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My dad x

User
Posted 28 May 2016 at 08:06

Viv, my Gleason was 3+4=7 and T2 staging. I was offered 2 years hormone therapy and radio therapy after three months because my prostate was too close to the rectum wall to be offered a prostectomy. There was the danger of either leaving cancer cells in the wall or breaking through into the rectum and creating all sorts of problems.

I personally would not have gone for the prostectomy if it had been offered to me, I did not want the side effects even though I have s/e's from HT and RT but hopefully short term.

Nobody mentioned Brachytherapy to me so do not know if it would have been an option if I had known about it.

Regards Chris/Woody

Life seems different upside down, take another viewpoint

User
Posted 28 May 2016 at 08:23

Hi Chris
Nothing seems straight forward eh ?
Good luck with everything
Keep us posted on your progress it gives hope to others, And vise versa I will too 👍🏼
Viv

The only time you should look back is to see how far you have come
User
Posted 28 May 2016 at 08:41
Viv,

I had the nuc med scan due to pain in my hip. It's the bone scan and confirmed that the pain I endure is long standing from another problem and not cancerous.

One tip re scans - a friend of mine told me to wear an eye mask as he knows that I suffer a little from claustrophobia. It really helped me and I had no problems coping with them.

My staging is T3a with a Gleason score of 5+4+3 , with my initial Psa level 33.5. Due to the locally advanced spread to the lymph nodes and seminal vesicle I was not eligible for surgery. I had 37 fractions of RT and will have had 36 months of HT by August 17.

Like Chris I'm not sure if I would have chosen a prostectomy even if I had been eligible. I have been happy with my treatment and I am hopeful that it will eventually proove to be curative.

Good luck to you all,

John

User
Posted 28 May 2016 at 10:04
Hi Viv,

Not sure if if its routine where I was treated I had MRI, biopsy followed by a bone scan. The hospital's bone scan area was call the department of nuclear medicine.

I think it included the MRI area as well.

Arthur

User
Posted 28 May 2016 at 12:33
V

Welcome to the site,nice to hear you are looking after Dad.

I had a biopsy followed by MRI scan a week later, a bone scan a couple of weeks later the a CT scan about three months later. My bone scan involved injecting me with a radioactive trace hence nuclear medicine and I assume that is pretty standard. CT scan also involved being injected with some sort of trace material. I waited four months from DX to op, as we were having a new robot installed, PCa is often described as slow growing so hopefully not need to rush decisions.

Thanks Chris

Edited to add PSA was 7.7 Gleason was 4+3.

Edited by member 28 May 2016 at 12:42  | Reason: Not specified

User
Posted 28 May 2016 at 12:42

Hi, the quick answer is that some hospitals would bone scan every man diagnosed while others would only bone scan if the scores were very high.

No reason to panic or start trying to second guess - as hard as it is, all you can do is wait for all the results.

Have a lovely weekend.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 28 May 2016 at 12:51

Hi everyone
Thx for sharing your journey so far, so much appreciated and will remember all the kind words and advice in the coming weeks and months to help my dad on his journey to hopeful recovery
Hope u are all enjoying the lovely sunshine (well in Newcastle it is anyway) everything seems that little bit better with a bit of sun on your face

Take care
Viv X

The only time you should look back is to see how far you have come
User
Posted 28 May 2016 at 23:53

Hi Viv! We're in a similar area and my fiance had the same approach as your Dad ie. PSA result, then biopsy, then a bone scan and MRI. Presuming that must be the protocol up here? I know first hand how nervewracking this wait is for you (seemingly endless!) it's horrible so I really feel for you. x

User
Posted 29 May 2016 at 21:26
Hi V

My own hubby had a PSA of 25 but a hard prostate on DRE so a bone scan./MRI was required and we made an appointment for two weeks after that and sadly, we got the horrible diagnosis of cancer spread, lymph and bone and a G score of 10. PSA seems to mean little in this disease but you do need the full works if potential spread outside the prostate is possible.

