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9 moths to find out

User
Posted 19 May 2016 at 18:23
Hi my dad has just been told he has Prostate cancer? It's only took 9 months to find this out and my dad has been pushed from pillar to post , it's a joke we told them dad had it but they did nothing. I was told find it early ' 9 months' really
User
Posted 19 May 2016 at 20:33

Hi Woody sorry that things are not so good for your dad, if you can give more information it will be helpful and we can advice accordingly, what was his PSA result, has he been told his Gleason score and his staging T2 or T3 ?

There will be lots of questions that you need answering and you can download the "toolkit" from this site or tel the number given and it can be sent to you, it will have all the information about prostat cancer and explains things about different treatments and what to expect.

Ask any questions on here nothing is taboo

Best wishes Chris/Woody

Life seems different upside down, take another viewpoint

User
Posted 20 May 2016 at 05:15

hi woody
can understand how unhappy you must be with NHS, their is and will be lots of advice and support on here, but please don't post any DRs names in your frustration
your dad is going to be very angry and confused and so will you but he will need lots of support, when you get to see a specialist please go with him, he may get sent for various scans if he does then they are only trying to see what is happening
the results of these when done can take several weeks
trying not to blow your mind to much with info
its one step at a time as and when anything happens ask on here what you might expect, but bear in mind we are all individuals

regards
nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 20 May 2016 at 08:53

Hello Woody and welcome.

As the others have said really. I take it your dad is in his, what, 70s?

It took 9 months to find the cancer so one assumes it wasn't glaringly obvious. Or was it a question of no medical staff taking him/you seriously. On what basis did you "know" dad had prostate cancer. Is there a family history for instance?

At this stage of the game, try and let the anger go. It won't help you or him. You'll need to focus on what is available to him as treatment and get the best possible care you can. If you go to appointments all guns blazing you'll muddy the water of care.

Consultants will want to spend time discussing treatments. Use that time to find out as much as you can. If you go with him to appointments take a notebook and pen or ask the doctor if he minds you recording the appointment on your phone. There will be much to take in and without something to look at later you (none of you) will remember all that is said.

If there have been serious breaches in a GP or hospital's duty of care then take it up with The Patient Advice and Liaison Service (PALS) at the hospital. They will listen.

Download the Toolkit from this site like Chris/Woody suggested. Not all information in it will be relevant to your dad since you don't know yet what stage he is etc but it will give you ideas of questions to ask when you attend appointments.

If you could find out the information regarding his Gleason score it will help with advice from us.

You are obviously worried that dad has had this cancer growing inside him untreated for 9 useless months. Some versions of prostate cancer are the pussy cat kind and can be safely left without treatment - just with monitoring. My husband had a year like that others have had many more on Active Surveillance and are happy to do that since there are no side effects of treatment.

ALL treatments have side effects, some to a lesser degree. Some men having exactly the same treatment as others will not react in the same way. Until you have a definite idea of what stage his cancer is, try and stay focussed on helping him get through it. I have no doubt you are doing your very best for him.

Anger (understandable as it is under the circumstances) is a wasted, exhausting, emotion when there is so much else going on.

We are all here for you both. Use us as your sounding board when it gets too much. There will be others on here who have had the same bad experiences with doctors and hospitals so let them help you when the time is right - when it comes to complaints.
I used the PALS service when our hospital kept cancelling appointments. We ended up with one sooner than the one they cancelled so it does work.

Best wishes to you and dad. You've found us now so use us. We are the best !!

Sandra

PS. I note from your profile that you are 53.  With a dad diagnosed with Prostate Cancer it might be an idea to get the ball rolling on testing for yourself. Start by asking your GP for a PSA and take it from there.  He shouldn't refuse

Edited by member 20 May 2016 at 08:56  | Reason: Not specified

We can't control the winds - but we can adjust our sails
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User
Posted 19 May 2016 at 20:17

Sorry your dad has joined our club , plenty of support on here ask any question sure you will be answered we are a friendly bunch , hope his treatment improves . all the best Andy

User
Posted 19 May 2016 at 20:33

Hi Woody sorry that things are not so good for your dad, if you can give more information it will be helpful and we can advice accordingly, what was his PSA result, has he been told his Gleason score and his staging T2 or T3 ?

