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User
Posted 28 May 2016 at 18:28
Following a delayed appointment my husband went along to the consultant last Monday only to be told that the CT scan results were not available , he had the scan last March!
He then got a phone call yesterday to say he was being handed over to an oncologist because the current treatment was no longer effective!

So what is likely to happen next? Further hormone treatment? Or chemotherapy?

Just don't know what exactly has gone, wrong his nurse contacted him to tell him, but not his consultant who , hopefully would give him more details
.
So a sleepless night ensued he feels that he should still take the bicalutamide and ironically had his Zolodex implant last Wednesday he just feels in limbo not knowing what to expect.

I feel really helpless

Edited by member 28 May 2016 at 21:23  | Reason: Not specified

User
Posted 28 May 2016 at 19:02

Hello Blueytrue.
Could you just look at your post and edit it for us please as I think there are a few mistakes in it which makes it a little difficult to understand. Ta

I know from a previous post that he got a phone call from his nurse announcing that the treatment wasn't working. The only thing I can suggest, other than waiting for the appointment, is that he rings the consultant's secretary on Tuesday (It's Bank Holiday on Monday) and explain what has gone wrong and that he is concerned about the next step.

Ask the consultant if he should still be taking his Bicalutamide.

I hope somebody else will be along to advise you though.

All the best

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 29 May 2016 at 06:24

You don't have to be a private patient Bluey to contact a consultant's secretary. The secretary takes details of your enquiry, asks the consultant and hopefully rings you with the reply>  I've done it a couple of times, both for my husband and myself in the past. Generally the secretary is quite helpful


Just ring the hospital switchboard and ask to be connected or for the phone number to ring direct.


If you are not getting any information from his designated nurse then you need to find out from somebody, especially regarding his medication.

Edited by member 29 May 2016 at 06:26  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 29 May 2016 at 21:29
I find this very irritating (on your behalf). No man should be unclear about his diagnosis, I agree a call the the secretary is in order, unless you have the name of your specialist nurse. They are fully conversant with the situation and often easier to get hold of.

Devonmaid.
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User
Posted 28 May 2016 at 19:02

Hello Blueytrue.
Could you just look at your post and edit it for us please as I think there are a few mistakes in it which makes it a little difficult to understand. Ta

I know from a previous post that he got a phone call from his nurse announcing that the treatment wasn't working. The only thing I can suggest, other than waiting for the appointment, is that he rings the consultant's secretary on Tuesday (It's Bank Holiday on Monday) and explain what has gone wrong and that he is concerned about the next step.

Ask the consultant if he should still be taking his Bicalutamide.

I hope somebody else will be along to advise you though.

All the best

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 28 May 2016 at 21:19
Thanks for the suggestion but I'm thinking that could be right if he were a private patient. The nurse is the one contact that we have with the consultant so maybe he should be emailing her.
User
Posted 29 May 2016 at 06:24

You don't have to be a private patient Bluey to contact a consultant's secretary. The secretary takes details of your enquiry, asks the consultant and hopefully rings you with the reply>  I've done it a couple of times, both for my husband and myself in the past. Generally the secretary is quite helpful


Just ring the hospital switchboard and ask to be connected or for the phone number to ring direct.


If you are not getting any information from his designated nurse then you need to find out from somebody, especially regarding his medication.

Edited by member 29 May 2016 at 06:26  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 29 May 2016 at 21:29
I find this very irritating (on your behalf). No man should be unclear about his diagnosis, I agree a call the the secretary is in order, unless you have the name of your specialist nurse. They are fully conversant with the situation and often easier to get hold of.

Devonmaid.
User
Posted 30 May 2016 at 09:23
Irritating and scary! Wonder what they found on the scan which indicates that the hormone treatment isn't working, also, he had a small lung tumour and indication of one mets in his pelvis so wondering if that has spread but he doesn't feel any pain and is able to walk easily .
It looks like an unknown new thing has come up, I know his PSA had jumped up but it's the scan results that I'm worried about.
So many sleepless nights , but I will contact the nurse rather than the secretary for further information
Fingers crossed
 
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