bladder removal[possible]

User

Posted 20 Feb 2017 at 19:58

hi all. i have chrones disease which i was told would be kick started with radio therapy, ive had the opp now but my psa levels have now inccreased 3 times due for a scan[ctc] soon then 6 weeks of hormone therapy followed by 5 weeks of radio therapy then A MRI. ive also been told there is a 50 percent chance they will have to remove my bladder has anyone else had to have this done.

User

Posted 20 Feb 2017 at 21:11

Nick

I am not in the same boat as you regards crohns but my PSA is also on the rise and RT is on the horizon, following an ongoing stricture problem it was suggested having my bladder removed and having a stoma fitted would improve my quality of life. It is a major operation and following counseling I rejected the proposal. My consultant suggested I get a second opinion and following a meeting with another consultant we have come up with and alternative plan.

Thanks Chris

User

Posted 21 Feb 2017 at 18:11

Hi thx for getting back what is the alternative you have been offered.??

User

Posted 22 Feb 2017 at 16:02

Nick

I am having a SPC fitted prior to RT just in case the RT has an adverse effect on the urethra. If the urethra is still useable following RT then I may just live with a slow flow. If the urethra is compromised and provided the PSA falls I will then have reconstructive surgery to the urethra, and possibly an AUS, not a simple route but gives me a chance to get back to being "my" normal. The other point of my reply was, my consultant had discussed my situation with his peers and knowing my reluctance to losing my bladder it was "his" suggestion to obtain a second from outside his normal team. What is the reason for your possible bladder removal ?

Thanks Chris

User

Posted 22 Feb 2017 at 18:54

thats my problem chris, i think because the specialist said damage from the rt. though must admit im not sure.

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