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So lets get it sorted

User
Posted 16 Jan 2016 at 22:03
Hi
Not been on here very much recently. After being diagnosed researching and seemingly doing nothing else had to just take a step backwards from it

Still feel fit no symptoms but been advised to have treatment as cancer is in both halves of prostate

Decided not to go the removal route as age 55, cancer contained in prostate
So that left external beam and brachytherapy.
Rang the nurses on here who put me in touch with men who had had both treatments it did help talking to someone
Then discussed with consultant at doncaster about EBRT which would be done at Sheffield
Then had meeting at Leeds to discuss brachytherapy. Must admit had already started to lean towards this after doing research
Anyway after speaking to oncologist at Leeds being told was ideal candidate for brachytherapy
Decided there and then to go with this option

Go in on Wednesday to have seeds inserted
Told will be prescribed tamsulosin and cialis when needed

So here I am 😕

Edited by member 17 Jan 2016 at 10:04  | Reason: Not specified

User
Posted 17 Jan 2016 at 10:45

Hi Garry,


I know what you mean about having to take a step back, the philosophy is 'I've got cancer, but cancer hasn't got me'.  So there are times when it is really good to forget about it, and get on with living your life.


Best of luck on Wednesday.


:)


Dave

User
Posted 17 Jan 2016 at 10:50

Good luck with the Brachytherapy. Making that, the, decision as to what to do is the hardest part of the process, in my view.

Please let us know how it goes?

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 17 Jan 2016 at 11:29

Hello Garry
My husband had seed Brachytherapy in 2014, 58 seeds inserted.


All went well on the day. The only problem initially was severe constipation so try and prevent that before you go in and also get something ready for afterwards. ~(Dolcolax, Fybogel etc) though nothing drastic.


Take an incontinence or sanitary pad with you and also tight fitting pants as it will give confidence for the journey home. There will likely be some blood in your urine and semen for a while so be prepared for that.


John wasn't allowed home until he could pass urine and a certain amount at that. Be careful as his stream was all over the place and it made a mess of the hospital loo ! They were quite unfazed by it saying it was perfectly normal (might have been a good idea to warn him then eh !)


He was on Tamsulosin for a while and always carries some with him but hasn't taken it on a regular basis for ages.


ED wise there were some issues (but he was over 70 and we had started to have them anyway which could have been more age related than cancer related). You are a lot younger so fingers crossed


We have Sildenafil and it works for us although you have to live with the fact that intimacy is no longer as spontaneous as it was in our younger day. Having said that, there is the odd occasion when it isn't needed at all !!


Good luck for Wednesday. You've made your choice, hard as it was.


All the best
Sandra

Edited by member 17 Jan 2016 at 11:30  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 18 Jan 2016 at 21:42
Thanks for replies
Will take on board the tips.
Have started making list of what to take and will now add milk bottle - never thought of needing to pee on way home☺

Hopefully side effects will not be too bad and life can return to normal pretty quickly
Seems strange feeling I am one of the lucky ones but realise I am when i read of others on the forum

So let's get this show on the road and get this thing beat 😠
User
Posted 19 Jan 2016 at 06:36

hi garry
all the best for tomorrow, you are going to do just great, and you need to recover quick to take the dogs out up clumber

regards
nidge

run long and prosper
'pooh how do you spell love'
'piglet you dont spell love -you just feel it'
User
Posted 19 Jan 2016 at 09:12

Originally Posted by: Online Community Member
Thanks for replies
Will take on board the tips.
Have started making list of what to take and will now add milk bottle - never thought of needing to pee on way home



Just remember what I advised about the aim. it may  be well off so take a wide mouthed receptacle just so you don't make a mess of the car!!


