a rollercoaster since that day, and you've been so resilient; in addition, really supportive to others. You deserve something better. But anyway you seem to be unbeatable, Chris, so, please, stay strong and keep on going and, despite the inconvenience of this F**** beast, try to enjoy each day of your life Xxx

Best🙏

Lola

User
Posted 28 Apr 2025 at 08:12

Glad you're still with us after 11 years Chris. I hope you're still here for a lot longer yet!

Ian.

 
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