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Homeopathy and diet

User
Posted 06 Aug 2016 at 20:46

Hi all, I'm a newcomer here

Just been diagnosed

PSA - 8.7

Biopsy - 60.96% right side, 44.12% left side

Gleason score - 4+3=7

Class - Intermediate risk localised prostate cancer

I have been offered radiotherapy and since divulging my diagnosis to friends and family I have been inundated with suggestions to treat prostate cancer, rather than radiotherapy or surgery

These range from - homeopathy, drinking carrot juice, eating root ginger and loads of other dietary advice

Does anyone have any experience or knowledge of any of this working?

Or is radiotherapy the only proven option

Thanks for any replies

User
Posted 08 Aug 2016 at 16:44

It's worth bearing in mind that much of the information passed on to you by other people will be half-baked theories that they've read about somewhere. People mean well - they really, really want to be able to help you, and often the only way they can do this is by passing on some tips they hope will cure you.

You could end up trying homeopathy, walnuts, bicarbonate of soda, a special black box that is said to cure all sorts of illnesses with electricity, acupuncture, aromatherapy, green tea, tomatoes, soya and heaven knows what else. Then you could cut out sugar, dairy produce, red meat, cured meats, alcohol, white flour, etc, and find your meals becoming very dull. There really isn't a lot of evidence one way or the other for most of these theories, the trouble being that Pca is hugely complex disease that behaves differently in every patient.

My OH tried some of the dietary advice and supplements, but his cancer continued to develop very aggressively and quickly. Some of these things might have helped in a preventative way if they had been started years before, but they were powerless to stop an advanced cancer in its tracks. And I can tell you that if tomatoes, which we grow and eat abundantly, could prevent Pca, I would not now be reading this forum.

User
Posted 07 Aug 2016 at 03:27

Pierre is right. Some Urologists and Oncologists develop PCa but normally, where appropriate, opt for one of the types of surgery or radiation and in need chemotherapy or other drugs if the PCa progresses. You wouldn't find them opting for the things you mention as an alternative to medically recognised treatment. In fact some things actually work against HT/RT and it would be sensible to clear any preparation with your consultant before starting it. Some things might help. POM is one some consultants approve of. Many here believe cutting out completely or greatly reducing your intake of red meat and dairy products helps (and benefits general health).

I can't believe those who suggested other than approved medical treatment had any medical qualifications or a great knowledge of the intricacies of cancer. Such suggestions are totally irresponsible and if followed could mean you might miss the timely advantage of medically recognised treatment. There are other treatment options some men would be suitable for such as HIFU and Cryotherapy but these are generally used as salvage treatments in the UK and long term results are not known. There are other treatments but these would involve going abroad as a private patient and without any assurance these would  give significantly better results than what is on offer in the UK.

We had a member on this forum called Rob who went to considerable lengths by way of research and on things to eat and to avoid.  Sadly, he died some months ago but was of the opinion that his strict diet gave him more time.  If you read his bio you will see the lengths he went to. http://community.prostatecanceruk.org/default.aspx?g=profile&u=656

 

Edited by member 07 Aug 2016 at 03:43  | Reason: Not specified

Barry
User
Posted 07 Aug 2016 at 09:02

Hello Chaswell and welcome

A few years ago my niece developed lung cancer and was apparently successfully treated. A year later it was back and this time she was terminal and suffering greatly with the effects of chemo etc.

I did a lot of research on behalf of the family and found that there was a lot of references on the net for cannabis oil. I checked this out thoroughly and passed on the info.
Despite the fact that the anecdotal reports were positive, even for the terminal, they chose not to go that route. I even contacted Cancer UK and they confirmed that cannabis was trialled some years ago for brain tumours so as a treatment it has been taken seriously in the past

When John developed his cancer I still had all this knowledge but when it came to it we went down the conventional treatment route.

Why?

Well a lot of evidence for these complementary treatments is anecdotal. By the time the sufferer has realised that it isn't working for them, it may well be too late, even if only in terms of the amount of treatments then left available.

I suppose what I'm saying is that if you look on the net hard enough you'll find what you want to find but even if those reports are offered in good faith, there is no saying that the complementary treatment would work for you.

With Gleason of 4+3=7 were there no other treatments offered to you, including Brachytherapy?

Just be careful of what you hear. All these offers of info by third parties is because they just do not know what to say and think they are being helpful.

For me, my niece had nothing to lose by trying. She was already dying and in a dreadful state so you'll look at anything you think might help.

For you, I'd say stick to conventional treatment (having sussed out ALL of the options) and add things like carrots and juice and all the other things that are mentioned as helping ie Turmeric etc. They aren't going to kill you if used in conjunction with conventional methods.

As stand alone treatments they may well do so by delaying treatment and allowing the cancer to get a better grip.

I wish you all the best. But - please - do your research.

