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A New Chapter

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User

Posted 09 Mar 2019 at 01:34

Hi Bazza,

Thanks for the useful advice. I've just had the date for my next oncology meeting come through, the 14th May so I will definitely discuss the possibility of what you suggested.

Hope the rest of your chemo goes well

Steve

User

Posted 19 May 2019 at 03:47

Hi,

This week saw the results of my latest PSA Test come through when I saw the Oncologist: 2.6, up from 1.9 in March.

The rise was expected by the onco, who's happy for me to continue just on Zoladex until I reach double figures when she'll try adding Bicalutamide too.

Suffering badly from fatigue just now which is very much due to the HT but have no choice, it will be a lifelong treatment.

Steve

User

Posted 19 May 2019 at 07:45

Hi Steve,

Sorry to hear your results have risen again, I tried to message you but your inbox is full.

Arthur

User

Posted 19 May 2019 at 07:51

Thinking of you, Steve

User

Posted 19 May 2019 at 09:54

Sorry to read your latest. From my HT times not worrying about low energy levels lessened the stress. Just go with the flow.

Keep strong

Ray

User

Posted 19 May 2019 at 10:05

Lack of energy is the worst side-effect of HT for me. A couple of weeks ago I went on a photographic holiday in Yorkshire, and walks which before my HT started I wouldn't even have been been breathing heavily after, left me an absolutely quivering wreck. It's not nice at all, although I know it's a vital part of my treatment. As others have said, I think you just have to accept that it's "the new you" and go with the flow.

All the very best,

Chris

User

Posted 19 May 2019 at 20:07

Sorry to read this Steve. Thinking of you.

Ido4

User

Posted 28 May 2019 at 20:34

Hi,

Had a phone call from a doctor this afternoon which really shook my confidence in my GP surgery.

He phoned me up to express concern that the results from recent blood tests showed that my testosterone level was only 0.4, the normal range being 7 to 31.

Shocking news..... to someone not on hormone treatment, but when I told him I was on Zoladex for my cancer treatment, he apologised saying that he'd not noticed I had incurable prostate cancer.

I'm really going to make sure that any appointment I have there in the future , is not with him!

Steve

Edited by member 28 May 2019 at 21:11 | Reason: Not specified

User

Posted 28 May 2019 at 23:18

Very concerning Steve. It worries me that doctors are under so much pressure they don’t really know their patients.

When my PSA jumped from undetectable to 0.3 the GP who looked at my result ticked it as being in the normal range despite my prostatectomy.

I was furious that they didn’t read or know my background.

Hope you are dong ok back on the HT bus.

Ido4

User

Posted 28 May 2019 at 23:19

Steve, it was great to meet you on Friday. This forum feels like a giant second family, but still nothing beats meeting up face to face those whose contributions you follow.
Can I remind you about the info on the walk you were going to email me?
Obviously, this should have been a PM, but your inbox is full.

Cheers, Andrew

User

Posted 28 May 2019 at 23:51

Hi Andrew,

Great to meet up last Friday when our local support group were invited to tour the new Proton Beam Treatment facility just outside Reading. Very impressive but sad that it's only for private patients. Not really something I could really afford, and anyway, as I've already had RT to the Prostate it would probably be of no use in my situation.

I'll send the newsletter as soon as I can but thinking about it, they're all available on the group's website.

Steve

User

Posted 29 May 2019 at 06:18

It’s worrying when you read such things Steve. I was told my initial PSA of 22 was normal. Another experience at my surgery was when I requested a blood test form at reception and the surgery nurse who was there said I didn’t need a PSA test as I didn’t have a prostate

Our lives in their hands

Bri

User

Posted 29 May 2019 at 12:51

Unbelievable what happens at some GPs.

Hope you're well otherwise Steve.

User

Posted 29 May 2019 at 17:14

Hi Steve

Hope all is relatively okay. My GP insisted I still had a prostate following my RARP.

Thanks Chris

User

Posted 29 May 2019 at 20:20

Steve ... 😱

CC ... 😂🤦‍♂️

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 31 May 2019 at 01:36

Hi,

Having my latest Zoladex implant this morning (Friday). For the first time, I'm having it two days later than it should be done.

I have always been very careful, making sure it was always done on the correct day but this time I have put work first.

On Wednesday I had an important photo shoot in Bath, starting at 8am, and yesterday one in Cambridge starting at 8am. I'm always being told that I should put my health first but unfortunately, bills have to be paid.

I hope I've done the right thing.

Steve

User

Posted 31 May 2019 at 04:38

I cannot believe a slow release which is supposed to last 84 days would suddenly stop working on the 85th or 86th day. However, I have searched for such data in the past as I was curious how long you had to wait after the last injection before no more goserelin was being released, and no such data seems to be available - all testing seems to stop on the 84th day. The nurse doing mine said they are not permitted to administer even 1 day early, but to aim for a 5 day period from the 84th day, although I've not found any scientific evidence or manufacturer data to back that up. There is a graph of the release rates of the 4 week and 12 week doses on page 10 of this document: https://www.accessdata.fda.gov/drugsatfda_docs/label/2013/020578s034,020578s035lbl.pdf, but again not showing what happens on the days after 84th

It is interesting to note that the release profiles of the 4-week and 12-week Zoladex are completely different, with the 4 week peaking in the middle of the period, and the 12-week peaking (much higher) for the first 4 days. For administration to females, the 4-week seems to be required, but for males, there seems to be no preference between the 4-week or the 12-week.

User

Posted 11 Jun 2019 at 07:57

FIVE YEARS!!

Today is exactly five years since I received the news that was to change my life forever. I have Cancer.

Up until then I'd never been ill, apart from the usual coughs and colds etc. that everyone gets. I wasn't feeling ill when I received the news. It was so unbelievable that I could feel so well when I had, what could be, a life threatening illness, but now my life was going to change.

In the months that followed, my treatment started to wear me down with the side effects I encountered. A heart attack, five months later, reminded me that I wasn't as invincible as I used to feel I was. I had always thought those things happened to other people but I was so wrong. My confidence in everything was badly affected.

It's been a struggle at times but I have no complaints. I am very lucky despite finding out last year that my cancer had reoccurred and is now incurable.

After five years, in spite of everything, I'm still here and very grateful.

Steve

User

Posted 11 Jun 2019 at 08:14

Happy anniversary!! Keep up the the good fight!!

User

Posted 11 Jun 2019 at 08:40

My husband had to wait an extra three days for his injection due to the nurse being called away on the day his was due. It was fine and they said up to five days was ok.

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