Hi all,
I had 32 daily sessions of radiotherapy to my prostate bed in June and July 2014 and a further 15 daily sessions to my pelvic lymph nodes in June 2015.
During the 2014 RT the pain when going to the toilet started after about my 6th session and continued until about 3 months after the RT ended. My description then was that it was like passing razor blades - I would physically shudder from the intense pain. I also had mucus on and off at the same time, which continued for about 10 months after. I don't remember if there was blood.
The pain I'm experiencing now is much worse than back then. For the last 4 days (since Tuesday) I've had excruciating pain in the lead up to "number 2s" that makes me scream and, just when you think it can't get any worse, it does during the "number 2s" itself, which makes me scream even louder. On a scale of 1 to 10 it's an 11. I feel like I'm being ripped apart.
I saw a GP on Thursday who had a really thorough rummage around inside and said she could feel a lump but didn't know what it was. She did blood tests that have all come back fine. I spoke to my own regular GP on Friday who knows my history and he said it could be radiation proctitis but I'll need a camera to confirm.
If it's radiation proctitis does it come on that quickly? On Tuesday morning, nothing, by Tuesday night a definite change and by Wednesday morning the pain.
The pain doesn't last. About half an hour after finishing the necessary all that remains is a dull ache that I could live with. Problem is, since the radiotherapy I go 3 or 4 times a day.
If anybody else has had these symptoms, what were you diagnosed with?
Thanks
Jim