Sandra

*******

We can't control the winds - but we can adjust our sails
User
Posted 07 Aug 2016 at 11:24

Chaswell,

there is some good advice in the above posts, if only it were that simple to change your diet and cure PC

I had surgery 2 years ago no regrets,

it hasnt been perfect, recovery has been a lot tougher than I thought , there is no one size fits all treatment or recovery,

but I'm back to 90%,

consider taking action sooner rather than later, or you may run the risk of not being fit for surgery or other treatments if you delay

many of us here believed we were fit and healthy until being diagnosed, dont burden yourself with guilt thinking I should have ate this or that and led a particular life style,  it is what it is !

                                                                            good luck

User
Posted 08 Aug 2016 at 09:11

Chats well, it doesn't hurt to ask and ask you have. You are obviously sensible and realise that fads and diets and DR Google are nothing compared to specialists knowledge and proven treatment plans.

The PCUK site is the place to get information along with the members of the forum as we all have experiences and the knowledge of how it has affected us in different ways together with the personal outcomes.

With this information that you glean it is "simples" and you then have to make a decision as to which treatment you want to receive, but it is only you that can make it. There is always someone with no experience that tells you how to do something based on hearsay and misinformation.

Download the toolkit from publications or telephone and ask for one to be sent, there is all the information available written down and easy to read. If you have questions then ask away on here or call the specialist nurses on this site who will answer you, they are very experienced.

When you go to the specialists appointments take a pen and notepad or go with someone to help with remembering what is being told to you. Not any questions down beforehand, it is so easy to forget to ask when you are in front of them at the time.

I wish you well with your treatment

Regards Chris/Woody

Life seems different upside down, take another viewpoint

Show Most Thanked Posts
User
Posted 07 Aug 2016 at 00:55

Hello Chaswell,

Sorry to hear about your diagnosis. 

There are multiple types of prostate cancer and everyone reacts in a different way. If carrot juice, root ginger, snake oil, or prayer was a guaranteed cure, then the problem would be solved.

If anyone on the Internet says "this will work" there is probably a cost, and no guarantee associated.

To answer your question, there is no "proven option". There are several types of treatment, surgical, chemical and radiation based. Your consultants know you and your cancer better than unknown people on the other end of an internet connection. Your consultants are the people to talk to and challenge.

I wish you well!

 

Pierre

Edited by member 07 Aug 2016 at 00:56  | Reason: Not specified


User
Posted 07 Aug 2016 at 03:27

Pierre is right. Some Urologists and Oncologists develop PCa but normally, where appropriate, opt for one of the types of surgery or radiation and in need chemotherapy or other drugs if the PCa progresses. You wouldn't find them opting for the things you mention as an alternative to medically recognised treatment. In fact some things actually work against HT/RT and it would be sensible to clear any preparation with your consultant before starting it. Some things might help. POM is one some consultants approve of. Many here believe cutting out completely or greatly reducing your intake of red meat and dairy products helps (and benefits general health).

I can't believe those who suggested other than approved medical treatment had any medical qualifications or a great knowledge of the intricacies of cancer. Such suggestions are totally irresponsible and if followed could mean you might miss the timely advantage of medically recognised treatment. There are other treatment options some men would be suitable for such as HIFU and Cryotherapy but these are generally used as salvage treatments in the UK and long term results are not known. There are other treatments but these would involve going abroad as a private patient and without any assurance these would  give significantly better results than what is on offer in the UK.

We had a member on this forum called Rob who went to considerable lengths by way of research and on things to eat and to avoid.  Sadly, he died some months ago but was of the opinion that his strict diet gave him more time.  If you read his bio you will see the lengths he went to. http://community.prostatecanceruk.org/default.aspx?g=profile&u=656

 

Edited by member 07 Aug 2016 at 03:43  | Reason: Not specified

Barry
User
Posted 07 Aug 2016 at 08:51

Hi Chaswell

Would agree with comments of Pierre and Barry. However you could follow the non surgery or radiotherapy route as that might avoid possible incontinence and ED but without treatment the latter and urinary frequency can occur as the tumour grows. The route may very well lead to your shorter life which of course is your choice.

My diet these past12 years includes some dairy and red meat so it works for me thus far.

Ray

User
Posted 07 Aug 2016 at 09:02

Hello Chaswell and welcome

A few years ago my niece developed lung cancer and was apparently successfully treated. A year later it was back and this time she was terminal and suffering greatly with the effects of chemo etc.

I did a lot of research on behalf of the family and found that there was a lot of references on the net for cannabis oil. I checked this out thoroughly and passed on the info.
Despite the fact that the anecdotal reports were positive, even for the terminal, they chose not to go that route. I even contacted Cancer UK and they confirmed that cannabis was trialled some years ago for brain tumours so as a treatment it has been taken seriously in the past

When John developed his cancer I still had all this knowledge but when it came to it we went down the conventional treatment route.

Why?

