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User
Posted 17 Dec 2015 at 12:49
Hello everyone, I have not been on the site for some time due to complacency and needing a break from stressing about my husband's pca . I feel much like a taker who gained support and then left but I can assure you my gratitude and admiration was real . At his 9 month post operative review his psa has risen from 0.01 to 0.04 so I predict further treatment may be needed. I have had a few months of putting it at the very back of my mind which has been wonderful but alas the old anxiety has returned and just in time for Christmas as well. Georgina
User
Posted 17 Dec 2015 at 13:14

Hello Georgina and welcome back.

Never feel the need to apologise for absence or like a taker

We all have our own way of dealing with things, especially PCa.

Even though your husband's PSA is rising, try and put it to the back of your mind and enjoy Christmas if you can.

It's the time of year when we can make memories and look back on them together (many!!) years down the line.

We can't control the winds - but we can adjust our sails
User
Posted 17 Dec 2015 at 14:06

Hi Georgina,

As Johsan say's, no need for apologies for being absent on this site....we all have lives to lead, and we all deal with issues that may arise  in our own way.

Minute PSA fluctuations have been discussed on here by a few very knowledgeable 'old hands' in the past. 

Although I can fully understand your anxiety regarding what is a very small  PSA rise of 0.02 ( I would feel anxious if my PSA started to rise also ) ......it is regarded by the medics I believe as no cause for concern at this stage...... 

There have been a number of reasons given that may explain these very small rises...including equipment tolerances / calibration / variation ....even trauma /exercise etc....

Hopefully the next PSA test will show that the level has returned to the previous readings of 0.01 and you can relax again..

Being regularly monitored means that any significant rise in PSA will be caught early and appropriate action can be taken in good time.

Try to put all this to the back of your mind for the time being ( easier said than done I know )

Enjoy your Christmas

Best Wishes

Luther 

User
Posted 17 Dec 2015 at 16:24

Take all you need !! You don't have to give back. It's not in the rules :-))
I really wouldn't be panicking with those results. Honestly. The nature of the disease causes constant worry , even to those essentially cured. I'd be really happy in your shoes to have a great worry-free Christmas , and then take action after the next PSA maybe in 3 months time. You might find its ok.
Best wishes and thoughts
Chris

User
Posted 17 Dec 2015 at 22:28
I second that from Chris don,t worry about being absent .

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 18 Dec 2015 at 11:09
Georgina

welcome back, as others have said no need to apologise for being away for a while.

The rise in your Husband's PSA is tiny and still 25 times less than a whole point and probably 250 - 500 times less than when a clinician might want to take further action. I know any rise no matter how insignificant can cause anxiety even fear, so expressing that is important for you. There are of course other explanations for the slight increase. A different lab or machine to complete the analysis, any slight infection, riding a bike pre test and the one I would love to see every man on here be able to say, orgasmic activity in the days preceding the test.

Have a lovely Christmas down under,

best wishes as always

xxx

Mo

User
Posted 19 Dec 2015 at 08:26
G

After 12 months at 0.03 my PSA went to 0.06 at 18 months, like you I started to worry I then went to 0.04 and at the moment 0.05, my consultant is not worried and has patients who rise to 0.1 and have stopped at that for years.

As others have said we are taking small amounts.

Thanks Chris

Show Most Thanked Posts
User
Posted 17 Dec 2015 at 13:14

Hello Georgina and welcome back.

Never feel the need to apologise for absence or like a taker

We all have our own way of dealing with things, especially PCa.

Even though your husband's PSA is rising, try and put it to the back of your mind and enjoy Christmas if you can.

It's the time of year when we can make memories and look back on them together (many!!) years down the line.

We can't control the winds - but we can adjust our sails
User
Posted 17 Dec 2015 at 14:06

Hi Georgina,

As Johsan say's, no need for apologies for being absent on this site....we all have lives to lead, and we all deal with issues that may arise  in our own way.

Minute PSA fluctuations have been discussed on here by a few very knowledgeable 'old hands' in the past. 

Although I can fully understand your anxiety regarding what is a very small  PSA rise of 0.02 ( I would feel anxious if my PSA started to rise also ) ......it is regarded by the medics I believe as no cause for concern at this stage...... 

There have been a number of reasons given that may explain these very small rises...including equipment tolerances / calibration / variation ....even trauma /exercise etc....

Hopefully the next PSA test will show that the level has returned to the previous readings of 0.01 and you can relax again..

Being regularly monitored means that any significant rise in PSA will be caught early and appropriate action can be taken in good time.

Try to put all this to the back of your mind for the time being ( easier said than done I know )

Enjoy your Christmas

Best Wishes

Luther 

User
Posted 17 Dec 2015 at 16:24

Take all you need !! You don't have to give back. It's not in the rules :-))
I really wouldn't be panicking with those results. Honestly. The nature of the disease causes constant worry , even to those essentially cured. I'd be really happy in your shoes to have a great worry-free Christmas , and then take action after the next PSA maybe in 3 months time. You might find its ok.
Best wishes and thoughts
Chris

User
Posted 17 Dec 2015 at 22:28
I second that from Chris don,t worry about being absent .

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 18 Dec 2015 at 01:15

Thanks everyone, it is reassuring to be back to a place where none of us would really choose to be. I see some of you have good news posts others not so good but as usual brave and resilient, something I can only aim for. Cheers Georgina

User
Posted 18 Dec 2015 at 11:09
Georgina

welcome back, as others have said no need to apologise for being away for a while.

The rise in your Husband's PSA is tiny and still 25 times less than a whole point and probably 250 - 500 times less than when a clinician might want to take further action. I know any rise no matter how insignificant can cause anxiety even fear, so expressing that is important for you. There are of course other explanations for the slight increase. A different lab or machine to complete the analysis, any slight infection, riding a bike pre test and the one I would love to see every man on here be able to say, orgasmic activity in the days preceding the test.

Have a lovely Christmas down under,

best wishes as always

xxx

Mo

User
Posted 19 Dec 2015 at 06:54

Thanks Mo, it is a 40 degree day here today in Wangaratta. I know I am over reacting so thank you for your calming and reassuring words. I am glad to be back on . I have missed you all.. Cheers Georgina

User
Posted 19 Dec 2015 at 08:26
G

After 12 months at 0.03 my PSA went to 0.06 at 18 months, like you I started to worry I then went to 0.04 and at the moment 0.05, my consultant is not worried and has patients who rise to 0.1 and have stopped at that for years.

As others have said we are taking small amounts.

Thanks Chris

User
Posted 18 Jan 2016 at 22:35

Hi all, today we went to the practice nurse for education on the caverject injection. Today's injection was 5 units and worked about 50 per cent so probably should have started at a bit higher dose. Viagra did nothing as expected because there was no nerve sparing . Still there is light at the end of the tunnel as the dose of caverject can be a lot greater I believe. My OH has to ring the nurse and inform her of today's result .

Cheers Georgina

User
Posted 19 Jan 2016 at 09:15

Good luck with it Georgina.

Hope you get the dose sorted !!

We can't control the winds - but we can adjust our sails
 
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