Just been told I have P Ca

User

Posted 29 Jul 2016 at 09:26

Hello everyone have just been told the news nobody wants to hear. Reading your replies has been a big help to my wife and myself.

I have a Gleason score of 8 and have started a course of Bicalutamide tablets,my first scan is next Weds 3 August.

Have been told I will have a course of EBRT later,as we are miles away from the hospital will I be able to drive myself each day or enlist the help of family,friends etc?

Thanks to you all your replies have helped already.

User

Posted 29 Jul 2016 at 11:01

Hello Billoap and welcome to the site.

There will be others along to help with the treatment advice. I can't as our treatment path was different.

You have already seen that we are a friendly, helpful bunch and very good at listening.

If you go to Publications on this site you can view information there about the various treatments and I'm sure they'll be a mention of EBRT.
You can also go to the search facility in conversations and put in EBRT and it may bring up members who have asked about it or been treated with it. If it does, click on their picture and it will bring up their profile and conversations they have been in.

Hope that helps for now.

You will already have seen probably the advice we give the newly diagnosed about writing down your questions for when you go to the consultant. It is so easy to forget to ask what you planned and very easy to mis-hear or mis-interpret the answer.

I expect you take your wife with you though. Hope so. Two pairs of ears are better than one!

Best Wishes

Sandra

*******

We can't control the winds - but we can adjust our sails

User

Posted 29 Jul 2016 at 14:00

Hi Billoap,

I too have been recently diagnosed so welcome to this club that nobody wants to be in, I was really down when I first got the news but since talking with others on this site have felt a whole lot better and ready to fight it any way I can, you can download the toolkit from this site it gives you lots of information about treatments etc, you can also order a hard copy as I did, also if you want any information give one of the specialist nurses a ring 08000748383 I did they are superb, I am sure you will get lots more help and advice from others,

best wishes

Paul

User

Posted 29 Jul 2016 at 16:04

Hi Billoap

Driving shouldn't cause any major issues or though some take a bottle etc to pee in just in case the urge to go is too strong.

my profile shows HT and RT served me very well.

Good luck

Ray

User

Posted 29 Jul 2016 at 16:33

Hello Billoap,

Where I was treated the hospital provided transport each day. It may be more convenient to drive yourself but it may be worth asking the hospital if they have transport.

All the best

Arthur

User

Posted 30 Jul 2016 at 08:02

Thanks to you all for your replies it's been a big help to us both.

User

Posted 30 Jul 2016 at 11:30

I had a fifty mile round-trip for my sessions which I found fairly straightforward.

The only down-side was that my hospital randomised the session times (for fairness I expect) so sometimes I had a late session (7 pm) followed by an early one (7:30 am) which I could have managed but for convenience I stayed in the local travelogue.

I was never 'caught-short' but the earlier advice about taking a bottle was a good one. It's also worth doing a recce of the conveniences en-route.

My biggest problem was remembering how many cups of water (of only three) I had drunk - you wouldn't think that would be a problem but the RT social club congregated around the water cooler and I got side-tracked pretty easily. I got around that by filling a plastic bottle with three cups of water and decanting from that.

Because our unit was busy and ran almost a conveyor belt system, I took a lightweight dressing gown rather than fiddle with those hospital gowns, which I found a bit time consuming.

Dave

Not "Why Me?" but "Why Not Me"?

User

Posted 30 Jul 2016 at 20:48

Thanks to you Dave for some good advice everyone is so kind and positive a big plus for us.

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