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Scared daughter

User
Posted 08 Jan 2017 at 19:52
Hello

My dad was diagnosed with prostate cancer before Christmas following a recurrent Urinary tract infection. He had no other previous symptoms and is the fittest 70 year old I know. His PSA was 27. His bone scan confirmed it has spread to his bones but not sure to what extent. He has started monthly hormone injections and is feeling much better. His urologist has referred him to oncology to discuss chemo. What is the prognosis once it is in your bones and how will it affect his daily life? Will he have pain with it and will he gradually become more unwell? Is Gleason score a biopsy result? He has not had one taken I presume this is because it has already advanced so much. We are all very shell shocked as he has always been so well fit and active. Is it likely he has had it for years?

User
Posted 10 Jan 2017 at 15:13

Hi

Sorry to see you on hear and to hear about your father. There are lots of members here with the right level of experience to help you. There has been a tech problem with the community site so the responses won't have been coming as quickly as normal.

The Gleason is determined from the biopsy. I would suggest you contact one of the specialist nurses and speak to them to guide you through what to expect. There will also be various conversations on here on the topic.

Hang in there and you will be hearing from other members with more experience.

Chris

User
Posted 10 Jan 2017 at 16:09

I'll give answers where I can:

Originally Posted by: Online Community Member
What is the prognosis once it is in your bones and how will it affect his daily life?

It is likely that as the PCa is in your Dad's bones that he has advanced PCa which can be treated but can't be cured. I have advanced PCa. Click on my name to see my treatment profile. Regarding his daily life, it is impossible to predict how it may affect him, however, I can give you hope. I was diagnosed 3.5 years ago. Apart from a period of about one month when PCa gave me merry hell with my left shoulder, my quality of life has been as good as it was prior to diagnosis.

Originally Posted by: Online Community Member
Will he have pain with it and will he gradually become more unwell?

Not all men who have PCa in their bones suffer from pain. So far, touch wood, I'm one of those lucky ones. Your Dad may be too. I hope so. Regarding becoming more unwell, logic says this will be the case, however, I can give you hope again. 3.5 years on and I'm feeling good, enjoying my life, and I'm on chemo!

Originally Posted by: Online Community Member
Is it likely he has had it for years?

No one can say. Don't dwell on it. What is past is past. Maybe it was missed but there's nowt we can do about it now. The future is what's important.

Good luck.

David

User
Posted 10 Jan 2017 at 16:36

Dad may develop bone hot spots. If so and depending where these are and how many of them there are, it is sometimes possible to treat these with RT to help reduce pain. There are other ways to treat systemically too with recent and ongoing advances in drugs. Treatments will be tailored to the way the disease develops and Dad's response. Good to exercise and try to keep fit. Some men here are convinced that a healthy diet is helpful. There is a section of the forum that covers this aspect.

Barry
User
Posted 10 Jan 2017 at 19:00

Thankyou so much for all your positive and helpful comments, it's great to hear some good feedback. Will probably be back when we know more
Deb

User
Posted 13 Jan 2017 at 10:48

Hi Deb,

I am in a similar position to you and have just learned about my dad this week. Totally stunned. If you would like to talk privately, I would like that.

SP

 

 
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