Sanders
There are some similarities with our events. I have suffered with a stricture since my Robotic op 26 months ago. I was 99percent dry 4 days after the catheter was removed, flow was good and my surgeon was pleasantly surprised at my quick recovery. Two dilatations followed at 3 and 6 month but continence was still good.15 months post op a simple dilatation went wrong and I was left catheterized for about 90 and on removal of the last catheter(Nov 2015) I was left leaking about 200 mls a day, gradually this dropped to about 3-5 mls per day. Another drop in the flow about three weeks ago resulted in three dilatation procedures in four days and bouts of retention between the dilatations.
I am now almost continent again but if I do not go to the loo as soon as the urge comes on I leak. My urine has been tested and there was an infection but antibiotics did not shift the infection and yesterday’s test was also positive and has been sent off to lab to be tested/ grown. My volume has also decreased lately as if the bladder cannot hold more than about 200ml, most times the volume is around the 100 mls. Have you had your urine tested for an infection.
On the ED front I was supposedly Non Nerve sparring but 26 months later I am still making progress. At about twelve months I was getting stirrings and was put on daily sildenafil with some degree of success and without all the problems of the stricture it may have been even better. So fight for getting daily sildenafil even if only for three months to establish whether your nerves are beyond repair.
The guest speaker at our local support meeting last night was my ED consultant, He came out with a statement that 15 percent of “supposedly” Non nerve sparring operations actually get “some” recovery. I would agree that removed or badly damaged nerves cannot recover but my surgeon’s explanation is that there is a network of nerves and some must have survived.
Thanks Chris