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Newbie but on my way..

User
Posted 10 Apr 2016 at 22:28

?....and what is the experience of folks for ED for when only one nerve is saved...in a relatively young man of 56?! Is one nerve actually any good?

User
Posted 11 Apr 2016 at 00:12

Originally Posted by: Online Community Member

Hi Henry,
Yes I agree but how come one person has both nerves saved when the cancer is in part of one side.....when one of mine will go! ? I dont get how anyone gets both saved....if I dont!

Your consultant and other members of your medical team have had the benefit of seeing your scans, which we haven't. The surgeon is obliged to operate in a way that preserves tyour life and eradicates the cancer. Presumably, they are concerned enough about the siting of your tumour to believe that it isn't a good idea to leave that nerve bundle. To leave a nerve bundle intact could be likened to leaving the outer skin of the prostate - imagine that a cobweb is fixed to the outside of an apple and they are trying to remove the apple without disturbing the cobweb. That means leaving some of the apple-skin but as little of the apple white as possible.  

If leaving a nerve bundle behind means that there is a chance of any cancer being left behind, a responsible surgeon simply won't do it.

The science says that only having one set of nerves reduces the chance of erectile recovery. But not as straightforward as you might imagine - there are men who have full nerve-sparing but never regain erections, even with chemical / mechanical help. There are men who have non-nerve sparing and somehow recover. Men with some nerves may be impotent for the rest of their lives, may manage fine with help or may recover fully. See my 'one wife's story of ED' for John's experience - one bundle saved, lots of angst but full recovery of natural erections about 4 years post-op. Unfortunately, no cure though - the op didn't get it all so salvage treatment 2 years later and now holding our breath in case it has come back again. Possible reason for this? They left the nerve bundle on the side they believed was unaffected but once it was in a petrie dish it turned out there was far more cancer on the 'nerves saved' side than the 'nerves removed' side. 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Apr 2016 at 07:59
Hi David,

My original diagnosis was T1c Gleason 3+3 and with no previous symptoms. It was a bit of an "accidental" find after blood tests for another ailment.

After all tests biopsies and MRI, my consultant was confident that it was all contained and I opted for open surgery (as he prefers that for nerve sparing).

Are you thinking of having robotic surgery - as I believe that it may be more difficult to spare both sides using that method?

Oh... and post ops showed that 10% of prostate cancerous - yours at 20% and all in one side is probably quite different?

Edited by member 11 Apr 2016 at 08:04  | Reason: Not specified

User
Posted 14 Apr 2016 at 14:43
Got confirmation of post ops in post today.

Gleason 3+4 organ confined... pT2c Nx with all the margins negative.

Sildenafil on its way... :-)

User
Posted 14 Apr 2016 at 15:43
K

That has got to be a relief, well done to you and your surgeon.

Thanks Chris

User
Posted 14 Apr 2016 at 19:24

Great news KRO all seems to be going good, keep doing the PFE's don't strain anything too soon.

Best wishes, Chris/Woody

Life seems different upside down, take another viewpoint

 
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