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Postponed consultation

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User
Posted 21 Apr 2016 at 08:38
My OH had a CT scan on 26th March and he was booked for a meeting with his urologist on April 26th. Now he had a letter postponing his consultation until June 7th!

I know that the NHS are extremely busy. He is having 3monthly Zolodex and daily bicalutamide tablets. He has had a prostectamy, , radiotherapy and he has been diagnosed with small pelvic tumours plus a small lung tumour . But thankfully all has Ben held at bay since the hormone therapy.

The delay is worrying but maybe I tell him that if they had any concerns or needed to change his treatment then he would be called in earlier.

My question is should I contact his nurse or let sleeping dogs lie? Any thoughts?

User
Posted 21 Apr 2016 at 16:07

That's very worrying for you then - it does seem that his PCa is a rather determined version, doesn't it. I hope they get you an earlier appointment without you having to have too much of a tantrum :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 23 Apr 2016 at 16:33

Hi Blueytrew,

Does the letter say at who's request the consolation was postponed? The reason I ask is that I have had 2 appointments cancelled recently by the NHS or the NHS machine, and both letters have stated that the cancellation is due to my request. Which is incorrect. The NHS are busy but they should and do prioritise, so Cancer treatment should be pretty much high on the list.

I would not let anything lie, I would chase everything up with a telephone call and an email and maybe even a letter as well?  The record or content of a telephone call can be forgotten if someone is busy, but a letter and ;articulatory an email with a time date trace tends to focus the mind of the recipient, and prompt activity.

I would not let anything lie.

atb

dave

Edited by member 23 Apr 2016 at 16:35  | Reason: Not specified

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

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User
Posted 21 Apr 2016 at 10:08

I would chase it up.

I hope all is well but on the other hand, the new date may not have been chosen by

the consultant but someone lower down the line who may not be apprised of all

the facts

 

Dave

Not "Why Me?" but "Why Not Me"?
User
Posted 21 Apr 2016 at 11:55

I would chase it up. Sometimes the appointments are managed by an automated service which can't differentiate between someone with cancer and someone with a less pressing medical condition.

If they can't bring the appointment forward (perhaps the consultant is going to be away and only s/he can interpret the scans) then you could ask the GP for a PSA test just as a little reassurance that all is ticking along okay.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 21 Apr 2016 at 12:54

Thanks for your thoughts he did chase up the PSA results which were somewhat high, hence his nurse has been contacted to push for a much earlier appointment.

User
Posted 21 Apr 2016 at 16:07

That's very worrying for you then - it does seem that his PCa is a rather determined version, doesn't it. I hope they get you an earlier appointment without you having to have too much of a tantrum :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 23 Apr 2016 at 15:31
Two days and nothing from his nurse,looks like I'll have to go down the private route, maybe a private consultation will feed back into the NHS
User
Posted 23 Apr 2016 at 16:33

Hi Blueytrew,

Does the letter say at who's request the consolation was postponed? The reason I ask is that I have had 2 appointments cancelled recently by the NHS or the NHS machine, and both letters have stated that the cancellation is due to my request. Which is incorrect. The NHS are busy but they should and do prioritise, so Cancer treatment should be pretty much high on the list.

I would not let anything lie, I would chase everything up with a telephone call and an email and maybe even a letter as well?  The record or content of a telephone call can be forgotten if someone is busy, but a letter and ;articulatory an email with a time date trace tends to focus the mind of the recipient, and prompt activity.

I would not let anything lie.

atb

dave

Edited by member 23 Apr 2016 at 16:35  | Reason: Not specified

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 01 May 2016 at 10:05
After a number of emails both to his nurse and the hospital's patient liaison service he has now been moved. Forwards. The reason was because of the junior doctors strike so I guess it was an automatic entry . But my question is how many patients do the specialist nurses have on average?

I have often contacted her about various illnesses my OH. has had and she replies promptly, but this as a significantly longer period of time to rearrange the appointment I feel that I'm putting too much pressure on her especially if I have to resort to the liaison service.

 
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