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RT+HT or robotic prostatectomy

User
Posted 01 Feb 2017 at 22:13

As had mentioned before, I have been confirmed with prostate cancer inOct 2016, with all 12 biopsy samples +ve,2 of them gleason  4+4, and others 3+3 .PSA at 28. fortunately the  Bone scan is negetive. RT+HT recommended byMDT,  and told surgery+RT as second option. I had my first hormone injection as part of RT+HT treatment on Jan 12, 2017. Still confused whether to go with robotic prostatectomy. I would like to know the experience /opinion of those already had the treatment RT+HT and surgery. opinion regarding after effects  of both treatments as ED and continence can happen in both cases.Please bear with me if I am repeating my worries again .

Regards

Shoukathali

 

 

 

 

User
Posted 02 Feb 2017 at 16:17

I'm afraid I can't help you other than to say that I've recently been diagnosed with PC too and face a similar dilemma as you - whether to go for surgery or radiotherapy and hormone treatment.  My PSA was 15, Gleason 8 (4+4) 0.44cc tumour in 37cc prostate - bone scan all OK.  It's the side effects which are the concern for me - sounds as if it is for you too.

User
Posted 02 Feb 2017 at 19:11

It seems wise to go with the recommendation of your multidisciplinary team ... some people don't get a recommendation so the fact that the specialists thought you should go for RT/HT must be significant.

If you know that surgery is not going to be enough on its own and would still need to be followed by RT/HT then it does seem a bit needless inflicting unnecessary side effects on yourself. My husband has bitterly regretted his surgery because it failed and he had to have RT anyway - his view was 'what was the point of putting myself through life changing treatment?'

Other people might argue that having the op will debulk the tumour and give you a better chance but your MDT seems to think differently.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 02 Feb 2017 at 19:13

This will give you both an oversight of what ED is like to live with, although it is only mine and John's experience and others have fared better or worse:

http://community.prostatecanceruk.org/posts/t9839-One-wife-s-story-of-ED#post119001

 

Edited by member 02 Feb 2017 at 21:18  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 03 Feb 2017 at 01:12

There is never going to be a certainty of a successful outcome regardless of which treatment you have. Also, outcomes of various individual cases may not be typical. Much will depend on whether the cancer is well confined within the Prostate. If so, the chances of cure by surgery is probably as good as present experience shows to be the case. (My second opinion was of the opinion that surgery was the 'Gold Standard' notwithstanding the fact that he was an expert on radiotherapy, and on a committee that advised the UK Government on forms of radiotherapy, so perhaps a surprising view for a different therapy).

The surgeon who headed the MDT told me that he would remove my Prostate if I wished but advised against it because he doubted he could remove all the cancer. So he recommended the RT with HT which I had. For just over a couple of years or so thereafter, regular MRI scans and PSA results tended to indicate I had been lucky and had had a good result without incontinence (my biggest concern), although gradually worsening ED. However, my PSA continued to increase slowly but at a faster pace. My consultant at the Marsden felt there was some new cancer in the Prostate and subsequent MRI's showed this was the case. There followed HIFU which dealt the cancer a blow but again it seems that increasing PSA and scans have raised suspicion that there is some cancer within my Prostate. I do wonder whether had I had the Prostate removed when I had the chance, perhaps followed by HT/RT, whether this would have been more successful even if it meant being more adversely affected by side effects. A friend who followed this route with a very similar diagnosis to mine is doing very well some 10 years on.

For me, eradicating or knocking back the cancer has been the objective almost regardless of adverse side effects (maybe a view reinforced by the fact that these have for me been relatively minor) but for some, side effects play a much more significant part in the decision making process.

Barry
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User
Posted 02 Feb 2017 at 16:17

I'm afraid I can't help you other than to say that I've recently been diagnosed with PC too and face a similar dilemma as you - whether to go for surgery or radiotherapy and hormone treatment.  My PSA was 15, Gleason 8 (4+4) 0.44cc tumour in 37cc prostate - bone scan all OK.  It's the side effects which are the concern for me - sounds as if it is for you too.