Good luck

Devonmaid

User
Posted 13 Jun 2016 at 13:41

Hi
My dad has recieved a call from the nurse this morning (I've not been eating and sleeping very well at all for the past 2 weeks waiting for this call, my dad neither) with my dads scan results, She said his CT scan looked fine and his bone scan too, although a few hotspots showed up in his back and fingers too which looked like arthritis,(my dads had a bad back for over 20 years) The team will discuss the best treatment at the Freeman hospital next week,
Does all this sound good ? Not sure if the consultant has seen the scans yet, but the nurse said they looked OK, so that's good enough for me

Viv x

The only time you should look back is to see how far you have come
User
Posted 13 Jun 2016 at 16:09

Hi Viv

I wouldn't have thought the nurse would have rung to give false hope so I'd take it as a positive until such time as it's contradicted.

It's all a horribly worrying time eh.

Best Wishes

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 13 Jun 2016 at 19:38

Hi Sandra
That's what I was thinking too so I'm going to stay positive, for now anyway
Thanks
Viv X

The only time you should look back is to see how far you have come
User
Posted 13 Jun 2016 at 21:27
V

It can be useful to get the scan reports if possible, they can show up other non cancer but age related conditions. For various reasons I did not get my CT scan report and spent six months being treated for reflux acid, when I eventually went for a new scan it came to light that the CT scan pre op had shown a number of gallbladder stones and sludge.

Thanks Chris

User
Posted 14 Jun 2016 at 06:00

Hi
Thanks for your reply Chris, I think we may try and get a copy of the scans, especially after reading about yours, sorry to hear you had a bad time regarding your scans

Take care
Viv

The only time you should look back is to see how far you have come
User
Posted 14 Jun 2016 at 06:11

Just thought I'd let you's know I've been raving on about you lovely people on this forum to friends, family, colleagues, basically anyone that will listen to me !! Yous are a great bunch of people !! Who have helped me understand about this ugly disease more than Dr Google ever could
I will never moan about the trivial things anymore
I think I may have even twisted my dads arm to join too, My dads not a one for talking about stuff he tends to keep things bottled up, I think this forum would be good for him

Viv X

Edited by member 14 Jun 2016 at 06:12  | Reason: Not specified

The only time you should look back is to see how far you have come
User
Posted 14 Jun 2016 at 10:23

Twist his arm Viv by all means.

He might find comfort from reading even if he wouldn't want to post. He would also have the option of asking somebody directly (via the name under the profile picture) if something appeared on screen that he feels he'd like information on but it's too personal to write down.

He could have private conversations, one to one, with a member who he can see is going through the same as him.

Worth pointing out anyway.

Has he ever looked at the site or does he just know about it from what you tell him. Perhaps if you show him the page he'd be more comfortable viewing for a while before joining.

Anyway, glad you've found us helpful !!

We can't control the winds - but we can adjust our sails
User
Posted 19 Jun 2016 at 10:34

Happy Father's Day to all you wonderful dads on here I Hope you can enjoy your day as much as physically possible, I've done my research and
Ive bought my dad a nice bottle of Red wine and some dark chocolates, (I know he'd rather have a pint though)
X

The only time you should look back is to see how far you have come
User
Posted 22 Jun 2016 at 15:55

Good afternoon
My dad has his long awaited app with his consultant tomorrow and will find out his MRI/Bone scan results and his treatment plan, Myself and my mum will be going with my dad to the app, I was wondering if u lovely people have any advice of the kind of questions we should be asking regarding the results of scans and my dads treatment plan please ? I didn't feel very prepared with my dads initial app with the consultant and came away feeling annoyed and frustrated with myself that I I didn't ask many questions, I really want to get the most out of this app,
The last 3 months since my dads initial diagnoses have just blurred into one long waiting game, I appreciate its the same for everyone during these early stage thanks in advance for any guidance and advice
Viv x

The only time you should look back is to see how far you have come
User
Posted 22 Jun 2016 at 16:40

Can't help with the questions Viv and I'm sure that I don't need to remind you to write down both the questions as advised by members here and the answers.

Good luck all of you. A stressful time but at least you'll know where dad stands

We can't control the winds - but we can adjust our sails
User
Posted 22 Jun 2016 at 19:40

Viv

 

This may be over the top but it does have some suggestions.

 

Thanks Chris

http://www.pcf.org/site/c.leJRIROrEpH/b.5835175/k.B015/Questions_to_Ask.htm

 

 
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