I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

123>

Prostrate Biopsy

User
Posted 01 Jun 2016 at 15:58

I am scheduled for a prostrate biopsy on the 10 June but have to take an enema before. however I am actually living in Spain and having the procedure over here, the instruction for the enema are in Spanish and having never taken one of these before I am not sure when I should take the enema, I know I have to insert the liquid through my rectum, but just don't know how soon before the procedure to do it.

Thanks

User
Posted 19 Oct 2016 at 21:13

Probably shouldn't be pushing a trolley even.

Men are at significantly increased risk of a hernia post-RP and it often seems linked to having done too much too soon. They have cut through multiple layers of fat and muscle, all of which needs to heal properly. Blood in the urine could simple be old clots as the urethra heals - but is often due to doing too much and putting a strain on the stitched urethra.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Nov 2016 at 15:40

Hi
It's always important to take notes at these meetings so that you can digest it all later and even speak to the prostate nurses with the facts.
It seems your consultant may have found a positive margin , meaning he knows he has left cancer inside you. A couple of tests will confirm a growth via PSA rise.
I had cancer left on my bladder , however the PSA rose so rapidly they suspect spread further than that. It was also found in my lymph nodes. I have rejected RT until I know for sure via scans early next year
Good luck

User
Posted 19 Jul 2016 at 14:20

I had my MRI scan earlier today, no real problems and they gave me a DVD copy of the scan in case i wanted a second opinion, so now waiting the appointment for the results which should be within two week.

The health service over here is Spain is really first class.

siampark yes they gave me the results and I was told what it meant but no Gleason score unless I misunderstood the only thing on my sheet with numbers is under the heading PSA and it says 6.05

User
Posted 10 Aug 2016 at 17:19

Glad that's out of the way for you HH.

Catheter? Yes, and I think it's usually removed after two or three weeks but I'm sure somebody will correct me about that.

You may well be shocked because all this came out of a routine blood test - but thank goodness eh that they are on the ball in Spain.

Having said that, I think I'm right in that if you were changing doctors in the UK a man of your age would have been given a sort of "start up" check up for the new records and a PSA may well be included in that. I certainly hope that's how it works anyway!

Fingers crossed for you that the op goes swimmingly.

Best Wishes

Sandra

*******

We can't control the winds - but we can adjust our sails
User
Posted 11 Aug 2016 at 07:35
H

A catheter is normal as part of RP, it protects the new wound / joint in the urethra from urine. Mine was removed after 13 days, some are removed after 7 days in the UK and some countries remove them after 3 days.

Like many guys on here my PCa was found almost by accident, I went the the GP about a stiff shoulder.

I wish you well with your journey.

Thanks Chris

User
Posted 11 Aug 2016 at 10:53

I had my catheter removed about 16 days after the op. The only problem after removal was and is incontinence which I hope will improve over time. I think it is now staring to get better as the overnight pad is much dryer.i hated having the catheter so was well happy the day it was removed.

It is 8 weeks tomorrow since I had the op and I am back doing whatever I wish, even 5k hill walks. I was also fit and active before I had the op, running 5/6k 3 or 4 times a week and I am hoping to be able to do this within the next 2 weeks once the heat over here drops a little.

The op for me went very well and was nowhere as bad as I feared beforehand.

Good luck.

Edited by member 11 Aug 2016 at 14:03  | Reason: Not specified

User
Posted 11 Aug 2016 at 18:44
H

I was back at work after 4 weeks and almost dry 4 days post catheter removal. I developed a stricture 3 months post op and 15 months post op things went down hill. Do not be put off by my experience nobody can be that unlucky again. I am still here to moan and lots of options still to go.

ED has been fun to solve.

All the best with you treatment.

Thanks Chris

User
Posted 19 Oct 2016 at 09:11
H

If in doubt always seek medical advice, we have Urology/ oncology nurses we can ring at our hospital and a dedicated Urology help line. I often got a small amount of blood either at the start or finish of urinating even after a month and sometimes the odd bit of debris. I did develop a water infection soon after my op, might be worth taking a water sample to the doctors.

Good news on the continence I was almost dry after four days and it looks like you are heading in the same direction.

Thanks Chris

Edited by member 19 Oct 2016 at 09:13  | Reason: Not specified

User
Posted 19 Oct 2016 at 15:25
Hi

Just read your reply. You seem to be doing very well. However get idea that you seem maybe like me . Doing tad too much. I have a wife to keep me in check. Lol

It was 4 weeks before I was allowed to drive .. by the missus. . This is a major op. Lots to heal. Great you are about. Please take it steady.

