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Penile Implant - Blog Video - Erectile dysfunction (ED)

User
Posted 25 Jun 2016 at 08:40

Morning all

Penile Implant - Blog video post

I have posted a video of an interview I did a few months ago on my Blog.

For anyone thinking about getting an implant or who is interested in my thoughts and feelings leading up to and following my Penile Implant Surgery,

As always anyone with any questions or wanting to chat just give me a shout.

Link is in my signature - but just in case

http://rugbydave.blogspot.co.uk

 

Dave

Edited by member 26 Jun 2016 at 08:01  | Reason: Not specified

Radical Prostatectomy 14/07/08

ED ever since

Implanted with AMS 700LGX - 26/07/13 @ UCLH London

http://rugbydave.blogspot.co.uk

User
Posted 25 Jun 2016 at 08:40

Morning all

Penile Implant - Blog video post

I have posted a video of an interview I did a few months ago on my Blog.

For anyone thinking about getting an implant or who is interested in my thoughts and feelings leading up to and following my Penile Implant Surgery,

As always anyone with any questions or wanting to chat just give me a shout.

Link is in my signature - but just in case

http://rugbydave.blogspot.co.uk

 

Dave

Edited by member 26 Jun 2016 at 08:01  | Reason: Not specified

Radical Prostatectomy 14/07/08

ED ever since

Implanted with AMS 700LGX - 26/07/13 @ UCLH London

http://rugbydave.blogspot.co.uk

User
Posted 25 Jun 2016 at 10:28
D.

Very open and honest blog, unless I missed it what about sensitivity and orgasms.

CJ

I could not view it on my Android phone but did view it on a Windows PC.

Thanks Chris

User
Posted 26 Jun 2017 at 17:35

I would just say to try and get hold of Invicorp 25 injections. Caverject and Viridal left me in agony like yourself. These worked and best erection and zero pain whatsoever. Obviously check with your doctor. They can be got via NHS or privately. Best wishes

If life gives you lemons , then make lemonade

Show Most Thanked Posts
User
Posted 25 Jun 2016 at 10:17

Dave
Thanks so much for that. I know some people ( including myself ) may look at this course of action in the future. I hope you are well.
Chris

If life gives you lemons , then make lemonade

User
Posted 25 Jun 2016 at 10:21

Although the video won't open when I click it :-(

If life gives you lemons , then make lemonade

User
Posted 25 Jun 2016 at 10:28
D.

Very open and honest blog, unless I missed it what about sensitivity and orgasms.

CJ

I could not view it on my Android phone but did view it on a Windows PC.

Thanks Chris

User
Posted 25 Jun 2016 at 14:15

Chris

I'm really good thanks.

Not sure why the video wont open on your android - although I have just had the same problem myself.

Should have no problem on the PC though.

Dave

 

 

 

Radical Prostatectomy 14/07/08

ED ever since

Implanted with AMS 700LGX - 26/07/13 @ UCLH London

http://rugbydave.blogspot.co.uk

User
Posted 29 Sep 2016 at 15:59

Thanks for sharing this videos and post. It helps me in my research about penile implant recovery.

User
Posted 06 Oct 2016 at 06:39

Hi marcomiller01

 

Thanks for your message - it is a big decision, glad my blog and video helped.

 

Dave

Radical Prostatectomy 14/07/08

ED ever since

Implanted with AMS 700LGX - 26/07/13 @ UCLH London

http://rugbydave.blogspot.co.uk

User
Posted 26 Jun 2017 at 17:12

Hi Dave

Just finished watching your video and reading your blog - in its entirety! Both were so incredibly helpful and answered so many questions I had burning in my mind that first off, I just wanted to say thanks for posting it all. As others have said there's a dearth of information and advice from the beneficiary's perspective on the topic online. Much of it seems to be private US-based doctors flogging their wares!

As you will see if you check my profile I am about 2 years out from a non nerve-sparing RP followed not long after by hormones and 33 sessions of RT. During all of this I did manage to have time to entertain one or two "impure thoughts" and decided I may as well try the various gadgets and gizmos aimed at giving me back some semblance of potency. Viagra and co would've been a waste of time due to the non nerve-sparing op. I tried the pump and whereas after a lot of messing about, it produced an excuse of an erection, by the time it did, I had lost interest. Then to the injections - Viridial Duo in my case. The drug certainly worked for me even at the lowest dose and the injections are only scary the first few times. My problem was that regardless of dose, the pain was unbearable and the erection (and the pain) lasted for hours. Before anyone tells me I may have been injecting incorrectly, I got the ED nurse to do it and sadly the result was the same if not worse!

In November 2016 I was switched from Bicalutamide to Zoladex (3 monthly injections) and whatever residual spark of passion that may have been lurking in my mind and my loins has completely evaporated. My "impure thoughts" now centre around which type of biscuit to have with my cuppa!! The (hopefully) good news is that they plan to take me off all hormone meds in November this year and watch the now undetectible PSA to see what it decides to do. With any luck it'll just sit there and do nothing for a very, very long time.

With a view to the expectant return of those "impure thoughts", I was chatting with the ED nurse at Guy's & St Thomas where most of my treatment has been done and she suggested that given my lack of success with the other stuff I've tried, I should look at penile implants. Fast forward a bit and I now have an appointment at UCLH towards the end of July.

I'm guessing they might not be too interested in doing much with me until a/ the hormones stop and are out of my system and b/ some of the mental urge returns? Was there a long lead-in time from the point at which you were referred and initially assessed to the date of your surgery? What did the assessment involve?

I did try PMing you but I was told that as I have been lazy and not actively contributing, I cannot PM people. Maybe you can PM me instead or post here as you prefer.

Thank in advance.

User
Posted 26 Jun 2017 at 17:35

I would just say to try and get hold of Invicorp 25 injections. Caverject and Viridal left me in agony like yourself. These worked and best erection and zero pain whatsoever. Obviously check with your doctor. They can be got via NHS or privately. Best wishes

If life gives you lemons , then make lemonade

User
Posted 27 Jun 2017 at 12:43

I, too, was in agony with Viridal.  On Chris's recommendation, I had my GP prescribe Invicorp.  It works a treat and no pain whatsoever.

 

Ulsterman

User
Posted 05 Aug 2017 at 19:51
Jeezus

That implant procedure looks terrifying - total nightmare needing to go through that - hats off to rugbyDave

 
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