User
Posted 02 Feb 2017 at 19:11

It seems wise to go with the recommendation of your multidisciplinary team ... some people don't get a recommendation so the fact that the specialists thought you should go for RT/HT must be significant.

If you know that surgery is not going to be enough on its own and would still need to be followed by RT/HT then it does seem a bit needless inflicting unnecessary side effects on yourself. My husband has bitterly regretted his surgery because it failed and he had to have RT anyway - his view was 'what was the point of putting myself through life changing treatment?'

Other people might argue that having the op will debulk the tumour and give you a better chance but your MDT seems to think differently.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 02 Feb 2017 at 19:13

This will give you both an oversight of what ED is like to live with, although it is only mine and John's experience and others have fared better or worse:

http://community.prostatecanceruk.org/posts/t9839-One-wife-s-story-of-ED#post119001

 

Edited by member 02 Feb 2017 at 21:18  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 03 Feb 2017 at 01:12

There is never going to be a certainty of a successful outcome regardless of which treatment you have. Also, outcomes of various individual cases may not be typical. Much will depend on whether the cancer is well confined within the Prostate. If so, the chances of cure by surgery is probably as good as present experience shows to be the case. (My second opinion was of the opinion that surgery was the 'Gold Standard' notwithstanding the fact that he was an expert on radiotherapy, and on a committee that advised the UK Government on forms of radiotherapy, so perhaps a surprising view for a different therapy).

The surgeon who headed the MDT told me that he would remove my Prostate if I wished but advised against it because he doubted he could remove all the cancer. So he recommended the RT with HT which I had. For just over a couple of years or so thereafter, regular MRI scans and PSA results tended to indicate I had been lucky and had had a good result without incontinence (my biggest concern), although gradually worsening ED. However, my PSA continued to increase slowly but at a faster pace. My consultant at the Marsden felt there was some new cancer in the Prostate and subsequent MRI's showed this was the case. There followed HIFU which dealt the cancer a blow but again it seems that increasing PSA and scans have raised suspicion that there is some cancer within my Prostate. I do wonder whether had I had the Prostate removed when I had the chance, perhaps followed by HT/RT, whether this would have been more successful even if it meant being more adversely affected by side effects. A friend who followed this route with a very similar diagnosis to mine is doing very well some 10 years on.

For me, eradicating or knocking back the cancer has been the objective almost regardless of adverse side effects (maybe a view reinforced by the fact that these have for me been relatively minor) but for some, side effects play a much more significant part in the decision making process.

Barry
User
Posted 04 Feb 2017 at 18:50

Thank you so much for the immediate reply AND VALUABLE comments.

After reading Mr. Barrys reply, I got again little cofused as exactly that was my concern. If I could get rid of it ,the risk of recurrence may be much less compared to other option. I have been told by German specialists that, cyberknife RT no more recommented in my case as my gleason is8 where as from India they tell it can b done. Our specialist eurologist says nerve sparing robotic surgery not possible as gleason is 8 and PSA is 28 but from India they say it can be done( I cant trust them as we dont know what they will do once in theatre)On 12th feb, I have appointment with my Radiologist for further tests before starting RT. I will consult him regarding  CYBERKNIFE treatment, which is much more precise and requires only less than 10 days treatment.I have to blame myself for the present situation as, 3 years backPSA WAS 13 and was warned that it can be PCa. Had  some tests like ultra sound , MRI etc and avoided biopsi as I didnt want to get identified as I have  PC!.  I have not yet told even my better half that I have cancer (she knows that I have problem with prostate and that it needs RT OR SURGERY) as it will turn upside down the happy family and the pleasant atmosphere.

Thanks again for the valuable information provided.

SHJ54

 

 

 
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