I had zero blood in urine. The urethra has been completely cut and obviously traumatised to say the least. Keep fluids flowing as you are doing. Water simply and best. I was told caffeine not ideal and juices irritate. The bladder needs to retrain. .! Obviously don't let urine become dark and concentrated. If your bowels are regular and you are having steady exercise and rest .. you are doing extremely well in my opinion. I did DIY. ie painting after couple weeks. I would occasional get leakage going up steps or suddenly get out chair . Car seat etc. I still do kegel exercises.

User
Posted 21 Oct 2016 at 08:15

I went through a long period of feeling like I was dripping , when actually I wasn't. And was definitely peeing very frequently compared to now. It's early days , I'm sure things will keep improving

User
Posted 23 Oct 2016 at 09:04
H

We all want to recover in a couple of days and being positive is good. You are only 19 days since a major op the blurb for open surgery is back at work in 4 to 6 weeks,i think that is being optimistic. Bear in mind the stats on regaining continence is something like at six months 70 per cent of men regain control and by 12 months 90 Per cent will have control, so you are doing very well,many guys say by mid afternoon the continence gets worse as they get tired.

We often say not to Google things but try "johns hopkins radical prostatectomy after care" it has some quite interesting info.

Thanks Chris

User
Posted 23 Oct 2016 at 09:06
Hi,

I had blood in my urine on a number of occassions in the first few weeks.

I was told that blood in the urine was normal and part of the healing process.

My own experience was that it happened either late at night.. before bed... or at my first wee in the morning.

Mine was more of a discolouration (pink colouring) at the beginning of the wee rather than definate drops.. but we are, of course, all different. I sometimes also had bits of 'debris' and again was advised by my consultant that this is normal during recovery.

Edit.. just read Chris' reply.. and he is right... it is early days!.. I was off work for 6 weeks and very glad I did so.

KRO...

Edited by member 23 Oct 2016 at 09:12  | Reason: Not specified

User
Posted 23 Oct 2016 at 15:02

The theory behind incontinence being worse if you get tired is fairly straightforward. As part of the op, they removed the prostate with that section of urethra and one or both urinary valves that control continence. They also cut through the main muscles controlling the bladder sphincter. Then they joined the two cut ends of urethra back together, often needing to replace the valve and stitch it in place. Your brain then has to relearn how to control the sphincter and valve, much as you did as a toddler being toilet-trained - like a small child you have to concentrate to do that and if you get tired or start to concentrate on something else, the bladder control goes on the back burner (young children often get engrossed in playing something and then have accidents because they forget to hold on)

The small amounts of blood can be from where the two ends of the urethra have been cut and restitched, or from where the valve has been re-sited (if that was done). Clots are normal as the area heals but if there is more than a little blood it may be down to having pulled the join or from other damage and needs checking out.

When John had open RP he was told (and all the paperwork / information leaflets said) that he would need 12 weeks off work. in the event, he was working from home around 9 - 10 weeks post-op but his car insurer wouldn't clear him to drive until he had seen the surgeon at 12 weeks.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Nov 2016 at 18:43

Have you had the results from the removed prostate? If not maybe this is why you have been called in? I hope all is well and hopefully it is all okay but not much you can do apart from worry. Sometimes I think the surgeons really don't know what we are feeling and going though as the waiting is the worst part.

Edited by member 15 Nov 2016 at 18:48  | Reason: Not specified

User
Posted 17 Nov 2016 at 18:02

Or better still you could just ask the hospital whether you can start RT after new year. In the UK they like you to be fully continent from the op first, as you have to hold a full bladder during the zapping. John waited 2 years between op and RT because he was in denial that he needed it - so a delay of 6 weeks or so might be absolutely fine?

The seminal vesicles join and then become part of the spermatic cord.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 28 Nov 2016 at 14:39

Two months since my RT and just had the results of my first blood test post op it was <<0.09, pleased with this, and an appointment tomorrow with the Radiology Department about the start of my adjuvant radiotherapy treatment.

I am slowly getting more control over my incontenence, I do use a lightweight Tena for men at night and a number two during the day if I am going to be active and the lightweight one if just having a lazy day, and it is staying mainly dry with just the odd occasion when it's not. This does help me to feel more confident and normal again.

Pleased with my progress, and will start asking about my libido now.

Lets hope 2017 is a good year for you all and not to many more trips to the Hospitals.

User
Posted 29 Nov 2016 at 20:11

Don't assume your life is going to be on hold. John breezed through RT, had all his appointments first thing in the morning on his way to work, never had a day off and continued with the daily gym sessions and his rugby.

