Not sure, advice please.

hi leila

we understand you will be devastated, is the cancer contained or has it spread out of the prostate, have you not be offered a biopsy to determine the Gleason score, this will help determine what the grading is of the cancer, this may lead on to having scans

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nidge

Hi Leila welcome to our site. I Find it so frustrating that we keep hearing of a GP playing lip service to men with a elevated psa results or not even doing the test when someone is presenting symptoms I would change GP When is his next appointment , has he been told his options . all the best Andy

It might be worth looking at the NICE guidelines to give you some guidance at to what you ARE ENTITLED TO EXPECT. Rising psa should be automatic referral, then biopsy if that's cler and it still rises you should get an MRI scan.   It will also give you guidance on your expectations now he has been diagnosed and knowledge is a great starting pint on a long journey. Good luck and pick the brains of the many on this site, they have years of experience and you don't feel lost in the maze of information and decisions.

http://www.nice.org.uk/Guidance/CG58

We had a similar experience with our gp. He sat on a well man check psa result of 6.7 for ten months, and only repeated the test when my husband attended for something completely unrelated. When the second result came back at 9.2, he said he wasn't worried, and suggested we could watch and wait if we wanted. As my father had already had Pca, I knew to say no to this!! Fortunate as my oh had a Gleason on 9. However, post op, he's gone out of his way to help- he has prescribed whatever we've requested.

With regard to your diagnosis. It's very similar to my fathers. He was diagnosed at 61, Gleason 7, psa 38, spread to seminal vesicles, no bone spread. Fourteen years on, he's just celebrated his 75th, and is well. He had RT, followed by HT. His psa is still 0.5, he has a bone scan every year and it's still clear. At his last appointment, his doctor said that it was unlikely he would die from Pca. There is plenty of light in the tunnel.

Louise x

Hi Louise

Your remarks about your dad have really encouraged me. I was diagnosed with locally advanced cancer in February this year. PSA was 41.7, with spread to right hand seminal vesicle, and Gleason score of 4+3. I am on hormone therapy for two and half years and have had 39 sessions of radiotherapy. My latest PSA was 0.4, but hopefully it will come down further.

                                                           Best wishes

                                                                          Richard