 


All the best for a successful outcome

We can't control the winds - but we can adjust our sails
User
Posted 03 Apr 2016 at 17:34
Good news Garry long may it continue jx
User
Posted 03 Apr 2016 at 18:59
That is good news. The psa does come down slowly to start. My other half had brachy too. Jan 2015. He had a lot more problems than you. He is still on tamsulosin, I don't think he'll ever be able to come off it. He had no symptoms or peeing problems before treatment. Just one of those things I think. One year on psa is 0.6 (4.9 before brachy)
All the best to you.
User
Posted 03 Apr 2016 at 19:16

Hi Garry, glad everything is working out well and you probably feel that you have made the right choice of treatment. Keep that PSA level on the downward route.

Best wishes, Chris/Woody

Life seems different upside down, take another viewpoint

User
Posted 03 Apr 2016 at 20:24

Best wishes Garry and well done. Long may the PSA drop.
Chris


If life gives you lemons , then make lemonade
User
Posted 03 Apr 2016 at 21:20
Garry,

Always good to hear good news.

Best wishes
John
Show Most Thanked Posts
User
Posted 17 Jan 2016 at 10:45

Hi Garry,


I know what you mean about having to take a step back, the philosophy is 'I've got cancer, but cancer hasn't got me'.  So there are times when it is really good to forget about it, and get on with living your life.


Best of luck on Wednesday.


:)


Dave

User
Posted 17 Jan 2016 at 10:50

Good luck with the Brachytherapy. Making that, the, decision as to what to do is the hardest part of the process, in my view.

Please let us know how it goes?

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 17 Jan 2016 at 11:29

Hello Garry
My husband had seed Brachytherapy in 2014, 58 seeds inserted.


All went well on the day. The only problem initially was severe constipation so try and prevent that before you go in and also get something ready for afterwards. ~(Dolcolax, Fybogel etc) though nothing drastic.


Take an incontinence or sanitary pad with you and also tight fitting pants as it will give confidence for the journey home. There will likely be some blood in your urine and semen for a while so be prepared for that.


John wasn't allowed home until he could pass urine and a certain amount at that. Be careful as his stream was all over the place and it made a mess of the hospital loo ! They were quite unfazed by it saying it was perfectly normal (might have been a good idea to warn him then eh !)


He was on Tamsulosin for a while and always carries some with him but hasn't taken it on a regular basis for ages.


ED wise there were some issues (but he was over 70 and we had started to have them anyway which could have been more age related than cancer related). You are a lot younger so fingers crossed


We have Sildenafil and it works for us although you have to live with the fact that intimacy is no longer as spontaneous as it was in our younger day. Having said that, there is the odd occasion when it isn't needed at all !!


Good luck for Wednesday. You've made your choice, hard as it was.


All the best
Sandra

Edited by member 17 Jan 2016 at 11:30  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 18 Jan 2016 at 17:24

Hi Garry


I just want to wish you well for your treatment on Wednesday. I too had Brachytherapy, also in Leeds, last January and apart from some slight problems for the first couple of months, mainly radiation cystitis, I have had few problems. Feeling great now, back to "normal" I would say. I still take Tamsulosin but only one per day, and maybe I have been very fortunate but I have never needed cialis or any other med's for ED, no problems at all in that department thankfully.


As I live in Doncaster I stayed in the "hotel" at the hospital the night before my treatment and went down at 7am for the preparations. Woke up around 1145am and discharged by 1pm. I would advise you to take a urine bottle with you for the journey home, or a 2ltr milk bottle, as we had to stop half way home as I couldn't hang on any longer. Oh, and a towel "just in case" and maybe a cushion for comfort in the car. Apart from that, all was fine and I am sure you will be the same.


Let us all know how it goes and good luck, not that you will need it.. If I can help anyway, any questions that may arise, do not hesitate to message me on here.


