Advanced Local PC so young

I am French, white caucasian.

Yes I have heard this a lot.

GP also said it couldn't be a PC cancer, it must be an enlarged prostate or urine infection, even my step dad who had PC at 56.

So I just need to wait for those members to reply, or can I contact them directly?

Thanks

Sebastien

hi.i am surprised they can operate ,i have locally advanced t3b no mo,gleason 7 3-4,i with seminal vessicle invasion,i had to go down the ht/rt route, any guys similiar.

Due to Gleason 4+5 and Biopsy showing 8/10 with cancer, RT wasn't an option for me.

RP is better for agressive cancer.

My dad and friend did RP as well whereas they had Gleason 4+3 like you.

Also, you cannot do RP once you had RT.

But you can do RP and then RT.

So you have completed the RT and it's all treated now?

Take Care

Sebastien

Lyn,

I think he means that he has sent others pms?

KRO..

Edited by member 25 Aug 2016 at 13:57  | Reason: Not specified

I meant private messaged the young members you gave me.

Does that mean RP has less side effects and being only 40, they agreed that would be the best option?

Don't know why my two friends and dad decided to have RP then. All three aged between 56-60.

Correct, they suspected microscopic cancer cells, but nothing was showing on MRI and Bone Scan.

Only the biopsy of the extracted prostate, seminal vesicles and lymph nodes showed the positive margins.

Now my oncologist has recommended RT only and not associated with HT. Is that normal please?

Would you recommend a second opinion?

Thank you

Sebastien

Hi Sebastien,

Your consultant may well have a good reason for not adding HT, at least at this point but it is certainly a question that you could ask.

Yes, PCa is indeed very complex and sometimes medical opinions differ on diagnosis and treatment. Biopsy can miss tumours completely or not find the most mutated cells. Better scans are becoming available but even these sometimes fail to enable tumours to be identified yet alone microscopic cancer cells. My own case illustrates this. Following RT (in Germany), my consultant at The Royal Marsden considered that my slow but persistently rising PCa was likely due to some re-established cancer in my Prostate and an MRI scan showed this to be the case. I was referred to the University College London Hospital who did a further biopsy and scans and I was accepted in a study to have HIFU. UCLH also said they believed I had a cancerous iliac lymph node as it showed an uptake of choline on an MRI scan. They suggested I start HT. However, I referred the scans back to The Royal Marsden who said they were not convinced this node was cancerous and recommended I did NOT start the HT. I also sent the scans to myRT treating hospital in Germany and they were of the same opinion as the Marsden but stated that although there was some evidence of choline uptake, the size and shape of the node had not changed since the last check up scans I had there in 2011. However, they did suggest that if the PSA rose to 0.70 (in my case), I have a 68 Gallium PSMA scan and if appropriate have a minimum of 3 month's HT followed by some more radiation. My PSA is now 0.73, (having been at a nadir of 0.39 after HIFU) but further recent scans lead UCLH to believe that there may still be a very small tumour in the prostate. So the node and now the prostate are areas of suspicion.

This shows that it is not always possible to get a definitive opinion even from experts because of differing interpretations and limitations of scans in particular. I do believe it is worth pursuing possibilities with ones consultants and I have indicated my willingness to have a further targeted biopsy of the prostate and more HIFU to eradicate any cancer found. I have also asked if a biopsy of the suspicious node could be done at the same time and my consultant says he will take advice on this.

Sebastien

Hi Sebastien

I see its only 1 mth since a major op.  Both physically and psychologically that's a lot for anyone of any age to take on board.   You should have a main / key contact to discuss anything ie   MDT..    multi-disciplinary team (MDT).  Use as much resource as you can, ask as much as you feel able.   If you are comfortable posting or updating your profile with PSA values / dates etc it can help others a great deal. I'm 20 years older than you however - please see my profile. No symptoms.    Also ask about any trials ? (each region operate differently) 

You spoke about your step -dad.   Does biological father had/have any PC problem or do you have sons or brothers.  ?   As siblings are proved to have an increased risk.   

A bit of a paradox.   I get passed down genes.   However without my father having PCa I would not have had PSA tests and RP 18 mths ago.   

Some info :  

http://www.icr.ac.uk/our-research/research-divisions/division-of-genetics-and-epidemiology/oncogenetics/research-projects/ukgpcs

All very best.   

Thank you for your support. We will contact them or the Specialist Nurses.

Also we just had a baby boy, born on 10th August. So I have now an even better reason to fight this cancer.

I don't know my biological dad as he left us when I was 5 and I don't have any brothers.

I will update my profile shortly.

Thanks again

Sebastien

Belated congratulations Sebastian on the new addition.

As you say, he'll be a boost to your desire to get a good result.

Very pleased for you and Mrs Sebastian.

Best Wishes

Sandra

*****

Rob, my step dad also needed 6 weeks, so another two weeks for me then.

A genetic test can be done if asked.

All the best.. you contribute a great deal to the forum. ..

If you have sisters, mother, blood aunt or grandmother who had breast cancer, and/or brother, father, blood uncle or grandfather who had early onset PCa (generally considered for this purpose to be before the age of 60) then you should be able to get genetic testing (BRCA) on the NHS. But you would probably have to go for genetic counselling first as it is important to understand what the implications could be. For example, I had genetic counselling before being tested for a familial brain tumour gene but once it was explained that if I did carry that gene, my children might not be able to get mortgages, life insurance etc I (unsurprisingly) decided not to go ahead.

Best wishes to your husband.

Sebastien

I am just catching up on posts, I was 38 when my OH was diagnosed ( he was 62) and I was 8 months pregnant at the time.

So I understand from your perspective of being a young person with a baby and the different challenges and feelings this involves.

Best wishes

Alison