Newbie looking for advice!

hi.jack sorry th hear that,i am locally advanced but there is a lot of guys on here with a similiar situation and im sure will help to settle your mind.

hi jack

I also have metastatic prostate cancer, was diagnosed gleason 9, psa was 20, given a prognosis of 3 years, this happened in march this year,

started with Hormone treatment on zoladex, am also on docetaxel chemo for 6 sessions

then will just be on hormone therapy

my psa is now 0.015

was in total confusion at one point, so decided only way to deal with this is up front, so I have been selling pin badges at work, talking to men making them aware of this cancer, trying to keep doing my running, leading as normal life as possible

when I started chemo stayed at work for as long as I could but the fatigue was getting to me so have stopped work till chemo finished

nobody will ever understand how you feel, people will say stay positive I hate this word what do they think you are doing, but they don't know what to do or say, I will tell people their is nothing you can say or do just be their when I need you

you will find out who your friends are I am surrounded by them

I found talking about my self was fine as soon as asked about family that was it crack up every time so also said when asked how are you

'can talk about me all day please don't ask re family'

the hormone treatment I found could just break down in tears at anytime, not as bad now

I hope this helps

if you want sent me a private message I don't mind

regards

nidge

Keep posting how you are my friend

Kev

Hi Richard

Sorry that you are having to be a member on this site but if it is understanding that you want then you are in the right place and as you can see there are lots of folk in the same or similar situation, just at a different stage, but the advice that can give will be so helpful to you

I am fortunate to have contained PCa and do not know how you must be feeling but completely understand.

Try to stay positive and extract the good things from wherever you are and whatever this crap disease throws at you.

I hope you have someone to share your thoughts with but if not then we are all here to support you.

Regards Chris/Woody

Life seems different upside down, take another viewpoint

Hello Richard

I also have metasticised PCa. Briefly I was diagnosed in December 2014 and started treatment in January with psa 235 and was told I could only have HT. I never asked about prognosis and still don't really want to know yet.
I also went onto a Stampede Trial and am taking enzalutamide with the Prostap.
Psa has been down at under 0.1 now for quite a while and apart from regular hot flushes and bit of fatigue I'm ok
My next oncologist appt is January so I'm hoping for another good result.

I know everyone is different but some things seem to work without too much effect on quality of life.

I'm also 70 in January 2016 and looking forward to a lovely Christmas.

I hope you can like me postpone your worries until after Christmas and then take it day by day.

I know and understand what you're going through and wish you well

Paul

Just wanted to wish you well with the abiraterone. My dad seems to be following a similar path- hormone therapy started in August which got his psa down from the hundreds to under 1 but in December it was over 100 again. Abiraterone and prednisolone started end of January following repeat bone and mri scans. His next consultation is on Thursday. I, too, have read that abiraterone can take a while to kick in. He is also continuing the monthly hormone injections. He is still very active although definitely sleeping more in the evenings and he does get the hot flushes. He is not one to speak about how he is feeling or to complain so difficult to know how the side effects are affecting him really.