T4N1M1a

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User

Posted 16 Aug 2016 at 17:52

Hi everyone. My father 68yo just got diagnosed.with t4n1m1a prostate cancer. The doctor told us he cannot be cured because the tumours already spread outside the prostate into the bladder and rectum. Bone scan is negative. He started with hormonal treatment. Any of you guys have an idea how long does a person with dx of t4n1m1a. I asked the doctor and told me only 40 percent survives in 5 years. My father is having difficulty urinating if he does not take medication. Is there any way that could be done to help him urinate without difficulty? Tnx

User

Posted 16 Aug 2016 at 22:33

Welcome to the site nobody wants to be on, the normal advice is to download or send for the toolkit, which has all sorts of info. I cannot answer your question on your father's prognosis but someone will be along soon to help. I suffer with slow urine flow but probably for totally different reasons to your father. A urethral or super pubic catheter is one answer to the urinating problem but I would not rush into that solution, I think the TURP procedure can also help with urine flow but he may not be suitable.

Thanks Chris

User

Posted 16 Aug 2016 at 23:37

M, some men find that each hormone treatment works for only a very short time and the cancer quickly overcomes whatever is thrown in its path. For others, the HT can work for many years - we have members on here that have done a good 10 years and sometimes more. There is very little the onco can do to predict your father's prognosis until you have a good few months of years of PSA measurements to judge how well he responds to HT.

As the HT kicks in, his tumours should shrink somewhat, which should ease the weeing problems.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 17 Aug 2016 at 07:11

Hi M

I am also T4n1ma although my spread is to the lymphs in my body at this stage.

I was diagnosed 21 months ago, have had chemo, RT, zoladex, biclutamide and now Abirateone. Life has been ok, I am 51 opposed to in my 60s like your dad however am still running marathons and beyond.

My prognosis was a range of dates but I decided after the initial emotion that I would do my best to enjoy life and only worry about things when they happen ( easy to say I know). I totally understand your desire for a time but as others have said we are all different.

My PSA went from 342 on diagnosis to 0.3 now under treatment so the cancer is less advanced now than it was on diagnosis , I know it's waiting to reappear but those numbers show that treatment can work.

I would respectfully suggest that your dad asks about the treatments I have had and see what his onco says about why or why not and when ( for example abiriterone will only be used after zoladex/pristap fails however research shows that all things being equal early chemo I'd now, may extend ones prognosis).

Keep posting your thoughts or any questions here.

For me my diagnosis has made me feel it's a time to start living not the other.

Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User

Posted 17 Aug 2016 at 08:01

Hi and welcome to the club that nobody wants to be a member of, I remember when I was diagnosed on 21st July, worst day of my life, I felt really down and went through all the emotions why me etc, I the started having conversations with other people on this site and it made a huge difference, you will get lots of usefull info, do download the toolkit or order a hard copy, you can also speak to the specialist nurses they are great, I have had me bone scan which was clear now waiting for another MRI as last one was a while ago if all OK I am having robotic surgery on 29th Sept, I can't wait to get this dirty disease out of my body,

best wishes to you all

Paul

User

Posted 17 Aug 2016 at 08:48

Past 2 days my father is complaining on how hard it is to urinate and problem with his bowel movement. When should i contact our doctor if he continues to have problem with his bowel movement. Is the cancer cells spreading to his bladder and rectum causing the problem.

How will the doctor know if the ht treatment is working or not? Thanks

User

Posted 17 Aug 2016 at 10:34

After I was diagnosed every ache and pain and anything else was put down to the cancer, at the end of the day only the doctors really know and we have to put our trust in them, you can speak to the specialist nurses on this site they are very good,

best wishes

Paul

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