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prostate cancer I'm only 56

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User
Posted 15 Dec 2016 at 17:33

Never i can't have prostate cancer I'm only 56 and i feel fine well sort of , That's what i thought to myself when receiving the news from the specialist urology nurse but with a Gleason score of 8 and a PSA of 23, So it seems i have a Locally advanced prostate cancer.

Great welcome the club ! . 

         It's not that i was in denial but the fact i didn't feel unwell apart from all the examinations scans and x rays i had been given on my whirlwind tour of the north west hospitals . Yes i might get up during the night  two or three times but doesn't everybody ?. Well apparently not, Although in my defence i had just started for the first time a medication to combat high blood pressure and i believed this to be the culprit . My doctor a very efficient chap had a different view he decided that it was not the cause and a digital rectum examination was in order and further more lets have some blood test and oh what fun we had.

         Here we are now 3 months down the line and i am receiving hormone therapy and about to start radiotherapy on the 22nd of December just what i need at the busiest time of the year as an entertainer but hey ho let's meet it head on and be confident . I believe you can't be anything else! can you ?.

         After saying all the above i must say i feel worst for the people around me i have a very loving and caring family My wife son daughter Brothers sister and a mother who must never find out about any of this at 88 she doesn't need to know. On the day of my diagnosis my darling wife was with me and as we were told i held her hand and felt the devastation run through her it was awful i really wish i had gone on my own.

         I was asked to inform my brothers so they could be tested but i couldn't say anything because on the day of my results my sister in law the kindest gentlest person you could ever wish to meet had been admitted to our local hospital and early on the following morning passed away . I  could not make things worse for everyone.

       Thankfully my brothers have now had the results back and they are all clear good news .

       I am sorry to ramble on but once you get going it all pours out , Anyway now we must look forward and just carry on regardless .

  I don't know if i am allowed to do this but if i can't the mods will scrub it out . But please everybody out there that reads  this have a great and  healthy Christmas 2016 and look forward to being as healthy as is possible in the new year.

        

User
Posted 15 Dec 2016 at 19:50
Marradad

I'm 46 and had my prostate removed last week. Like you, I had to tell my brother to go get tested. Thankfully, he's fine. Also like you, my elderly mother knows nothing about this. I live in England and she's in Belfast. She's coming over to stay next week. Might not be able to hide things much longer.

Statistically, neither of us should really have this disease - we're too young supposedly. But we do have it.

The people on this forum are great, as are the specialist nurses from PCUK.

Keep positive.

Walter

User
Posted 15 Dec 2016 at 20:01

Hi
So sorry you have to come on here for help. But there is loads of help and good people about so ask anything and look through the publications section. Plenty of youngsters these days sadly. Click on my picture and read my profile maybe. I was operated on at 48 and only then found to be locally advanced sadly. At least you're not having to have the surgery I suppose. Many of us have been where you are now. It's really difficult to start with. I have a six year old boy :-((
It does get easier after the initial shock , and the side effects of treatment are mostly manageable.
Good luck

User
Posted 15 Dec 2016 at 20:28

Hi

As you say keep positive. Have you been told locally advanced or just taking it G8 with PSA of 23 must mean it? PSA by itself is not an indication of how aggressive PCA is. At aged 58 I was G8 with PSA of circa 6. Had RT and HT and still here 12 years plus. Been of cancer treatment since Aug 2008. RT is normally tolerated well. Side effects, peeing frequency and maybe loose bowels, normally start 10 - 14 days in so you should be Ok over the festive season.

Ray

User
Posted 15 Dec 2016 at 21:21
Welcome Marradad,

I just wanted to say welcome and don't worry about rambling I have been doing it for 17 pages know. So any time you want to chat we'll Ramble away.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 15 Dec 2016 at 21:44

Hello Marradd and welcome from me too, and welcome to Mrs Marrad as well.

Every person on here, in one way or another, knows exactly how you and your family feel. We have all travelled the rollercoaster you are currently riding on.

If you go to Publication on this site you can view, or download, The Toolkit which is a load of information on PC. The diagnosis, the different treatments etc. You may find it helpful, especially for when you next see a consultant.

Get the questions you want answers to firmly in your mind, or better still, write them down. It's common advice we give and many of us do it. There is just too much to take in when you are first given the news.

It's good that you have your wife and family supporting you. I can understand how you felt when she was with you and the news was given, but as another wife I'm sure I speak for yours when I say that she would have wanted to be there, hold your hand like she did, and support you, all the way, just as she will in the future.

Ramble away as much as you like. We're used to it. Rant if you want to. We're used to that too.

Best Wishes

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 16 Dec 2016 at 00:50

Hi thanks for the platform on which to ramble on many thanks for the response  people on here are brilliant as are most people once they get over the shock but they just don't always understand god bless em they try but just don't get like you do thanks.

      I have been told definitely it's locally advanced pc but strangely i did spend a couple of hours with a surgeon he explained the op and everything the pros and cons and then right at the end of the consultation he asked my height and weight and then decided i was too heavy for the op too high a risk i am heavy a bit of a gut  but i do carry it fairly well if i say so myself as i was still playing football and had done 20 odd years of judo in the past always been active cycling canoeing etc etc . not now though lost my mojo but maybe in time.

 

Anyway i'm of again rambling just to say you are all very much appreciated .

