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Squeaky Bum Time Again....

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User
Posted 08 Feb 2016 at 13:59

Hi everyone,

Just attended my 6 monthly review this morning...

I'm very pleased to say that my PSA level still remains stable at < 0.01 @ 20 months post op......... and breathe ...... Phew!

My continence still continues to improve, albeit very slowly despite various predictions that after 12 months that's as good as it will get.

For this reason I have decided to hold back on my consultant's offer of a referral for a possible sling implant for the time being.
Unless things deteriorate, or I'm struggling to cope ( I only use 1 light pad per day now ) I will access the situation in 6 months time when I go back for my review. The offer of referral will be still on the table at any time in the future....so no rush methinks.

On the ED front, once again only a slight improvement, but the main man has prescribed me Muse?? 500mg.
Apparently it's the same active chemical as Vitaros cream but in pellet form?

The main man says that he is disappointed with the Vitaros cream results he has seen and feels that I will be better off trying Muse instead..... we shall see.

The next step if no more improvement seen on the ED front will be injections which he will prescribe in 6 months time if I agree.
Meantime I still have me faithful old pump to use if all else fails. 

I do feel a little guilty posting this after reading of all the problems some others have to endure.... but just hope that this will offer some  encouragement to others who are perhaps a few months behind me on their respective journeys.

Luther


User
Posted 08 Feb 2016 at 13:59

Hi everyone,

Just attended my 6 monthly review this morning...

I'm very pleased to say that my PSA level still remains stable at < 0.01 @ 20 months post op......... and breathe ...... Phew!

My continence still continues to improve, albeit very slowly despite various predictions that after 12 months that's as good as it will get.

For this reason I have decided to hold back on my consultant's offer of a referral for a possible sling implant for the time being.
Unless things deteriorate, or I'm struggling to cope ( I only use 1 light pad per day now ) I will access the situation in 6 months time when I go back for my review. The offer of referral will be still on the table at any time in the future....so no rush methinks.

On the ED front, once again only a slight improvement, but the main man has prescribed me Muse?? 500mg.
Apparently it's the same active chemical as Vitaros cream but in pellet form?

The main man says that he is disappointed with the Vitaros cream results he has seen and feels that I will be better off trying Muse instead..... we shall see.

The next step if no more improvement seen on the ED front will be injections which he will prescribe in 6 months time if I agree.
Meantime I still have me faithful old pump to use if all else fails. 

I do feel a little guilty posting this after reading of all the problems some others have to endure.... but just hope that this will offer some  encouragement to others who are perhaps a few months behind me on their respective journeys.

Luther


User
Posted 08 Feb 2016 at 14:38
Hi Luther

It's always good to hear good news and it's certainly encouraging to hear things like this. It gives others hope.

Long may it continue

Best wishes

Arthur

User
Posted 08 Feb 2016 at 15:03
Luther,

Good to hear. Onward and upward.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 08 Feb 2016 at 15:50

Originally Posted by: Online Community Member


1.  I'm very pleased to say that my PSA level still remains stable at < 0.01 @ 20 months post op......... and breathe ...... Phew!

2.  My continence still continues to improve, albeit very slowly despite various predictions that after 12 months that's as good as it will get.

3.  On the ED front, once again only a slight improvement, but the main man has prescribed me Muse?? 500mg.

4.  I do feel a little guilty posting this after reading of all the problems some others have to endure.... but just hope that this will offer some  encouragement to others who are perhaps a few months behind me on their respective journeys.

Luther

 

Hi Luther,

1.  We are really pleased as well for you and for others.

2.  The suggestion used to be that 24 months down the line was "as good as it gets" for any recovery, not true in my case, not true for many others I suspect, still improving 2 years 8 months later.  Don't give up hope.  Keep trying things.  Experiment.

3.  See above re as good as it gets, exercise as often as you can, get that blood flowing.  Experiment.  Play.

4.  Don't feel guilty, we need some good news and those of us who are not doing as well, like to see that someone is beating the disease.

Congratulations again.

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 08 Feb 2016 at 16:36

Hi Luther,

Well Done.

Pleased the results are looking good. 

Long may it continue.

All the Best,

Steve

User
Posted 08 Feb 2016 at 16:57

Luther

Good news and long may it continue.

I went straight onto 1000mg muse with mixed results then dropped to 500mg then tried to use three quarters of the 1000mg, Still experimenting still having fun. 

 

Thanks Chris

 

User
Posted 08 Feb 2016 at 17:16
Luther

I know several men who feel some guilt at posting good or great news, I think I can understand that to some degree, however I personally think it helps everyone to read positive or good news. I rejoice every time I read that a Man has had even a minor success with continence or ED issues, every bit as much as I do when someone reaches the definition of being in remmission or "cured" and every bit if not more when someone who has a terminal prognosis posts that they are still winning in their battle to stay alive.

I am so happy that you are the bearer of some good news

all the very best

xxx

Mo

User
Posted 08 Feb 2016 at 17:24

Good news indeed Luther and please don't feel guilty.
All positive news is a boost to all of us but especially those browsing the forum who are new here and need to hear that life after RP is possible.

Well done.

We can't control the winds - but we can adjust our sails
User
Posted 08 Feb 2016 at 17:33

It's a big Congrats from me , whatever any of us are going through. It's not a competition haha. Celebrate !!
All the best
Chris

User
Posted 08 Feb 2016 at 17:49

Great news Luther, and I'm glad to hear it as many times as possible! Thanks for posting!

It's my squeaky bum time on 23rd of this month, so I'll report whether it's good, bad or ugly.

