On going

Leila

I agree with Dave , It’s great to hear encouraging stories on here. I’m sure as treatments get better there will be more . I hope so.

I was G9T3 locally advanced with a PSA of 27 and had EBRT and Brachy plus HT. My last (ever) Prostap injection was October ‘19 after 2 years. This Friday I will be 12 weeks from then 😳😳. Wait till March for next PSA.

Leila I hope your journey back to some kind or normality continues as well as it has so far. Good luck. 

Phil

Hi Leila. My consultants understudy tried to tell me my PSA wouldn’t rise after I finished HT . But of course it will for us with Prostates still inside ....I would presume to roughly where it would be normally ??? So I will not be worrying too much for a small rise from my current 0.07.

Phil

Hi Alan , yes I’m waiting on a March test too 😬... never ever want to go back on Prostap.

I’m sure we’ll be fine 👍.

Phil

Hi Phil, David saw an understudy last year. It was not good, he was bumptious verging on rude,discounted the written questions, and rushed us out of the room. We travel a long way to appts as we live rurally. David gets quite anxious before each encounter. Well this one was not good, it took me days to calm him down. I did an online feedback. David then had to see another consultant for something else, Egyptian lad, he was brilliant! We complimented him on his manner, communication skills and approach and it was delightful. I then spoke to him on Arabic which surprised him and made the day for us all as David was signed off with out needing his services again.
Sometimes just to be spoken to politely, listened to and communicated with like a person rather than an illness makes a difference.
In past lives I’ve worked with medics, and have despaired at their sometimes limited ability to talk to us average punters, yet I’ve also worked with some caring sensitive people who have made a positive impact. Such is life and the human being I suppose.some medics could be better at working with us and. realising we are not daft or dim, but sometimes worried, scared and emotionally frozen. Rant over 🤔🤔

Leila

Edited by member 07 Jan 2020 at 14:36  | Reason: Not specified

I didn’t mention earlier about the mental issues that I have been going through to do with my memory. My consultant asked me at my post treatment review, if there were any other issues I was experiencing apart from my physical needs and I said well apart from getting very forgetful and difficulty finding the right word in a sentence, which is probably me getting old. She then told me very directly that the male brain loses mental acuity without testosterone and the lack of memory and fuzziness is a direct consequence of the hormone therapy, if I wasn’t like it before the HT
That is another reason why I am so very reluctant to resume hormone therapy. I asked if there was a chance my brain could return to normal once I have testosterone back in my system and she said everyone is different and it depended upon my age and physical condition.

Edited by member 07 Jan 2020 at 15:46  | Reason: Typo

Hi Alan. I don’t think that I have lost memory or fuzziness. On the contrary for some reason the HT caused me to remember some painful times from my early childhood. Things that I’d long ago buried, or thought I had. After the HT kicked in I had to deal with all that as I’d never dealt with it as a child. 2 years on and still finding it difficult even with a counsellor. Have you seen the Truth Project TV ad ? It’s very very good, and very real.

Flip side I also remember loads of good stuff from my childhood I’d buried along with the bad stuff and it’s caused me to reunite with some old school chums. Always a silver lining 😊.

Phil