Well a lot of evidence for these complementary treatments is anecdotal. By the time the sufferer has realised that it isn't working for them, it may well be too late, even if only in terms of the amount of treatments then left available.

I suppose what I'm saying is that if you look on the net hard enough you'll find what you want to find but even if those reports are offered in good faith, there is no saying that the complementary treatment would work for you.

With Gleason of 4+3=7 were there no other treatments offered to you, including Brachytherapy?

Just be careful of what you hear. All these offers of info by third parties is because they just do not know what to say and think they are being helpful.

For me, my niece had nothing to lose by trying. She was already dying and in a dreadful state so you'll look at anything you think might help.

For you, I'd say stick to conventional treatment (having sussed out ALL of the options) and add things like carrots and juice and all the other things that are mentioned as helping ie Turmeric etc. They aren't going to kill you if used in conjunction with conventional methods.

As stand alone treatments they may well do so by delaying treatment and allowing the cancer to get a better grip.

I wish you all the best. But - please - do your research.

Sandra

*******

We can't control the winds - but we can adjust our sails
User
Posted 07 Aug 2016 at 11:24

Chaswell,

there is some good advice in the above posts, if only it were that simple to change your diet and cure PC

I had surgery 2 years ago no regrets,

it hasnt been perfect, recovery has been a lot tougher than I thought , there is no one size fits all treatment or recovery,

but I'm back to 90%,

consider taking action sooner rather than later, or you may run the risk of not being fit for surgery or other treatments if you delay

many of us here believed we were fit and healthy until being diagnosed, dont burden yourself with guilt thinking I should have ate this or that and led a particular life style,  it is what it is !

                                                                            good luck

User
Posted 07 Aug 2016 at 20:42

Thanks everyone, some good advice and yes, if only it was that simple we would all be doing it!!

I have no symptoms as yet, my PSA level was discovered in a blood test on a routine annual health check, so hopefully this has been caught early

I certainly won't be delaying treatment, was just interested in what people thought of the alternative theories or if anyone had tried them

Thanks for all your help

User
Posted 08 Aug 2016 at 09:11

Chats well, it doesn't hurt to ask and ask you have. You are obviously sensible and realise that fads and diets and DR Google are nothing compared to specialists knowledge and proven treatment plans.

The PCUK site is the place to get information along with the members of the forum as we all have experiences and the knowledge of how it has affected us in different ways together with the personal outcomes.

With this information that you glean it is "simples" and you then have to make a decision as to which treatment you want to receive, but it is only you that can make it. There is always someone with no experience that tells you how to do something based on hearsay and misinformation.

Download the toolkit from publications or telephone and ask for one to be sent, there is all the information available written down and easy to read. If you have questions then ask away on here or call the specialist nurses on this site who will answer you, they are very experienced.

When you go to the specialists appointments take a pen and notepad or go with someone to help with remembering what is being told to you. Not any questions down beforehand, it is so easy to forget to ask when you are in front of them at the time.

I wish you well with your treatment

Regards Chris/Woody

Life seems different upside down, take another viewpoint

User
Posted 08 Aug 2016 at 16:44

It's worth bearing in mind that much of the information passed on to you by other people will be half-baked theories that they've read about somewhere. People mean well - they really, really want to be able to help you, and often the only way they can do this is by passing on some tips they hope will cure you.

You could end up trying homeopathy, walnuts, bicarbonate of soda, a special black box that is said to cure all sorts of illnesses with electricity, acupuncture, aromatherapy, green tea, tomatoes, soya and heaven knows what else. Then you could cut out sugar, dairy produce, red meat, cured meats, alcohol, white flour, etc, and find your meals becoming very dull. There really isn't a lot of evidence one way or the other for most of these theories, the trouble being that Pca is hugely complex disease that behaves differently in every patient.

My OH tried some of the dietary advice and supplements, but his cancer continued to develop very aggressively and quickly. Some of these things might have helped in a preventative way if they had been started years before, but they were powerless to stop an advanced cancer in its tracks. And I can tell you that if tomatoes, which we grow and eat abundantly, could prevent Pca, I would not now be reading this forum.

User
Posted 08 Aug 2016 at 17:27

I think a lot of people get confused by "cure" when in fact what they should say it "may help" .My friend who was diagnosed with terminal cancer 2 years ago (not PCa) was told he would not live 6 months. Two years after he is still with us and he is now getting the best results he has had in 2 years. The doctors are surprised how well he is doing but he is not cured even though he is the picture of health. He plays golf twice a week and cycles everyday. He has changed his diet but still has foods which are "bad" for you but just less often. He also enjoys his beer a few times a week. He also takes Curcumin tablets daily which he swears by. I too have started taking these tablets as it cannot do any harm so why not.

User
Posted 09 Aug 2016 at 07:49

Hi all, I have read that giving up dairy helps as certain things in dairy products feed cancer, 

Paul

 
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