Are they giving you hormones as well or just the RT?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 29 Nov 2016 at 21:52

The tattoos are tiny - I looked for John's the other day and we couldn't even find them anymore!!!! A nice ambience matters if it makes you feel secure and confident.

Yes he was quite fit - he climbed Kilimanjaro in between the RP and the RT! And look at our profile - 7 years post diagnosis / nearly 7 years post-op and 5 years after the RT/HT finished, he is undetectable (after a few wobbles) and doesn't really think about PCa very often - it is me that does all the worrying!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 23 Feb 2017 at 07:18

Hi all
Apologise for not being on here recently but my laptop has been broken and its taken a time to get a replacment one.

So just an update I am now on session 21 of my 36 radiotherapy sessions and doing very well, apart from the effects of flatulance during the night all seems to be going well with no real side effects.

My incontenance is now completly under control and as far as that is concerned am back to normal no more pads.

Four months post op and all seems to be well just hope the results after the radiotherapy is as good as i feel

regards
Anthony

User
Posted 23 Feb 2017 at 22:43

Excellent news H

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 Mar 2017 at 15:06

Happy, te deseo lo mejor.
Estoy segura de que te tratarán bien en mi país, que es tu país.
If you ever need some help with your Spanish online, just tell me.
Un abrazo,
Lola.

Show Most Thanked Posts
User
Posted 01 Jun 2016 at 16:01

Contact the freephone number on this website and speak to a specialist nurse. I think I did mine an hour before the biopsy and made sure I had a movement.

User
Posted 10 Jun 2016 at 16:07

Just an update i had my Biopsy this morning and have to wait for the results but the PSA levels are now down from 9.75 to 6.05, not sure why except I have cut down on drinking spirits and carbonated drinks, and only drink tea in the mornings.
Hoping the results are as positive as the PSA levels

User
Posted 16 Jun 2016 at 13:15

Funny obviously not all Doc's do this. I thought I would have to do this before mine but didn't.

User
Posted 14 Jul 2016 at 12:58

Ok got the results of my Biopsy today and was told I have a small tumor on my right side, and now before they decide what is the best treatment they want to establish how advanced the cancer is, so I am to have an MRI scan.

They said once that is done they can give me the best treatment, but didn't expand as to what that treatment might or could be.

Can anybody offer me further advice please thanks

User
Posted 14 Jul 2016 at 13:16
H

Do you have more details of the biopsy e.g. Gleason scores etc.

Thanks Chris

User
Posted 14 Jul 2016 at 13:43

No sorry I completed forgot to ask and as I am using a Spanish Hospital the language is a bit of a problem. But after my biopsy my PSA levels had dropped to 6.05, but I guess they would not being carrying out an MRI scan if it was nothing to worry about.
Damn wish I had remember the Gleason score

User
Posted 14 Jul 2016 at 15:42

Hello HappyH.

I'm pretty sure that an MRI is standard here too so please don't read anything sinister into it

We can't control the winds - but we can adjust our sails
User
Posted 18 Jul 2016 at 14:21

Wow very fast over here just had a phone call MRI scan tomorrow (19/7) at 10am talk about quick only got the results of the biopsy on the 14 July. Very efficient system over here in Spain.

But not really looking forward to it, from what I have been told it's not that nice an experience, but very necessary

User
Posted 18 Jul 2016 at 19:59

HappyH, the MRI scan is nothing to worry about, it does not hurt and is over fairly quickly, it's just the waiting for the results that is difficult but as you have been fast tracked, it seems, you may not have too long to wait.

Best of luck with it all and I hope the result is favourable.

Regards Chris/Woody

Life seems different upside down, take another viewpoint

User
Posted 18 Jul 2016 at 20:00

HappyH, I too live in Spain and when I went to the hospital for the results of the Biopsy they gave me a sheet of paper with all the results. Did you not get this. If you are not on private insurance, where you should be given a translator I would take someone who can translate for you as this is too important to get things wrong. Good luck with everything and any help I can give please just ask.

User
Posted 19 Jul 2016 at 14:20

I had my MRI scan earlier today, no real problems and they gave me a DVD copy of the scan in case i wanted a second opinion, so now waiting the appointment for the results which should be within two week.

