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Low/zero testosterone

User
Posted 24 Jan 2017 at 12:36

Hi,

Been advised to start a conversations on low testosterone. All sorts of treatments being offered on the web. Q1 will all treatments increase risk of  CA returning (catch 22)? Q2. do any of the various contraptions to help with RD work? As remarked in previous mails the low T produces extreme fatigue, and seems to undermine all my best anti-depression strategies. 

I know, I know ... I am alive and the sun is shining .....

Otto

PS: Zoladex finished a year ago

User
Posted 24 Jan 2017 at 14:21

Otto,

I've been on Zoladex for more than 3.5 years. My Testosterone is currently measuring at < 0.2. I have little fatigue.

I do a good amount of exercise (gym, croquet, walking) and I think it is this that minimises my fatigue.

David

User
Posted 24 Jan 2017 at 15:03

I came close to a stand-up fight with Endocrinology over testosterone replacement therapy. My testosterone level was almost zero two years ago and I was suffering from endless chest infections and nasty colds during the autumn and winter. Endocrinology refused treatment at first based on the knowledge that I had had prostate cancer, despite the fact that I no longer had a prostate and my PSA had been unmeasurable for about five years.. Eventually I managed to get a second opinion from a urology specialist and Endocrinology, reluctantly, gave in and I was put on TRT via a gel sprayed on each morning.

Unfortunately, now my red cell count has gone up, and as this is a possible side-effect of TRT, Endocrinology are saying "There, we told you TRT was not good for you" and cut my prescribed dose. This year, I have had the mother and father of coughs, colds and chest issues together with significant fatigue. Whether that is a result of cutting down the TRT level, I don't know, but....

During the dispute with Endocrinology, I found several research papers casting considerable doubt on the established assumption that there was a direct connection between testosterone and prostate cancer. Specialists, however, don't appear to have read any such research.

Tony

TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015.

User
Posted 24 Jan 2017 at 22:04

Going back some years following RT, my Testosterone was low and I asked the treating hospital about Testosterone replacement therapy. I was told that it was not recommended so I left it at that.

Barry
User
Posted 24 Jan 2017 at 22:39

Thanks to all for the replies. I will see what my doctors say on next regular visit. They seem very coy about the low T. I guess
they don't want the survival rates to go down. Time I had it out with them.

Otto

User
Posted 24 Jan 2017 at 22:49

I feel after a two year journey that I understand most things about prostate cancer. However I was on TRT and had been for two years when my psa hit 15 and I was referred to urology. I was not taken off TRT until my psa hit 27 , even though I was 48 yrs old at the time. My wife and I distinctly remember our Uro saying that the latest findings disassociated Testosterone with causing prostate cancer. Indeed it was suggested T could protect the prostate. However virtually all HT robs the body of T as it is known to fuel the advance of PCa and so must be reduced or disguised. I just don't get this ??? I too have seen many papers saying that existing thoughts are flawed re T and PCa.
Confused !!

User
Posted 16 Mar 2018 at 09:59
Hi Otto. Reading your posts re low/no T, I am just wondering how things are going one year on?

If you click to my profile, you should see a post from me that outlines a very similar situation.

Hope to hear from you.

Regards

Paul

 
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