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medication for urinating a lot.

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User

Posted 03 Jun 2016 at 19:59

hi,i have just been prescribed tamsulosin 400mcg,because i have been getting up 5 times a night not getting much sleep,bad enough with zoladex,can any of you guys who have been on tamsulosin when is the best time to take it during the day or just before bed can anyone help please.

User

Posted 04 Jun 2016 at 18:40

Hi radar
Take mine about 16.30 found this best suited me had tried taking just before going to bed
But it can still vary how many times i go generally ever 2hrs
But sometimes can be 3hrs

Regards
Nidge

run long and prosper
'pooh how do you spell love'
'piglet you dont spell love -you just feel it'

User

Posted 04 Jun 2016 at 18:58

Hi radar
Ive moved on to a similar drug but now as then after my evening meal. I'm still circa 5 times a night. Daytime is mostly ok.

Ray

User

Posted 04 Jun 2016 at 19:23

Radar, I have been on Tamsulosin since September 2014 and take it after I have eaten in the evening. Originally I was getting up 10/12 times each night, not counting the one I have before going to bed and the one I have when I get up, I am down to five times now but for a short while about two months ago it was 2-3 times, alas that did not last.

I also had a TURP procedure to help with the flow but it didn't help all that much.

I am also on Solifenacin to help relax the bladder not sure if it is helping, I suppose the only way will be to stop taking them to see what difference there is.

The only thing that affects me with Zoladex at night is the hot flushes all the other side effects are loss of libido, tiredness and fatigue, very tearful and emotional and some muscle loss as have been on them since February 2015.

Hope that helps with your question.

Regards Chris/Woody

Life seems different upside down, take another viewpoint

User

Posted 05 Jun 2016 at 12:51

Hi Radar,

I have the same Tamsulosin prescription as you, and I've stayed on it for 11yrs, rather than have any 'corrective surgery'.

I take my capsule around noon every day. It helps stop constant dashing for a pee during the day.

However, I STILL have to get up about four times a night, but by now I'm used to the pattern.

And that's my good excuse for sleeping so late every morning!

All the best,

George

B2PCa

User

Posted 05 Jun 2016 at 13:21

thanks, does anyone stop drinking water at a certain time,i tried it once but it did not make much difference,getting up a lot is a pain,you get back into bed cant get back to sleep then when you think you are drifting off hot flushes start cant win,i am back to see oncologist on 15th of this month to get the results of my 1st psa test for a year and i will have been on ht 2yrs 4onths with 8months to go,i am disappearing with this zoladex,i could do with something to build me up like trt injections,but i know theres not much chance of that,but i have read elsewhere that people with advanced cancer have been given high doses of testesterone to shock the cancer cells and are doing well,anyone else seen that.

User

Posted 05 Jun 2016 at 17:04

Radar I stop drinking tea at 5ish and minimise water drinks after that and it helps but if I have anything later than 7 I am up an extra two or three times.

Cheers Chris/Woody

Life seems different upside down, take another viewpoint

User

Posted 05 Jun 2016 at 19:49

Hi radar
CNS and other 'experts' say circa not after 6 pm. Firstly in my case it makes no noticable difference to the number of night times visits and secondly they forget the idea of fighting cancer is to have a life even if that means peeing too often.

A few months back I cut out all tea, of whatever colour, which made a difference for awhile. Then I reverted back to my previous circa 5 times which suggests to me my body sees peeing circa 5 times a night as the norm now.

As regards testosterone you can always ask - don't get your hopes up though :-). My GP's stance is 'not off me', but then GP is convinced I still have PCa.

Ray

Edited by member 05 Jun 2016 at 19:50 | Reason: Not specified

User

Posted 06 Jun 2016 at 09:51

thanks,i think i will take it about noon,also i should have mentioned this a while ago,when i was first dx 2014 t3b no mo gleason 7 psa65,they thought it would be already in my bones,but after scans it wasnt,my oncologist was not to keen on me doing rt,he suggested ht,but i said no id better do rt,when i went to to do rt he said they were going for curative treatment,its confusing when i said to him i will do rt he said it only benefits about 1 in 16 people,any thoughts on this please.

User

Posted 06 Jun 2016 at 15:36

Hi radar, I had PSA 63 on diagnosis Gleason 4+3=7 T2 aggressive cancer confined to prostate and was offered HT and RT together and was told I am in the curable camp so that is curative treatment. I know if you just have HT that RT is a back up treatment if things start going in the wrong direction and also a prostectomy is still available whereas if you have RT it generally rules out a radical prostectomy in the future.

I have not heard of any statistics like that before, either from the specIalist or from anyone posting on this site but am sure if this is correct that someone will let us all know.

Keep us posted if you have confirmation of that please.

Regards Chris/Woody

Life seems different upside down, take another viewpoint

User

Posted 06 Jun 2016 at 17:19

Hi radar

Yes it gets confusing, made even more so by differing perspectives of the medics. A plain english way to look at is if there is no proven spread to bones/organs then potentially that person is in the cure camp. Medics will disagree how feasible that is hence the confusion.

In my time there was the common theme of 'we give it our best shot (RT combined with HT)' even though the cure was a bit of a long shot. My consultant took that attitude I'm very pleased to say.

Way back Astex produced graphs showing the benefit of RT combined with Zoladex. It showed those at high risk gained little benefit of combined RT. However over the years more medics seem to be taking we give it a shot approach with the result some guys do extremely well as I hope all here will do.

Ray

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