Pablo :-))

User
Posted 08 Feb 2016 at 20:41
Hi Luther

I am very pleased to hear your good PSA result. Long may this be the case.

Good luck with the muse!

Best wishes

User
Posted 08 Feb 2016 at 22:21
Fandabidisi with your results what can I say superb, way to go, The point of the forum is to balance and to give a shoulder for those in need of help, you were in need of help and know you are one of the shining stars that is rising above that need.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 09 Feb 2016 at 00:04

Great news - never apologise for being alive & well!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Feb 2016 at 00:31

Originally Posted by: Online Community Member

Great news - never apologise for being alive & well!

Indeed.

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 09 Feb 2016 at 06:16

hi luther

congrats from me also on the results, good or bad keep the posts coming we are just a nosey bunch really, sometimes I think we are like Les Dawson when he used to do his impersonation of the old lass cissie and ada http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

 

regards

nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 09 Feb 2016 at 06:44
Nice one Luther, keep those great results coming. Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 21 Feb 2016 at 09:53

Thanks for posting. Great to read good results.

User
Posted 22 Feb 2016 at 07:31
Great news Luther.

It's always fab to hear from you- we are indeed just a few months behind you, and your experience seems to be very close to my oh, so good news is welcome

Louise x

Show Most Thanked Posts
User
Posted 08 Feb 2016 at 14:38
Hi Luther

It's always good to hear good news and it's certainly encouraging to hear things like this. It gives others hope.

Long may it continue

Best wishes

Arthur

User
Posted 08 Feb 2016 at 15:03
Luther,

Good to hear. Onward and upward.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 08 Feb 2016 at 15:50

Originally Posted by: Online Community Member


1.  I'm very pleased to say that my PSA level still remains stable at < 0.01 @ 20 months post op......... and breathe ...... Phew!

2.  My continence still continues to improve, albeit very slowly despite various predictions that after 12 months that's as good as it will get.

3.  On the ED front, once again only a slight improvement, but the main man has prescribed me Muse?? 500mg.

4.  I do feel a little guilty posting this after reading of all the problems some others have to endure.... but just hope that this will offer some  encouragement to others who are perhaps a few months behind me on their respective journeys.

Luther

 

Hi Luther,

1.  We are really pleased as well for you and for others.

2.  The suggestion used to be that 24 months down the line was "as good as it gets" for any recovery, not true in my case, not true for many others I suspect, still improving 2 years 8 months later.  Don't give up hope.  Keep trying things.  Experiment.

3.  See above re as good as it gets, exercise as often as you can, get that blood flowing.  Experiment.  Play.

4.  Don't feel guilty, we need some good news and those of us who are not doing as well, like to see that someone is beating the disease.

Congratulations again.

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 08 Feb 2016 at 16:36

Hi Luther,

Well Done.

Pleased the results are looking good. 

Long may it continue.

All the Best,

Steve

User
Posted 08 Feb 2016 at 16:57

Luther

Good news and long may it continue.

I went straight onto 1000mg muse with mixed results then dropped to 500mg then tried to use three quarters of the 1000mg, Still experimenting still having fun. 

 

Thanks Chris

 

User
Posted 08 Feb 2016 at 17:16
Luther

I know several men who feel some guilt at posting good or great news, I think I can understand that to some degree, however I personally think it helps everyone to read positive or good news. I rejoice every time I read that a Man has had even a minor success with continence or ED issues, every bit as much as I do when someone reaches the definition of being in remmission or "cured" and every bit if not more when someone who has a terminal prognosis posts that they are still winning in their battle to stay alive.

I am so happy that you are the bearer of some good news

all the very best

xxx

Mo

User
Posted 08 Feb 2016 at 17:24

Good news indeed Luther and please don't feel guilty.
All positive news is a boost to all of us but especially those browsing the forum who are new here and need to hear that life after RP is possible.

Well done.

We can't control the winds - but we can adjust our sails
User
Posted 08 Feb 2016 at 17:33

It's a big Congrats from me , whatever any of us are going through. It's not a competition haha. Celebrate !!
All the best
Chris

User
Posted 08 Feb 2016 at 17:49

Great news Luther, and I'm glad to hear it as many times as possible! Thanks for posting!

It's my squeaky bum time on 23rd of this month, so I'll report whether it's good, bad or ugly.

Pablo :-))

User
Posted 08 Feb 2016 at 20:41
Hi Luther

I am very pleased to hear your good PSA result. Long may this be the case.

Good luck with the muse!

Best wishes

User
Posted 08 Feb 2016 at 22:21
Fandabidisi with your results what can I say superb, way to go, The point of the forum is to balance and to give a shoulder for those in need of help, you were in need of help and know you are one of the shining stars that is rising above that need.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 09 Feb 2016 at 00:04

Great news - never apologise for being alive & well!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Feb 2016 at 00:31

Originally Posted by: Online Community Member

Great news - never apologise for being alive & well!

Indeed.

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 09 Feb 2016 at 06:16

hi luther

congrats from me also on the results, good or bad keep the posts coming we are just a nosey bunch really, sometimes I think we are like Les Dawson when he used to do his impersonation of the old lass cissie and ada http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

 

regards

nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 09 Feb 2016 at 06:44
Nice one Luther, keep those great results coming. Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 21 Feb 2016 at 09:53

Thanks for posting. Great to read good results.

User
Posted 22 Feb 2016 at 07:31
Great news Luther.

It's always fab to hear from you- we are indeed just a few months behind you, and your experience seems to be very close to my oh, so good news is welcome

Louise x

 
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