The health service over here is Spain is really first class.

siampark yes they gave me the results and I was told what it meant but no Gleason score unless I misunderstood the only thing on my sheet with numbers is under the heading PSA and it says 6.05

User
Posted 10 Aug 2016 at 14:40

Just an update, today I saw my specialist who informed me that the results of the MRI were good in that he can clearly see the tumour on the top edge of my prostrate, and he is certain that it is contained wholly within the prostrate itself and given my age (65 on Sunday) he has recommended surgery to remove the tumor.
I was informed about the possible after effects of having either the surgery or radiotherapy and I chose to have the surgery as it was his recommendation, but I don't think he mentioned having to have a catheter fitted, but on reading about the operation it seems I will have to have one, he did mention about the possibilities of incontinence problems and erectile dysfunction, which I find a little scary but obviously it's something I will have to overcome.
Must say that I am a little shocked that all this is the result of just a routine blood test that my new Spanish Doctor insisted I had when I first signed on at his surgery, I suspect had I still been living in the UK I would not even know I had prostrate cancer, as I had no symptoms and no need to ask for the blood test. I think this is probably the most scary thing and how many men of 64-65 might have the problem and not know about it.
Apprehensive but feeling positive that I am still going to lead a normal life afterwards for many years to come

User
Posted 10 Aug 2016 at 17:19

Glad that's out of the way for you HH.

Catheter? Yes, and I think it's usually removed after two or three weeks but I'm sure somebody will correct me about that.

You may well be shocked because all this came out of a routine blood test - but thank goodness eh that they are on the ball in Spain.

Having said that, I think I'm right in that if you were changing doctors in the UK a man of your age would have been given a sort of "start up" check up for the new records and a PSA may well be included in that. I certainly hope that's how it works anyway!

Fingers crossed for you that the op goes swimmingly.

Best Wishes

Sandra

*******

We can't control the winds - but we can adjust our sails
User
Posted 10 Aug 2016 at 21:41

Many thanks Sandra for you kind words. I am sure all will be well for me.

User
Posted 11 Aug 2016 at 07:35
H

A catheter is normal as part of RP, it protects the new wound / joint in the urethra from urine. Mine was removed after 13 days, some are removed after 7 days in the UK and some countries remove them after 3 days.

Like many guys on here my PCa was found almost by accident, I went the the GP about a stiff shoulder.

I wish you well with your journey.

Thanks Chris

User
Posted 11 Aug 2016 at 08:34

Thanks Chris
I hope you are now fully recovered from your RP, can I ask how long after the op did you feel back to your normal self?
Did you get any problems once the catheter was removed? They warned me about incontinence problems.
I am hoping that as i am a relatively fit man for my age, (i have been keeping fit all my life up to just recently) and not quite 65 yet I will make a quick recovery and get back to my normal life.
Thanks again Chris

User
Posted 11 Aug 2016 at 10:53

I had my catheter removed about 16 days after the op. The only problem after removal was and is incontinence which I hope will improve over time. I think it is now staring to get better as the overnight pad is much dryer.i hated having the catheter so was well happy the day it was removed.

It is 8 weeks tomorrow since I had the op and I am back doing whatever I wish, even 5k hill walks. I was also fit and active before I had the op, running 5/6k 3 or 4 times a week and I am hoping to be able to do this within the next 2 weeks once the heat over here drops a little.

The op for me went very well and was nowhere as bad as I feared beforehand.

Good luck.

Edited by member 11 Aug 2016 at 14:03  | Reason: Not specified

User
Posted 11 Aug 2016 at 18:44
H

I was back at work after 4 weeks and almost dry 4 days post catheter removal. I developed a stricture 3 months post op and 15 months post op things went down hill. Do not be put off by my experience nobody can be that unlucky again. I am still here to moan and lots of options still to go.

ED has been fun to solve.

All the best with you treatment.

Thanks Chris

User
Posted 05 Oct 2016 at 08:50

Just an update
I have now had a full open Prostate removal operation, and am back home. I have about 20 metal staples in the cut which will be removed on Friday 7 October and the catheter will be removed on the 17 October, my Gleason score was 4+3.
I really did not realise just how serious an operation this is and it really is a lightening bolt from above to make sure we never take our health for granted.
This exact time last year I had my first blood test which tested my PSA level, so this really has been a very quick turnaround from not knowing I even had a problem to life saving surgery.
Thank you everybody for your valuable contribution to this post and I hope it helps other men who are just finding out they have a prostate problem and are looking for support.
I was offered the radiation therapy and other types of treatment but my surgeon felt at my relative your age and fitness level the open surgery offered me the best chance of success and full recovery.
Good luck to you Chris I really hope and pray you come through all your problems in the end.
Thanks again to all

 
Forum Jump  
123>
©2025 Prostate Cancer UK