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Will i never learn!

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User
Posted 07 Apr 2016 at 10:05

Morning;

 

I made the mistake of going onto the internet last night and googling things about Prostate cancer….. Big mistake, Will I never Learn!! - consequently never slept a wink, the OH did so I am grateful for that.

Wont be doing that again!

Tell me to  "step away from google" or are there any particular more upbeat articles I should look at?

 

Thanks all

 

 

 

 

User
Posted 07 Apr 2016 at 21:37

Don't know that I would agree entirely with the views expressed thus far but certainly care has to be exercised in what you accept and from what source. Statistics and treatment are often based on averages and may not relate to a specific individual and some people, particularly early on their cancer journey may think they are in a worse and more hopeless situation than they are. On the other hand for some that are selling miraculous cures there is usually unfounded over optimism. However, there is useful information available from well respected sources and sites. Also, there can be found details of treatments and trials that are available in the UK and abroad that many UK consultants won't mention, either because they can't offer them and/or they know very little about them. Great care needs to be exercised before taking alternative medicine and supplements and before doing so first run this by your own consult and where appropriate a highly regarded specialist for a further opinion. Some complimentary medicines work against normal treatments. Discuss concerns with your own consultants and dedicated nurses, this is generally a too complicated a disease to get individually applicable advice from the internet

Barry
User
Posted 07 Apr 2016 at 11:25
Did the same thing as you when oh was diagnosed,as you say soon learned not to! I now keep to articles and advice on this site,much more informative and genuine people who ate going through the same. Best wishes,after 2 years active surveillance my husband is just completing radiotherapy in the next 2 days,so far so good.
User
Posted 07 Apr 2016 at 11:27

Hi vj,

Not always a good idea to visit Dr Google..

Although, I bet most of us have done it, and probably still do!

Each one of us is unique with our own set of diagnostic stats.

Each one of us will respond or react differently to the various treatments available.

I've learnt over this last 2 years to be guided by my medical team,and if I need advice, support, or first hand experience aside of that I usually ask on here...

Hope you sleep better tonight

Best wishes 
Luther

User
Posted 07 Apr 2016 at 15:36

The biggest downside of googling after my diagnosis was the appearance of targeted adverts.

The were usually from the US and had no relevance to me but were a reminder every time I accessed the PC; reminding me of something that I didn't need to be reminded of.

Fortunately, I installed some adblocking software which sorted them out, thank goodness.

 

Dave

Not "Why Me?" but "Why Not Me"?
User
Posted 07 Apr 2016 at 17:06

One piece of advice given to us after the initial dx was by a friend who had survived leukaemia . He has a medical background and said don't look anything up at the early stages as you won't understand it and it will confuse you. Just be guided by your medical team. He was right. Once I was underway with confirmed diagnoses with a treatment plan and understood the terminology , I felt more confident in looking things up on the Internet and seeking advice on this site.

John

Show Most Thanked Posts
User
Posted 07 Apr 2016 at 11:25
Did the same thing as you when oh was diagnosed,as you say soon learned not to! I now keep to articles and advice on this site,much more informative and genuine people who ate going through the same. Best wishes,after 2 years active surveillance my husband is just completing radiotherapy in the next 2 days,so far so good.
User
Posted 07 Apr 2016 at 11:27

Hi vj,

Not always a good idea to visit Dr Google..

Although, I bet most of us have done it, and probably still do!

Each one of us is unique with our own set of diagnostic stats.

Each one of us will respond or react differently to the various treatments available.

I've learnt over this last 2 years to be guided by my medical team,and if I need advice, support, or first hand experience aside of that I usually ask on here...

Hope you sleep better tonight

Best wishes 
Luther

User
Posted 07 Apr 2016 at 12:09

Thank you both!
Sage advice.

Jen

User
Posted 07 Apr 2016 at 15:36

The biggest downside of googling after my diagnosis was the appearance of targeted adverts.

The were usually from the US and had no relevance to me but were a reminder every time I accessed the PC; reminding me of something that I didn't need to be reminded of.

Fortunately, I installed some adblocking software which sorted them out, thank goodness.

 

Dave

Not "Why Me?" but "Why Not Me"?
User
Posted 07 Apr 2016 at 17:06

One piece of advice given to us after the initial dx was by a friend who had survived leukaemia . He has a medical background and said don't look anything up at the early stages as you won't understand it and it will confuse you. Just be guided by your medical team. He was right. Once I was underway with confirmed diagnoses with a treatment plan and understood the terminology , I felt more confident in looking things up on the Internet and seeking advice on this site.

John

User
Posted 07 Apr 2016 at 21:37

Don't know that I would agree entirely with the views expressed thus far but certainly care has to be exercised in what you accept and from what source. Statistics and treatment are often based on averages and may not relate to a specific individual and some people, particularly early on their cancer journey may think they are in a worse and more hopeless situation than they are. On the other hand for some that are selling miraculous cures there is usually unfounded over optimism. However, there is useful information available from well respected sources and sites. Also, there can be found details of treatments and trials that are available in the UK and abroad that many UK consultants won't mention, either because they can't offer them and/or they know very little about them. Great care needs to be exercised before taking alternative medicine and supplements and before doing so first run this by your own consult and where appropriate a highly regarded specialist for a further opinion. Some complimentary medicines work against normal treatments. Discuss concerns with your own consultants and dedicated nurses, this is generally a too complicated a disease to get individually applicable advice from the internet

Barry
 
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