Just diagnosed - just saying hello - Start here! - Prostate Cancer UK Online Community

User

Posted 30 Jul 2016 at 11:44

Andrew here.
First post having spent a few days browsing this site and forum. Just saying hello and thought I would kick off with my story so far. I have just been diagnosed with PCa. Had waterworks problems for a few years due to BPH, but a routine PSA test showed a small rise followed by a retest 6 months later when it had risen to 4.0, so I was referred to Urology.

Biopsy had 11 cores, 10 clear and 1 with PCa cells. Gleeson 3+ 3 with 1% cancer. I could say ….. darn it ! So near to being clear. But trying to be positive thinking that it could easily have been missed altogether. Anyway I get my MRI this weekend so the results will give us a better indication of where we are, and I assume the stage and what my treatment options are. I am a young 59, and reading about the treatment options fill me with dread in terms of the side effects, but at least I know that it ( the PCa ) is there and we can now look at dealing with it.

I found this site before I had any tests and it is first class in terms of information, but also helps put things in perspective, so thanks to all on here so far.

Andrew

User

Posted 30 Jul 2016 at 18:37

Hi and welcome Andrew

it reads thus far you're well in the cure camp and could possibly be thinking of just keeping an eye on matters.

Good luck

Ray

User

Posted 31 Jul 2016 at 00:23

Hello Andrew

I know the side effects can be fearsome it keep in mind the alternative! Hoping you are very much in the cure camp.

Lots of love

Devonmaid xx

User

Posted 31 Jul 2016 at 01:08

Welcome Andrew,

Sorry you have to find yourself here but you find being here will help you a lot. You will get support here, usually at anytime of the day, and it will good advice. It's called a community site and that's what we are, a community of very special people who are facing the challenges that Prostate cancer has created for us.

Reading your details it seems that you are very lucky to have it diagnosed at a very early stage, so lots could be done for you.

Try not to worry about it too much and good luck with the MRI results.

All the best,

Steve

User

Posted 31 Jul 2016 at 15:07

Hi Andrew, you have better stats than a lot of guys on here and I would say that you appear to be in the "curable" camp compared to worse case scenarios. Once you know all the scores and scan results you MDT will put forward a treatment plan which could be active surveillance, HT/RT or even a Prostectomy, but finding information about all or any of these is best confined to this site and not DR Google.

You can ask any questions that you like on here as there are no taboos, you can get "the toolkit" from publications or phone the number given and they will send one to you.

Take a pen and notepad or someone with you to any appointments as things can be forgotten or misheard. Also write any questions down in advance so that you can ask your specialists and get the best information that you can before having to make that decision.

Best wishes for the future and hopefully it will not be too rough a ride.

Chris/Woody

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