All the best


Alan


 

User
Posted 18 Jan 2016 at 21:42
Thanks for replies
Will take on board the tips.
Have started making list of what to take and will now add milk bottle - never thought of needing to pee on way home☺

Hopefully side effects will not be too bad and life can return to normal pretty quickly
Seems strange feeling I am one of the lucky ones but realise I am when i read of others on the forum

So let's get this show on the road and get this thing beat 😠
User
Posted 19 Jan 2016 at 06:36

hi garry
all the best for tomorrow, you are going to do just great, and you need to recover quick to take the dogs out up clumber

regards
nidge

run long and prosper
'pooh how do you spell love'
'piglet you dont spell love -you just feel it'
User
Posted 19 Jan 2016 at 09:12

Originally Posted by: Online Community Member
Thanks for replies
Will take on board the tips.
Have started making list of what to take and will now add milk bottle - never thought of needing to pee on way home



Just remember what I advised about the aim. it may  be well off so take a wide mouthed receptacle just so you don't make a mess of the car!!


 


All the best for a successful outcome

We can't control the winds - but we can adjust our sails
User
Posted 19 Jan 2016 at 10:57

Nidge just heading up there now to give the lunatics a good run☺
Johsan its alright its daughters car lol
Seriously will do that
Have told wife will have to sit down on toilet for a while so don't make mess and spray everywhere. She reckons I should have been doing that all our married life.A touch sarcastic I think lol(well maybe not ☺ )

User
Posted 19 Jan 2016 at 12:36

Today, was meant to be decision day for me to go the Rt route. However the consultant, who had previosly told me that it was Surgery or RT, has now told me I can have the High dose Brachythery, or high dose RT, as well. So am now in a dilema, as to which way to go as, I have not yet researched them as options.


I am currently at Broomfield Chelmsord Hospital, but have now been referred to Southend Hospital to further discuss the options, and now await the appointment.


I will be very interested to learn how your procedure has gone.


Thanks.


Dave. 

User
Posted 19 Jan 2016 at 16:48

Hi adidave
It is a difficult decision
Though don't know about the high dose brachytherapy.Is there a reason you can't have the low dose seed brachytherapy?

Will let you know how I get on

Garry

User
Posted 19 Jan 2016 at 19:56

Hi Dave,


I had the old classic RT back in 2009, it was then just referred to as radiationtherapy, aka EBRT (External Beam Radiation Therapy).


It involved daily trips to the hospital over 4-5 weeks, and the problem was essentially controlling the side effects, the doctors said that killing off the cancer was no problem, the tricky bit of the treatment was not to kill off surrounding tissues in the bowels and bladder etc.  Which in turn led them to limit the dosage of radiation therapy to the minimum they believed necessary to kill the cancer, and thereby minimise side effects.


The side effects were loose bowels etc and these tended to peak in the week or two following treatment.


Like most guys I was also on simultaneous HT (Hormone Therapy), it is known technically as adjuvant and neoadjuvant hormone therapy.  The theory being that giving simultaneous HT maximised the effectiveness of the RT.


Feeling tired and lethargic are classic side effects of both RT and HT, so I didn't know which treatment was responsible for my ability to doze off in the afternoon.


In my case the cancer came back a couple of years after treatment.  Whether this was because the initial treatment failed, or because as I was left with a functioning prostate, it developed a whle new tumour, is debatable.   


Anyway I fitted the criteria for salvage treatment and last year had (HDR) High Dose Rate, Brachytherapy.  This only involved two trips to hospital, all be it 3 day events with overnight stays.  In theory because the radioactive probes are inserted into the tumour, then there is less risk of radiation effecting the surrounding tissues.


I found the side effects far easier, very little bowel problems and 3 months after treatment I was as right as rain.  I then went on to suffer from a prostate infection and what I believe is called radiation cistitis, which were unplesant, but now almost 12 months after treatment, they seem to be sorted and I am well on the way to what might not exactly be a full recovery, but is better than it was.


Whilst all of this was going on the local support group was raising funds for our local hospital to buy its own HDR Brachytherapy kit.  I understand (and I might be wrong) that the doctors believe that HDR brachytherapy is superior to EBRT and will ultimately become the default RT given to most all patients.


So best of luck in your deliberations, if I were in your shoes I would tend to choose HDR brachytherapy rather than EBRT, however as I have said I often get things wrong and there may be others who advise the opposite?