There will be lots of questions that you need answering and you can download the "toolkit" from this site or tel the number given and it can be sent to you, it will have all the information about prostat cancer and explains things about different treatments and what to expect.

Ask any questions on here nothing is taboo

Best wishes Chris/Woody

Life seems different upside down, take another viewpoint

User
Posted 19 May 2016 at 20:39
Hello, welcome from me,

It must have been frustrating for you all as a family to go through this. Once you have more information regarding scores ( Psa / Gleason ) that will help us to help you.

I know it's a scary time but try to keep positive if you can and contact us at any time you wish.

Best wishes

John

User
Posted 20 May 2016 at 05:15

hi woody
can understand how unhappy you must be with NHS, their is and will be lots of advice and support on here, but please don't post any DRs names in your frustration
your dad is going to be very angry and confused and so will you but he will need lots of support, when you get to see a specialist please go with him, he may get sent for various scans if he does then they are only trying to see what is happening
the results of these when done can take several weeks
trying not to blow your mind to much with info
its one step at a time as and when anything happens ask on here what you might expect, but bear in mind we are all individuals

regards
nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 20 May 2016 at 08:53

Hello Woody and welcome.

As the others have said really. I take it your dad is in his, what, 70s?

It took 9 months to find the cancer so one assumes it wasn't glaringly obvious. Or was it a question of no medical staff taking him/you seriously. On what basis did you "know" dad had prostate cancer. Is there a family history for instance?

At this stage of the game, try and let the anger go. It won't help you or him. You'll need to focus on what is available to him as treatment and get the best possible care you can. If you go to appointments all guns blazing you'll muddy the water of care.

Consultants will want to spend time discussing treatments. Use that time to find out as much as you can. If you go with him to appointments take a notebook and pen or ask the doctor if he minds you recording the appointment on your phone. There will be much to take in and without something to look at later you (none of you) will remember all that is said.

If there have been serious breaches in a GP or hospital's duty of care then take it up with The Patient Advice and Liaison Service (PALS) at the hospital. They will listen.

Download the Toolkit from this site like Chris/Woody suggested. Not all information in it will be relevant to your dad since you don't know yet what stage he is etc but it will give you ideas of questions to ask when you attend appointments.

If you could find out the information regarding his Gleason score it will help with advice from us.

You are obviously worried that dad has had this cancer growing inside him untreated for 9 useless months. Some versions of prostate cancer are the pussy cat kind and can be safely left without treatment - just with monitoring. My husband had a year like that others have had many more on Active Surveillance and are happy to do that since there are no side effects of treatment.

ALL treatments have side effects, some to a lesser degree. Some men having exactly the same treatment as others will not react in the same way. Until you have a definite idea of what stage his cancer is, try and stay focussed on helping him get through it. I have no doubt you are doing your very best for him.

Anger (understandable as it is under the circumstances) is a wasted, exhausting, emotion when there is so much else going on.

We are all here for you both. Use us as your sounding board when it gets too much. There will be others on here who have had the same bad experiences with doctors and hospitals so let them help you when the time is right - when it comes to complaints.
I used the PALS service when our hospital kept cancelling appointments. We ended up with one sooner than the one they cancelled so it does work.

Best wishes to you and dad. You've found us now so use us. We are the best !!

Sandra

PS. I note from your profile that you are 53.  With a dad diagnosed with Prostate Cancer it might be an idea to get the ball rolling on testing for yourself. Start by asking your GP for a PSA and take it from there.  He shouldn't refuse

Edited by member 20 May 2016 at 08:56  | Reason: Not specified

We can't control the winds - but we can adjust our sails
 
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