Newbie but on my way..

User

Posted 28 Mar 2016 at 18:50

Just thought I would introduce myself.. Had Radical Open Removal 6 days ago and well on my way in post op recovery.

Diagnosis confirmed last October after 4 months investigations including RDE, MRI, CT, Biopsies.

T1c, Gleason 3+3, PSA 6.25 but rising since diagnosis.

Was on Active surveillance since October but could not cope and decided in that time to have the operation.

I am upbeat... now waiting for post op results, hopefully to tell me good news.

Edited by member 29 Mar 2016 at 12:02 | Reason: Not specified

User

Posted 28 Mar 2016 at 19:20

Good luck with it all!

User

Posted 28 Mar 2016 at 19:24

Hi, welcome to this site and if there is anything you need help with ask on here and you will get sound advice.

Best wishes with your treatment and recovery

Regards Chris/Woody

Life seems different upside down, take another viewpoint

User

Posted 28 Mar 2016 at 19:33

Hi KRO

It sounds as though you are feeling pretty up beat following your surgery which is great. Hope things will continue well for you but don' t overdo it as you need to give your body time to recover.

Keep us posted with your post op results.

Kind regards,

Kevan

User

Posted 28 Mar 2016 at 19:51

Welcome from me too KRO

We can't control the winds - but we can adjust our sails

User

Posted 31 Mar 2016 at 14:37

Trial without catheter today.

Catheter out, three wees, three scans, bladder emptying so no more tubes!

Small amount of dribbling - but expecting that.

PFME regime starts now.

User

Posted 31 Mar 2016 at 16:00

Hi KRO,

Welcome from me too.

It's great to get the catheter out, 10 days now for me, I too dribbled for a few days but now almost totally dry although I still wear a pad when out and about as I don't trust myself yet!!

Plenty of help and advice on this site which I have found invaluable and as Kevan says please take it easy. Best wishes with your recovery.

Regards

User

Posted 08 Apr 2016 at 18:17

Brilliant news.
Sounds like text book surgery on a cancer caught at the right time. And bundles could mean future fumbles. Best wishes for next psa
Chris

User

Posted 08 Apr 2016 at 19:23

Sounds like your upbeat about everything and I hope it all goes well for you.

Recover well !

Regards ,

John

User

Posted 08 Apr 2016 at 19:41

Kro

That all sounds good news hope your recovery goes well. Have you got all your penile rehabilitation appointments and treatment planned ?

Thanks Chris.

User

Posted 08 Apr 2016 at 19:43

So very pleased to hear that things are continuing well for you. Always nice to share good news and I hope the PSA test result will be good.

All the very best for the future.

Kevan

User

Posted 08 Apr 2016 at 20:35

Kro good news get positive but make sure you take it easy and don't over do it. Take care x

User

Posted 08 Apr 2016 at 20:39

Great news KRO,

Fingers crossed for a good psa result.

Cheers AL.

User

Posted 09 Apr 2016 at 05:07

hi KRO
great update heres to any follow ups being as good if not better

regards
nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User

Posted 09 Apr 2016 at 08:33

Hi KRO steady progress , congrats, with the rehab definitely keep it in hand! Oops sorry keep on top,of it.

Cheers Chris/Woody

Life seems different upside down, take another viewpoint

User

Posted 14 Apr 2016 at 15:43

That has got to be a relief, well done to you and your surgeon.

Thanks Chris

User

Posted 14 Apr 2016 at 19:24

Great news KRO all seems to be going good, keep doing the PFE's don't strain anything too soon.

Best wishes, Chris/Woody

Life seems different upside down, take another viewpoint

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User

Posted 28 Mar 2016 at 19:20

Good luck with it all!

User

Posted 28 Mar 2016 at 19:24

Hi, welcome to this site and if there is anything you need help with ask on here and you will get sound advice.

Best wishes with your treatment and recovery

Regards Chris/Woody

Life seems different upside down, take another viewpoint

User

Posted 28 Mar 2016 at 19:33

Hi KRO

It sounds as though you are feeling pretty up beat following your surgery which is great. Hope things will continue well for you but don' t overdo it as you need to give your body time to recover.

Keep us posted with your post op results.

Kind regards,

Kevan

User

Posted 28 Mar 2016 at 19:51

Welcome from me too KRO

We can't control the winds - but we can adjust our sails

User

Posted 31 Mar 2016 at 14:37

Trial without catheter today.

Catheter out, three wees, three scans, bladder emptying so no more tubes!

Small amount of dribbling - but expecting that.

PFME regime starts now.

User

Posted 31 Mar 2016 at 16:00

Hi KRO,

Welcome from me too.

It's great to get the catheter out, 10 days now for me, I too dribbled for a few days but now almost totally dry although I still wear a pad when out and about as I don't trust myself yet!!

Plenty of help and advice on this site which I have found invaluable and as Kevan says please take it easy. Best wishes with your recovery.

Regards

User

Posted 08 Apr 2016 at 17:52

Update: Post op follow up.

Two areas of cancer one Gleason 3+3 the other 3+4.

All contained within prostate and with good margins.

No evidence of cancer at surgery areas.

Both sets of nerves spared.

Next step PSA test at 3 months.. but looking good!

User

Posted 08 Apr 2016 at 18:17

Brilliant news.
Sounds like text book surgery on a cancer caught at the right time. And bundles could mean future fumbles. Best wishes for next psa
Chris

User

Posted 08 Apr 2016 at 19:23

Sounds like your upbeat about everything and I hope it all goes well for you.

Recover well !

Regards ,

John

User

Posted 08 Apr 2016 at 19:41

Kro

That all sounds good news hope your recovery goes well. Have you got all your penile rehabilitation appointments and treatment planned ?

Thanks Chris.

User

Posted 08 Apr 2016 at 19:43

So very pleased to hear that things are continuing well for you. Always nice to share good news and I hope the PSA test result will be good.

All the very best for the future.

Kevan

User

Posted 08 Apr 2016 at 20:35

Kro good news get positive but make sure you take it easy and don't over do it. Take care x

User

Posted 08 Apr 2016 at 20:39

Great news KRO,

Fingers crossed for a good psa result.

Cheers AL.

User

Posted 09 Apr 2016 at 00:33

Originally Posted by: Online Community Member

Kro

That all sounds good news hope your recovery goes well. Have you got all your penile rehabilitation appointments and treatment planned ?

Thanks Chris.

In hand.. Consultant on the case :-)

User

Posted 09 Apr 2016 at 05:07

hi KRO
great update heres to any follow ups being as good if not better

regards
nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User

Posted 09 Apr 2016 at 08:33

Hi KRO steady progress , congrats, with the rehab definitely keep it in hand! Oops sorry keep on top,of it.

Cheers Chris/Woody

Life seems different upside down, take another viewpoint

User

Posted 10 Apr 2016 at 21:28

Sounds good. So how did you get both nerves spared? My prospective surgeon has said one will have to go. I have Gleason 3+4 but it's one tumour in the middle (20%) of one side only, none on the outside, Stage 2a, no weeing issues, so I dont see why I can't have both spared.

Thanks

David

User

Posted 10 Apr 2016 at 22:13

Welcome, David.
I suspect your surgeon wants to get 'good clearance' on the side of the prostate with the tumour in. This will optimise the chances of them removing all the cancer. Prostate cancer has a nasty habit of having got further than scans and biopsies show!
Good luck with your treatment?
Henry

User

Posted 10 Apr 2016 at 22:25

Hi Henry,
Yes I agree but how come one person has both nerves saved when the cancer is in part of one side.....when one of mine will go! ? I dont get how anyone gets both saved....if I dont!

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