:)


Dave


  

User
Posted 21 Jan 2016 at 07:21

OK
So been and done it
105 seeds inserted.Told everything went well.No pain from implant area.But uncomfortable in back passage
This is due to bit of a bleed from prostate.Forming bruising between prostate and back passage.Again told perfectly normal nothing to worry about but is creating a bit of pressure on back passage so making it uncomfortable.
Given a codeine tablet while at hospital had me sweating and feeling bit dizzy but put this down to lack of food
No problem with going to toilet just slight delay but flow OK.
Been given tamsulosin but not took one yet
Woke up in night for toilet and again no problem just slight delay.
Second time woke up with dry throat so made a weak dilute squash.And drinking this now.
Feel OK ☺

Edited by member 27 Jan 2016 at 23:38  | Reason: Not specified

User
Posted 21 Jan 2016 at 07:44

I hope that all goes well for you. Just remember that this is a great site and much support is available from us all.
Keep positive.

User
Posted 21 Jan 2016 at 07:50

hi garry
good to hear from you, glad op went ok will I need a geiger counter for next time I see you

regards
nidge

run long and prosper
'pooh how do you spell love'
'piglet you dont spell love -you just feel it'
User
Posted 21 Jan 2016 at 09:17

Glad for you Garry that it's done and dusted (well almost !)

105 seeds - gulp

John must have had a very small prostate because I had read beforehand that it was normal to have 80 odd seeds implanted and he only had 58. I was so convinced they hadn't inserted enough I queried it with the consultant at the first post op meeting. He assured me it was enough.

You, at least, wont have that worry.

Hope all goes well from now on. Don't be surprised if you suddenly flake out with tiredness. It's likely to be the effects of anaesthetic and the stress of the day's activity. Don't forget, avoid constipation at all costs, especially with that pressure already on your back passage

Best of luck

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 21 Jan 2016 at 16:34

Nidge Many more seeds think I would light up☺

Sandra so far peeing normally so not making a mess ☺ but did drop to sleep this afternoon couldn't keep my eyes open
Journey home was OK no problems
Well day one of getting better
24 hours gone back passage tender not opened bowels yet
Peeing normally strong flow no sign of blood -up once in night
Took tamsulosin this morning but not noticed any change.Don't have to rush to loo

Know this will all change when radiation kicks in.

Garry

User
Posted 21 Jan 2016 at 20:50

Have noticed a strange glow over the west side of town tonight
Regards
Nidge

run long and prosper
'pooh how do you spell love'
'piglet you dont spell love -you just feel it'
User
Posted 03 Apr 2016 at 16:42

First PSA Result 7 weeks since brachytherapy

Down from 9.4 to 5.7 ☺

After 9 weeks stopped taking tamsulosin as no longer needed it.So things I think are looking good😀

User
Posted 03 Apr 2016 at 17:34
Good news Garry long may it continue jx
User
Posted 03 Apr 2016 at 18:59
That is good news. The psa does come down slowly to start. My other half had brachy too. Jan 2015. He had a lot more problems than you. He is still on tamsulosin, I don't think he'll ever be able to come off it. He had no symptoms or peeing problems before treatment. Just one of those things I think. One year on psa is 0.6 (4.9 before brachy)
All the best to you.
User
Posted 03 Apr 2016 at 19:16

Hi Garry, glad everything is working out well and you probably feel that you have made the right choice of treatment. Keep that PSA level on the downward route.

Best wishes, Chris/Woody

Life seems different upside down, take another viewpoint

User
Posted 03 Apr 2016 at 20:24

Best wishes Garry and well done. Long may the PSA drop.
Chris


If life gives you lemons , then make lemonade
User
Posted 03 Apr 2016 at 21:20
Garry,

Always good to hear good news.

Best wishes
John
User
Posted 04 Apr 2016 at 17:22

Thanks everyone
Things progressing nicely and I hope long may it continue☺
Do feel made right choice with treatment but realise I am one of the lucky ones to have this choice

 
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