 

THANKS 

User
Posted 16 Dec 2016 at 17:15

Hi,

I am 55, my experience is different from yours in that I have just had the surgery, but from an emotional point of view I think most of us on here have shared a similar journey.
It's a great shock at first isn't it? You always hear stories of other people who have cancer, but you never think it will be yourself.
The folks on here are great, lots of knowledge, very supportive, it seems you have a supportive family but there is nothing like talking to people who have been/are going through the same experience as yourself.
Welcome to the group, Carry on rambling as that is what this forum is all about, I think we all had our initial outburst, it helps to get it off your chest,

All the best Mark

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User
Posted 15 Dec 2016 at 19:50
Marradad

I'm 46 and had my prostate removed last week. Like you, I had to tell my brother to go get tested. Thankfully, he's fine. Also like you, my elderly mother knows nothing about this. I live in England and she's in Belfast. She's coming over to stay next week. Might not be able to hide things much longer.

Statistically, neither of us should really have this disease - we're too young supposedly. But we do have it.

The people on this forum are great, as are the specialist nurses from PCUK.

Keep positive.

Walter

User
Posted 15 Dec 2016 at 20:01

Hi
So sorry you have to come on here for help. But there is loads of help and good people about so ask anything and look through the publications section. Plenty of youngsters these days sadly. Click on my picture and read my profile maybe. I was operated on at 48 and only then found to be locally advanced sadly. At least you're not having to have the surgery I suppose. Many of us have been where you are now. It's really difficult to start with. I have a six year old boy :-((
It does get easier after the initial shock , and the side effects of treatment are mostly manageable.
Good luck

User
Posted 15 Dec 2016 at 20:28

Hi

As you say keep positive. Have you been told locally advanced or just taking it G8 with PSA of 23 must mean it? PSA by itself is not an indication of how aggressive PCA is. At aged 58 I was G8 with PSA of circa 6. Had RT and HT and still here 12 years plus. Been of cancer treatment since Aug 2008. RT is normally tolerated well. Side effects, peeing frequency and maybe loose bowels, normally start 10 - 14 days in so you should be Ok over the festive season.

Ray

User
Posted 15 Dec 2016 at 21:10

Forgot to add forget the cause as its not known so trying to work out the what will only spin your head. Some will blame poor diet choices but others do that and don't get cancer. I was the most health conscious of all my siblings yet I'm the only one with cancer. So just accept life is life and move on.

User
Posted 15 Dec 2016 at 21:21
Welcome Marradad,

I just wanted to say welcome and don't worry about rambling I have been doing it for 17 pages know. So any time you want to chat we'll Ramble away.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 15 Dec 2016 at 21:44

Hello Marradd and welcome from me too, and welcome to Mrs Marrad as well.

Every person on here, in one way or another, knows exactly how you and your family feel. We have all travelled the rollercoaster you are currently riding on.

If you go to Publication on this site you can view, or download, The Toolkit which is a load of information on PC. The diagnosis, the different treatments etc. You may find it helpful, especially for when you next see a consultant.

Get the questions you want answers to firmly in your mind, or better still, write them down. It's common advice we give and many of us do it. There is just too much to take in when you are first given the news.

It's good that you have your wife and family supporting you. I can understand how you felt when she was with you and the news was given, but as another wife I'm sure I speak for yours when I say that she would have wanted to be there, hold your hand like she did, and support you, all the way, just as she will in the future.

Ramble away as much as you like. We're used to it. Rant if you want to. We're used to that too.

Best Wishes

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 16 Dec 2016 at 00:50

Hi thanks for the platform on which to ramble on many thanks for the response  people on here are brilliant as are most people once they get over the shock but they just don't always understand god bless em they try but just don't get like you do thanks.

      I have been told definitely it's locally advanced pc but strangely i did spend a couple of hours with a surgeon he explained the op and everything the pros and cons and then right at the end of the consultation he asked my height and weight and then decided i was too heavy for the op too high a risk i am heavy a bit of a gut  but i do carry it fairly well if i say so myself as i was still playing football and had done 20 odd years of judo in the past always been active cycling canoeing etc etc . not now though lost my mojo but maybe in time.

 

Anyway i'm of again rambling just to say you are all very much appreciated .

 

THANKS 

User
Posted 16 Dec 2016 at 12:30

Trying to get back to your fitter days could well help you deal with fatigue caused by HT. That's one of those some guys hardly suffer whilst others certainly know about it.

User
Posted 16 Dec 2016 at 13:53

Hi Ray thanks for that i am one of the latter really feeling fatigued with the HT i just didn't think i would feel this tired .

 

Regards Peter 

User
Posted 16 Dec 2016 at 17:15

Hi,

I am 55, my experience is different from yours in that I have just had the surgery, but from an emotional point of view I think most of us on here have shared a similar journey.
It's a great shock at first isn't it? You always hear stories of other people who have cancer, but you never think it will be yourself.
The folks on here are great, lots of knowledge, very supportive, it seems you have a supportive family but there is nothing like talking to people who have been/are going through the same experience as yourself.
Welcome to the group, Carry on rambling as that is what this forum is all about, I think we all had our initial outburst, it helps to get it off your chest,

All the best Mark

User
Posted 16 Dec 2016 at 22:45

Hi Mark thanks for the response i am most grateful ,When you say you hear of other people getting cancer we have had our fill as a family. Our daughter had leukaemia as a child age three which she has survived she is now thirty four, a brother in law that we have helped through pc though a small one apparently . Plus two brother in laws that we lost to cancer one with skin melanoma and one to a  brain tumour .

      I think maybe i should buy a lottery ticket as our luck surely must change soon but having said that i can't be greedy as my precious daughter and one brother in law have  survived .

 

Regards Peter

 
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