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Hello from a newbie

User
Posted 22 Dec 2015 at 15:48

Hi everyone.

I wanted to post here, because I've been reading this forum obsessively since my husband got diagnosed with PCa earlier this year. I found it incredibly useful to read all your stories, not to mention all the research that you'd done. 

So in the hopes that my husband's story gives some insight and light to anyone newly diagnosed, here it is:

Husband diagnosed aged 47. Went to GP for a diabetes test, came back with PC.

Not quite. Came back with raised PSA - had 3 or 4 more PSA tests, all of which were rising - around about 10.

Referred for a biopsy.
Results - 1 core of 6 positive for PCa. Oncologist and urologist a bit non-plussed by results - all showing v.v.v.v. small tumour. So why PSA so high?

MRI showed large anterior tumour - bugger  - so opted for radical da vinci surgery.

8/10/15 surgery. All went well, tumour removed and 100% nerve sparing. Surgeon very pleased. Husband suffering from severe abdominal pain but OK. Spent 2 days in hospital.

22/10/15 (or thereabouts) catheter removed. 90% continence
AND erections. OK for sex!

And now some bad news. 10/11/15 histology. Tumour was large and had 1 focal breach, with a very small positive margin. Bugger. It had all been going so well.

11/11/15 PSA 0.03 - but there's hope yet!?

Latest News

22/12/15 PSA 0.01!!

 

As you can see, we've just had some very good news, so we are happy. We are all aware that this is a long road, but are both living in the moment. Today, he's cancer free. Tomorrow might be different, but why worry?

 

I wish you all a very Merry Christmas. I won't be posting much over the holidays now, and I'm a real lurker (I don't get involved in discussions much) but felt the need to give our story to you all.  I hope you don't mind, and thank you so much for being here. 
User
Posted 22 Dec 2015 at 21:48

Hi welcome to the group great news on latest PSA .Andy

User
Posted 22 Dec 2015 at 22:04

Hello Marie,

Thank you so much for posting. I am sure that your message will inspire those among us who are a little despondent and will give a lift to those who can't see the light at the end of the tunnel.

Yes,live for today !!

Enjoy your Christmas

Best wishes

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 22 Dec 2015 at 23:04
Welcome to the forum, thanks for sharing your story and your wonderful attitude. Wishing you both a very merry Christmas

Love

Devonmaid

User
Posted 23 Dec 2015 at 03:51

Hi and welcome
As you say tomorrow is another day
Good news on the PSA

regards
Nidge
Happy Christmas

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

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User
Posted 22 Dec 2015 at 21:48

Hi welcome to the group great news on latest PSA .Andy

User
Posted 22 Dec 2015 at 22:04

Hello Marie,

Thank you so much for posting. I am sure that your message will inspire those among us who are a little despondent and will give a lift to those who can't see the light at the end of the tunnel.

Yes,live for today !!

Enjoy your Christmas

Best wishes

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 22 Dec 2015 at 23:04
Welcome to the forum, thanks for sharing your story and your wonderful attitude. Wishing you both a very merry Christmas

Love

Devonmaid

User
Posted 23 Dec 2015 at 03:51

Hi and welcome
As you say tomorrow is another day
Good news on the PSA

regards
Nidge
Happy Christmas

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 23 Dec 2015 at 08:15
Thank you for all your kind thoughts and messages. This is such a wonderfully supportive group. I wish you all a Merry Christmas.
 
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